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LYME Voice - 108 Fighting For A Cure with Lauren Lovejoy of Lyme Warrior and Suzanne Burden

108 Fighting For A Cure with Lauren Lovejoy of Lyme Warrior and Suzanne Burden

08/31/20 • 48 min

LYME Voice
  • Bio-From Grad Student and workaholic to bed-bound Lyme patient, Lauren started Lyme Warrior four years ago when she learned the struggle of Lyme first hand and knew she had to help. Lauren holds a Masters in Analytics and has years of experience in promotion and the legal field. She is working to empower those with Lyme Disease and help others to join together to make a change while still fighting her personal battle with Lyme Disease. To date, Lyme Warrior has given over $70,000 to Lyme research, Lyme patients in need, and shipped over 300 Kid's Smile boxes to children suffering from Lyme Disease. Lauren lives in Virginia with her best friend and teammate Eric where they run an Airbnb and regenerative agriculture farm. Key Takeaways:
    • Loving someone with Lyme is complicated.
    • Seemingly overnight, Lauren began dealing with anxiety and panic attacks and became bed-bound while searching for answers. (10:00)
    • Self-advocacy is so important when you are being dismissed by practitioners. If you can learn anything from this episode, learn that you must be driving your own healthcare journey. (12:00)
  • “Yeah, after two years...I finally found a diagnosis.” followed by the crushing reality that recovering from Lyme is, in fact, awful, and it didn’t work.
  • I turned to the Lyme Facebook groups for answers on how to heal.
    • A crash landing can happen when you are close to healing.
    • Our 4th date consisted of moving across the country for treatment. Dating while going through the unknowns of being in treatment.
    • Tapping into your intuition...keep doing what is working.
  • Accepting care as a vulnerable patient can be very difficult. When you do find people who can help you heal, you must let them into your world.
    • Try and stay open to the possibilities around you, even when you are suffering.
  • “If you focus on the problems, you will miss the opportunities. If you focus on opportunities, you’ll see past your problems.”
    • Who we are, is different than who we will inevitably become.
  • 2 for 1 deal: Healing the Lyme often exposes other areas that need to be healed.(22:00)
    • “It’s ok to be scared as you face the unknown of battling chronic Lyme.”
  • Brene Brown says “Do it afraid.”
    • “Let go of being scared of becoming someone else.”-Lauren Lovejoy (32:00)
    • “I choose to let gratitude smack me in the face.”-Lauren Lovejoy
    • A big misconception is that your friends and families will see and understand what you are battling. But they often don’t understand. And you may need to put boundaries around the relationships that are draining or taking away energy from you.
  • Be open to new friends, they could be your next best resource.
  • If you need answers, the FB groups can be really helpful to talk to strangers who ‘get it.”
    • Lyme Warrior was born out of wanting to help people get access to treatments.
  • Areas of impact provided by the Lyme Warrior Organization
    1. Research
    2. Funding for patients
    3. Smile boxes that get mailed to kids battling Lyme
    • LymeWarrior.com Instagram @LymeWarriorUS
    Resources Mentioned: Herbalist-Please contact Lauren directly to get access to the herbalist who is helping to save her life! Instagram @LymeWarriorUS Connect with my guest: Contact Sarah- [email protected] Contact Suzanne- Sponsors:
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  • Bio-From Grad Student and workaholic to bed-bound Lyme patient, Lauren started Lyme Warrior four years ago when she learned the struggle of Lyme first hand and knew she had to help. Lauren holds a Masters in Analytics and has years of experience in promotion and the legal field. She is working to empower those with Lyme Disease and help others to join together to make a change while still fighting her personal battle with Lyme Disease. To date, Lyme Warrior has given over $70,000 to Lyme research, Lyme patients in need, and shipped over 300 Kid's Smile boxes to children suffering from Lyme Disease. Lauren lives in Virginia with her best friend and teammate Eric where they run an Airbnb and regenerative agriculture farm. Key Takeaways:
    • Loving someone with Lyme is complicated.
    • Seemingly overnight, Lauren began dealing with anxiety and panic attacks and became bed-bound while searching for answers. (10:00)
    • Self-advocacy is so important when you are being dismissed by practitioners. If you can learn anything from this episode, learn that you must be driving your own healthcare journey. (12:00)
  • “Yeah, after two years...I finally found a diagnosis.” followed by the crushing reality that recovering from Lyme is, in fact, awful, and it didn’t work.
  • I turned to the Lyme Facebook groups for answers on how to heal.
    • A crash landing can happen when you are close to healing.
    • Our 4th date consisted of moving across the country for treatment. Dating while going through the unknowns of being in treatment.
    • Tapping into your intuition...keep doing what is working.
  • Accepting care as a vulnerable patient can be very difficult. When you do find people who can help you heal, you must let them into your world.
    • Try and stay open to the possibilities around you, even when you are suffering.
  • “If you focus on the problems, you will miss the opportunities. If you focus on opportunities, you’ll see past your problems.”
    • Who we are, is different than who we will inevitably become.
  • 2 for 1 deal: Healing the Lyme often exposes other areas that need to be healed.(22:00)
    • “It’s ok to be scared as you face the unknown of battling chronic Lyme.”
  • Brene Brown says “Do it afraid.”
    • “Let go of being scared of becoming someone else.”-Lauren Lovejoy (32:00)
    • “I choose to let gratitude smack me in the face.”-Lauren Lovejoy
    • A big misconception is that your friends and families will see and understand what you are battling. But they often don’t understand. And you may need to put boundaries around the relationships that are draining or taking away energy from you.
  • Be open to new friends, they could be your next best resource.
  • If you need answers, the FB groups can be really helpful to talk to strangers who ‘get it.”
    • Lyme Warrior was born out of wanting to help people get access to treatments.
  • Areas of impact provided by the Lyme Warrior Organization
    1. Research
    2. Funding for patients
    3. Smile boxes that get mailed to kids battling Lyme
    • LymeWarrior.com Instagram @LymeWarriorUS
    Resources Mentioned: Herbalist-Please contact Lauren directly to get access to the herbalist who is helping to save her life! Instagram @LymeWarriorUS Connect with my guest: Contact Sarah- [email protected] Contact Suzanne- Sponsors:

