043 Parenting A Teen With Chronic Fatigue

09/18/17 • 70 min

Dr. Shelly Gruenig talks about her most important role as a mom. And how as a family they have supported their teenager with chronic fatigue and fibromyalgia. -What kind of physician are you seeing, can they diagnose and treat? If you want to get better, you have to see physicians who can walk you down that path towards wellness -One of the things that I hear from parents who are trying to help their teens is that it looks like depression. Talking Points:

Knowing when to advocating for them. But also empowering them to become independent.
Addiction vs. Dependency-Helping teens deal with chronic pain.
Becoming a coach and encouraging them.
Teens have to decide for themselves what they are willing to implement.

Quotes:

"I felt like I was sitting on her coattails, trying to hold her back”-Dr. Shelly Gruenig
"I thought I was going crazy, I never knew this was because of my chronic illness.”-Makenzie Gruenig
“Chronic pain takes a part of your soul.”-Aaron Sanchez
"I could see more clearly through the lens of cannabis than I could through the fog of chronic pain.”-Sarah Schlichte Sanchez

Tips:

Keep records of how they feel. They may not be able to see the progress or the cycles that you can see from an outside perspective.
Vet the Physicians before you drag a teen to a new physician.

Sponsored by Envita Medical:https://www.envita.com/?utm_source=lymevoice&utm_medium=cpc&utm_campaign=lymevoice-cpc-blog&utm_content=blog Additional Resources: SHINE Protocol: Dr. T Shine https://secure.endfatigue.com/ Lemony Media: http://lemonymedia.com/photos/ Additional Podcasts:

If you want to know more about medical cannabis-this is a great episode!

.http://lymevoice.com/027-medical-cannabis-and-lyme-disease-shelly-m-white/ Do Hard Things: A Teenage Rebellion Against Low Expectations https://www.amazon.com/Do-Hard-Things-Rebellion-Expectations/dp/B001FVJGXA/ref=sr_1_1?ie=UTF8&qid=1499126791&sr=8-1&keywords=do+hard+things

Knowing when to advocating for them. But also empowering them to become independent.
Addiction vs. Dependency-Helping teens deal with chronic pain.
Becoming a coach and encouraging them.
Teens have to decide for themselves what they are willing to implement.

Quotes:

"I felt like I was sitting on her coattails, trying to hold her back”-Dr. Shelly Gruenig
"I thought I was going crazy, I never knew this was because of my chronic illness.”-Makenzie Gruenig
“Chronic pain takes a part of your soul.”-Aaron Sanchez
"I could see more clearly through the lens of cannabis than I could through the fog of chronic pain.”-Sarah Schlichte Sanchez

Tips:

Keep records of how they feel. They may not be able to see the progress or the cycles that you can see from an outside perspective.
Vet the Physicians before you drag a teen to a new physician.

If you want to know more about medical cannabis-this is a great episode!

Previous Episode

042 Juggling Family And Chronic Lyme

Aaron Sanchez and Adam Getty talk through the logistics and complexities of family and finances when you are battling Lyme disease and more specifically, chronic Lyme. And what they would have done differently...

When do you need to act on behalf of your spouse?
In order to become a caregiver-you end up dropping something else, homes, jobs, etc.
What I would have done differently.
Acknowledging that things are not getting better, and start learning new skills: laundry, grocery shopping, meal planning, family finance.
You can’t “work” your way out of Lyme and raising kids.
The healthy spouse is often very disconnected from everyone.
Balancing all the responsibilities.
Neither of you are thinking clearly. (Lose-lose decisions)
You are juggling all these plates-you are balancing and surviving, barely, if you pick up one more thing, something gets dropped, sometimes it is fear based (more worry), sometimes you have to short sale your house, so that plate breaks.

The Longevity of Lyme requires transformation:

Reinvent yourself
Give up hobbies
Communicating through the symptoms
Recognizing that this is serious
Financial, physical and emotional crises
G5t-
How beliefs affect your journey
Getting a long term perspective.
evaluating your own mental health
(compassion fatigue)
Boundaries by Dr. Henry Cloud-Hanging out with positive people, blocking people who are negative.
Developing a narrow focus to survive
Adam and Heather Getty.com

Lyme Voice is sponsored by: Envita Medical

https://www.envita.com/?utm_source=lymevoice&utm_medium=cpc&utm_campaign=lymevoice-cpc-blog&utm_content=blog

Next Episode

045 Recovering From Grief And PTSD from Chronic Lyme Disease

Talking Points:

Managing the anxiety that comes from PTSD.
Changing and growing on the emotional side of things.
Understanding that everything (tasks, conversations, events) is much harder than it once was.
Shifting my verbiage from negative self-talk into positive self-talk and carrying it with me throughout the day.
Flooding-Be aware of how it affects you.
Game changer-Celebrating small wins, or what might seem like an insignificant win.
It takes constant energy and effort to give yourself grace as you heal.

Stephanie Richards talks about the grief and loss associated with long-term traumas. The deep sense of loss, loss of self and how to move forward emotionally.

Quotes:

"I needed some guidance to change my perspective and help me grow on the emotional side.”
"Don’t quit trying to heal"
"We felt a sadness deeper than any sadness we’ve ever felt."
"I couldn’t explain the depth of sadness that I felt. And it seemed like I carried it with me for years."

Sponsored by Envita Medical -"The clinic that saved my life"-Sarah

https://www.envita.com/?utm_source=lymevoice&utm_medium=cpc&utm_campaign=lymevoice-cpc-blog&utm_content=blog