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The Rare Life - Holiday Mini 5: The New Year for Disability Parents

Holiday Mini 5: The New Year for Disability Parents

01/02/25 • 9 min

1 Listener

The Rare Life

For disability parents, the New Year doesn’t always mean lofty resolutions or big changes. It might mean survival mode, holding boundaries, or simply getting through the day.

In this episode, I’m sharing your thoughts on New Year’s resolutions—why they’re hard, how they shift, and what really matters when life is unpredictable. From survival mode to tentative hope, this is a conversation about giving yourself grace.

If the traditional “new year, new me” doesn’t fit your life, this one’s for you.

Links:

Join The Rare Life newsletter and never miss an update!

Listen to Ep 108 on navigating the holidays with Amanda Griffith Atkins.

Listen to Ep 109 on isolating at home during the holidays with Amanda Griffith Atkins.

Listen to Ep 110 on being inpatient during the holidays with Amanda Griffith Atkins.

Fill out our contact form to join upcoming discussion groups!

Follow Kara on Instagram @hear_me_rare!

Follow us on Instagram @the_rare_life!

Donate to the podcast or Contact me about sponsoring an episode.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

And if you love this podcast, please leave us a rating or review in your favorite podcast app!

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For disability parents, the New Year doesn’t always mean lofty resolutions or big changes. It might mean survival mode, holding boundaries, or simply getting through the day.

In this episode, I’m sharing your thoughts on New Year’s resolutions—why they’re hard, how they shift, and what really matters when life is unpredictable. From survival mode to tentative hope, this is a conversation about giving yourself grace.

If the traditional “new year, new me” doesn’t fit your life, this one’s for you.

Links:

Join The Rare Life newsletter and never miss an update!

Listen to Ep 108 on navigating the holidays with Amanda Griffith Atkins.

Listen to Ep 109 on isolating at home during the holidays with Amanda Griffith Atkins.

Listen to Ep 110 on being inpatient during the holidays with Amanda Griffith Atkins.

Fill out our contact form to join upcoming discussion groups!

Follow Kara on Instagram @hear_me_rare!

Follow us on Instagram @the_rare_life!

Donate to the podcast or Contact me about sponsoring an episode.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

And if you love this podcast, please leave us a rating or review in your favorite podcast app!

Previous Episode

undefined - Holiday Mini 4: 2024 for Medical Parents | Highs and Lows

Holiday Mini 4: 2024 for Medical Parents | Highs and Lows

What if the hardest part of your year was also the one that shaped you the most?

In this special mini-episode, I read submissions from the community that capture the resilience, heartache, and triumphs we’ve all experienced this year (including a few entries that count as both highs AND lows.)

From the heartbreaking realities of denied services and exhausting diagnoses to the incredible wins of first smiles and newfound independence, it’s a powerful reminder that no matter how hard it gets, we’re never alone.

Tune in for a dose of solidarity, and let’s close out 2024 together.

Links:

Join The Rare Life newsletter and never miss an update!

Listen to Ep 108 on navigating the holidays with Amanda Griffith-Atkins.

Listen to Ep 109 on isolating at home during the holidays with Amanda Griffith Atkins.

Listen to Ep 110 on being inpatient during the holidays with Amanda Griffith Atkins.

Fill out our contact form to join upcoming discussion groups!

Follow Kara on Instagram @hear_me_rare!

Follow us on Instagram @the_rare_life!

Donate to the podcast or Contact me about sponsoring an episode.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

And if you love this podcast, please leave us a rating or review in your favorite podcast app!

Next Episode

undefined - Holiday Mini 6: Find Your Community in TRL Discussion Groups

Holiday Mini 6: Find Your Community in TRL Discussion Groups

Building connections can feel impossible when life is already overwhelming. That’s where The Rare Life discussion groups come in.

In this episode, I’m pulling back the curtain on our discussion groups—virtual gatherings that feel more like a book club than anything else.

You’ll hear from three amazing facilitators about the friendships, resources, and support they’ve found through this space.

If you’ve been searching for a place where you can connect with other disability parents who just get it, this is your invitation.

Links:

Join The Rare Life newsletter and never miss an update!

Listen to Ep 108 on navigating the holidays with Amanda Griffith Atkins.

Listen to Ep 109 on isolating at home during the holidays with Amanda Griffith Atkins.

Listen to Ep 110 on being inpatient during the holidays with Amanda Griffith Atkins.

Fill out our contact form to join upcoming discussion groups!

Follow Kara on Instagram @hear_me_rare!

Follow us on Instagram @the_rare_life!

Donate to the podcast or Contact me about sponsoring an episode.

Follow the Facebook page.

Join the Facebook group Parents of Children with Rare Conditions.

Access the transcript on the website here.

And if you love this podcast, please leave us a rating or review in your favorite podcast app!

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