Previous Episode

undefined - 107 Becoming A "Lyme Mom" with Tricia Soderstrom

107 Becoming A "Lyme Mom" with Tricia Soderstrom

Tricia Soderstrom is a wife and mom of four. Tricia and her husband Scott have been married for 30 years and live in Maryland. She is a career homeschool mom, a writer, speaker, virtual assistant and is the creator of Abounding in Hope with Lyme. She and her family suffered from chronic Lyme disease for over ten years. Tricia is passionate about health, nutrition, gardening, and helping women walk with Jesus through the uncertainty and difficulty of living with Lyme!

Key Takeaways:

  • After being bedridden for 2 years, Tricia finally got a diagnosis of Lyme disease. Explaining the deep fatigue, loss of memory, loss of cognitive function, and pain.
  • After getting diagnosed, Tricia began to see that one of her children was also showing symptoms.
  • Over the next few years, each person in the house was diagnosed with Lyme.
  • Some of the crazy symptoms included: finger tapping, facial ticks, OCD, anxiety, panic attacks, rage, PANS, oppositional defiance disorder. She rocked our world.
  • It took 3 years to get the Lyme doctor to also test for Babesia.
  • The medicines we were on, weren’t helping our household heal. So we turned to homeopathy.
  • How much strength did it take for you to continually insist that something was wrong, and that your pain and fatigue wasn’t stemming from poor lifestyle choices?
  • I had to do an immense amount of research, with brain fog when we weren’t getting better.
  • Am I crazy? Doctors thought I was trying to get attention for myself and my kids.
  • “I prided myself on taking really good care of my family, eating whole foods, exercising...and it was heartbreaking dealing with doctors who thought I was a Munchhousen-Mom.” Tricia
  • I talk to so many moms who are juggling the chaos of trying to keep their kids healthy enough and up on their feet.
  • “Having a daughter with PANS rocked our world. For so long we weren’t sure what was going on. But she kinda ruled our world for a while. ” Tricia
  • The OCD battle was me trying to help her, and her fighting me.
  • “I try not to think about those times because I don’t like to go back there.” Tricia
  • “Someone was always complaining about something else that is hurting.” Tricia
  • “It was so immense, all I ever did was try and negate the chaos that was coming from one kid.”-Sarah
  • Explaining to the other kids in the house that this wasn’t normal behavior, this wasn’t acceptable behavior, was an all-consuming task.
  • Rage, OCD and constant fighting
  • We had to continually tell our daughter how much we loved her.
  • Tag-team parenting: A MUST (we are on the same team and we must continually try and not turn on each other)
  • Medical PTSD impacts us more than you want to believe.
  • What does it mean to be a Lyme-Mom?
  • Homeopathy, diet, and nutrition are super big in the recovery game.
  • Treating Lyme on a budget (if that’s even possible)
  • “Your whole world is not what you wanted it to be.”-Tricia

Resources Mentioned:

Contact Sarah-[email protected]

Contact Tricia:

Sponsors:

Next Episode

undefined - 109 The Amazing Benefits of Ketamine IV Therapy

109 The Amazing Benefits of Ketamine IV Therapy

Treating patients with Ketamine for 5 years now, almost 2 years at his own clinic, Jonathan Evertsen and the staff of Urbane Medical, are dedicated to serving the Lyme community and have seen some of the most amazing stories of healing, fortitude, love, and strength and have seen some miraculous improvements from IV Ketamine Therapy.

Key Takeaways:

  • Ketamine promotes a sense of mental well-being!
  • Ketamine treatments are helping those who suffer from chronic symptoms.
  • Helps to alleviate chronic regional pain.

~It can restore a sense of vigor

~Increases neuro elasticity.

~Less anxiety

~Less depression

~Less OCD

~Less PTSD

~Increases concentration

~Renewed sense of self

~Can help people with mobility and gait.

~Reduces brain fog

~Migraine relief

  • After my first Ketamine treatment...“I’m not drunk, and I’m not high, but I’m not sober.”Sarah
  • Reestablishes interrupted nerve connections that are necessary to recover from traumatic memories.
  • “We have to stop the suffering”-Sarah
  • “Lyme hasn’t had the attention it deserves”-Jonathan Evertsen
  • “The lunacy that you have to go through to find adequate care with this illness. The amount of courage you have to have to continue to self-advocate. The amount of resources (time, energy, money) that you have to be willing to commit to your healing journey, is off the charts.”-Sarah
  • Fantastic definition of traditional western medicine... If a pill doesn’t solve the problem, I’ve got nothing.”
  • One of the best gifts you can give someone EVER, in their entire lives, is to eliminate their pain.”-Sarah
  • The most important thing about a practitioner at this point in my journey is how I “feel”, if they “hear me” and if they believe me.
  • “The relationships that we have with our patients in extremely moving and we want to be reachable”-Jonathan

Resources Mentioned:

  • Yale Medicine Article

https://www.yalemedicine.org/stories/ketamine-the-new-miracle-drug/

Connect with my guest:

Jonathan Evertsen 480-327-7160

833-887-2263 Jonathan@UrbaneMedical

Contact Sarah-[email protected]

Sponsors:

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