LYME Voice

Josey Buzby was just starting high school when ongoing health issues and ANXIETY forced her to do homebound (online) schooling.

Key Takeaways:

• “I wanted the normalcy of seeing my friends every day.”
• I wanted to be in school. But I couldn’t stay awake, let alone remember anything.
• The fluorescent lights hurt my eyes.
• The short term memory loss and not being able to speak the right words (word loss) and the right time made school almost impossible. (4:00)
• Lyme turned my life upside-down.
• Anxiety and “weird pains” were my first symptoms.
• “I know something is wrong”
• After being fired by my physician who didn’t believe I had Lyme. I was sent on an incredibly weird, awful but exciting journey to find out what was wrong. (7:00)
• My moods were out of control. (The anti-hulk medication)
• My mom really fought to figure out what was going on.
• “I did a 180-degree turn as a human.”
• “Lyme is horrible. It’s this thing you can’t see. You can’t see Lyme.”
• Even if I don’t get better, I can still watch people grow. (17:00)
• I never thought I could be a functional member of society.
• You can laugh or you can cry, when situations are out of your control. We choose to laugh.
• Comedy was a way to cope with what was going on.
• You give people in your life “select information” because you don’t want to freak them out.
• My friends had to make a choice to “stay with me” and I had to make a choice to “let them stay” in my life. (I didn’t want people to see me if I hadn’t showered in days)
• We shut a lot of people out, because they don’t understand what is going on.
• I didn’t want to know anything about Lyme disease. I didn’t want to watch the movies or read any of the books. My mom went into research mode, I didn’t want to know anything.
• “To LIVE would be an awfully big adventure”= my survival TATTOO

(I couldn’t get it until I was done with treatment)

• “My Mom is the whole reason I lived.”
• After being homebound for years. Reengaging with society was hard. I kept wondering if I could make friends again.
• What if I can’t make friends anymore?
• Training to be an EMT forced me to interact.
• You feel like you have been robbed.
• What would you say to other teens battling Lyme during highschool? “I’m sorry you have no control. But you’ll get it back. Take the small wins as they come.”
• You can be a human again!
• It felt unreal to have normal worries.
• “This is what normal people do.”
• When you want to give up, you have to find something to look forward too.”

Connect with us:

[email protected]

[email protected]

Sponsors:

• Kangen Water- http://www.lymewater.com/
• Envita Medical –Envita Medical
• Medical billing services MedicalBillGurus.com
• Lyme Voice Facebook
• The Lyme Voice Podcast- Lymevoice.com
• Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes...Documentary
• Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease
• Organic coffee! https://www.ovaldogs.com
• Tick Warriors “Insect Repellent” https://tickwarriors.com/

Ep.103

Dr. Armin Alaedini is a professor at Columbia University, where he leads a research laboratory focused on studying the role of the immune system, host-microbe interaction, and diet in complex disorders. His team’s research on Lyme disease in the past 15 years has focused on the chronic and post-treatment manifestations of the infection, leading to seminal findings that provide molecular evidence of a biological basis for the patient’s symptoms. He is currently a member of the Scientific Advisory Board of Global Lyme Alliance and a Working Group Member of the NIH Advisory Council on Chronic Fatigue Syndrome.

Key Takeaways:

• How does inflammation become permanent?
• Could there be abnormalities in the immune response system because of Lyme disease?
• Could there be a biological basis for persistent inflammation?
• There is a biological basis for the symptoms Lyme patients are facing. This is not trivial, because there wasn’t scientific evidence to say it wasn’t psychosomatic.
• The infection causes inflammation. Inflammation then becomes chronic.
• Why do some patients recover and others don’t?
• Remove the infection, and then you still have to remove the inflammation. Borrelia components could remain.
• Even after treatment with antibiotics, you can still have Borrelia in the body. (Animal studies)
• The inflammation that patients have early on in the infection is different than the persistent inflammation that patients have in the later stages of infection. (12:00)
• Biological markers to demonstrate that patients have chronic persistence of inflammation. This is really important because it gives us a handle to study these patients.
• There is basically no federal funding for Lyme disease. The NIH gives out a minuscule amount of funding for Lyme disease. Lack of funding is a major reason we haven’t made strides.
• We know a lot about Borrelia (about the infection itself) but the chronic symptoms that persist after having Lyme disease haven’t been properly studied.
• We need more support from the NIH and other federal agencies.
• Chronic Fatigue Syndrome (working group that counsels the NIH)
• NIH is slowly starting to be more supportive of research around CFS.
• CFS is a heterogeneous condition. It’s a spectrum disorder, making it very hard to study.
• There is now a study section at the NIH dedicated to studying CFS.
• We need funding to entice new researchers in these underfunded areas.
• Testing for Lyme that is “accepted” as mainstream relies on the immune response to the infection itself.
• We need to be able to find biomarkers in patients early on in the infection and later post-treatment Lyme disease syndrome. (30:00)
• We are still at the early stages of understanding (funding, research, clinical trials) these persistent symptoms.
• We can’t focus only on antibiotics and antibacterial agents. (We need to think more broadly about treatment strategies)
• Borrelia moves out of the bloodstream very quickly. From the blood, it goes to joints, nervous system and organs.
• Clinicians and researchers process the information that they have differently.
• There is a very real psychological toll of unresolved symptoms on the patients.
• The GUT has its own immune system and nervous system. (53:00)
• Neuroimmunology-The role of the immune system in neurologic and psychiatric symptoms.
• The gut interacts heavily with the brain.
• “I was initially interested in Lyme disease because the laboratory I was working in became interested in patients who were basically experiencing symptoms in response to vaccination from Lyme disease back in the 90’s.” LYMErix
• There is currently no vaccine for Lyme disease.
• The early research that I did indicated that there may be some cross-reactivity of the immune response to the vaccine, against the nervous system. That was early research that we did, that we didn’t continue with for lack of funding.
• What will treatment look like in the year 2040 for Lyme disease? Quick diagnosis, treatment, and resolution of symptoms. Better diagnostics and treatment for various symptoms.
• The microbiome is a huge factor in health and recovery. (a.k.a diet)
• Patients are trying everything because that is what they have to do.
• “60%-70% of chronic fatigue syndrome patients also have gastrin intestinal symptoms. Which is significantly higher than the general population.” (1:02)

Connect with my guest: Dr. Armin Alaedini

Columbia University Institute of Human Nutrition-

630 West 168 Street

PH1512E, New York, NY 10032

• 212-305-4808

https://www.ihn.cumc.columbia.edu/profile/ar...

During Lyme awareness month, we want to provide FREE adverting for Lyme related products or services. This offer will end on June 30th, 2020

Why?

Not only has our world been rocked by Covid-19. We are also experiencing an economic disaster that has never been seen in history. We want to support businesses that are Lyme literate and Lyme friendly.

Who Qualifies?

Basically any product, person, or service that can help people to heal. Products, counseling, clinics, practitioners, etc. (Sorry, no MLM’s) *This would apply to new advertisers only.

What We Need!

1. A source code (or some way of tracking referrals)

We broadcast on many platforms so a source code will be a great way to offer special discounts. (If discounts apply or are available)

*Many of our advertisers simply use the code: Lyme Voice

1. A written description of your company’s products or services.

Give us your elevator pitch! 60 words or less describing your business and what you offer. These will be featured on-air and on various social media platforms. Lyme Voice reaches about 7,000 potential customers or clients a month!!!

1. Working links and contact info! Give us all your info! Links, contact numbers, and social media info!

Please click on the link below to fill out our information form: CLICK HERE

This substance is found in mother’s milk only for those first few hours but, is so powerful! It supercharges the immune system, fires up metabolism, and boosts tissue regeneration and repair. It is a superfood advantage. Our Colostrum6 product allows you to have the colostrum advantage every day. It’s an all-natural, animal-friendly product that can be part of any optimal health plan.

Beth A. Ober has been a natural health enthusiast for the last 15 years after a long struggle with Chronic Lyme disease! She and her husband Dave have 5 children and 9 grandchildren! They have been self-employed for more than 31 years! Beth loves helping others to build their immune system and achieved a better quality of life as she did through the Anovité products!.

Key Takeaways:

• The symptoms started slowly, gut issues, inability to swallow, heart palpitations.
• “It felt like something was attacking my body. That is when we started chasing symptoms.”-Beth Ober
• Babesia, Bartonella, Lyme, and other co-infections were impacting joints.
• Tachycardia- Air hunger
• Lyme carditis is seen in 4% to 10% of all patients with Lyme borreliosis
• After 4 years of being on and off of antibiotics, she felt her system shutting down. Searching for a better quality of life lead Beth to Colostrum, which is designed to heal the gut.
• Colostrum can cross the blood-brain barrier. The fat is a carrier protein that makes it more bioavailable.
• Colostrum6 is a “cornerstone” whole food with over 700 constituents that naturally balance and regenerate the body. It contains the following: the IGF-1 superfamily for anti-aging and tissue support; over 95 immune factors for health and wellness; all of your essential amino acids, fatty acids, and glyconutrients; along with metabolic factors, vitamins, minerals, and enzymes.
• In nature, every newborn is given a special advantage to help it survive those first critical hours. Some newborns survive through camouflage, others through cunning... but for mammals, the advantage is a superfood known as Colostrum. This substance is found in mother’s milk only for those first few hours but, is so powerful! It supercharges the immune system, fires up metabolism, and boosts tissue regeneration and repair. It is a superfood advantage. U
• First Milk Diet Book by Dr. Anthony Kleinsmithr Colo
• True 6-hour colostrum that is validated by a 3rd party.

Connect With My Guest: Beth Ober

• 717-821-0951
• [email protected]
• Bethober.anovite.com
• For more on colostrum science
• For more information: healthylivingmagazine.us/Articles/15263/

**For free samples bethober.anovitenow.com

Links

• Kangen Water- http://www.lymewater.com/
• Envita Medical –Envita Medical
• Medical billing services MedicalBillGurus.com
• Lyme Voice Facebook
• The Lyme Voice Podcast- Lymevoice.com
• Lyme Documentary-Disappearing From Society, Life with chronic Lyme in 14 minutes...Documentary
• Little Bite, BIG TROUBLE, available on Amazon –Children’s book about Lyme disease
• Organic coffee! https://www.ovaldogs.com
• Tick Warriors “Insect Repellent” https://tickwarriors.com/
• Organic coffee! https://www.ovaldogs.com
• Sarah-[email protected]
• [email protected]