S4E66: Ehlers-Danlos Syndrome
01/10/25 • 34 min
This week's episode is all about Ehlers-Danlos Syndrome! If you have read Fourth Wing, this is what Violet has, and it also happens to be what I and my children have!
We are joined today by Dr. Kaydee Zimmern, a physical therapist specializing in pelvic floor health and Ehlers-Danlos Syndrome. I bet you didn't know those two things were so closely related!
This is a great time to have Ehlers-Danlos Syndrome as there are now so many resources available that we didn't have before. And we are continuing to learn more every day!
Ehlers-Danlos Syndrome is not a hopeless diagnosis. It can be difficult, but we have options to empower us to live our best life whatever that may look like. But it all starts with advocacy because YOU are worth fighting for!
Check out the Show Notes for links for more information about Ehlers-Danlos Syndrome, Dr. Kaydee Zimmern, and her work at Gulf Coast Pelvic Health!
Show Notes: https://amybodkin.com/podcast-episode-66
For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website:
Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!
This week's episode is all about Ehlers-Danlos Syndrome! If you have read Fourth Wing, this is what Violet has, and it also happens to be what I and my children have!
We are joined today by Dr. Kaydee Zimmern, a physical therapist specializing in pelvic floor health and Ehlers-Danlos Syndrome. I bet you didn't know those two things were so closely related!
This is a great time to have Ehlers-Danlos Syndrome as there are now so many resources available that we didn't have before. And we are continuing to learn more every day!
Ehlers-Danlos Syndrome is not a hopeless diagnosis. It can be difficult, but we have options to empower us to live our best life whatever that may look like. But it all starts with advocacy because YOU are worth fighting for!
Check out the Show Notes for links for more information about Ehlers-Danlos Syndrome, Dr. Kaydee Zimmern, and her work at Gulf Coast Pelvic Health!
Show Notes: https://amybodkin.com/podcast-episode-66
For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website:
Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!
Previous Episode
S4E65: Freedom Pancakes for Ukraine
In this special episode, Freedom Pancakes for Ukraine, we are breaking from our focus on Neurodivergent Healthcare in honor of the holidays!
I am joined by Dr. Janice Cohn, author of The Christmas Menorahs, and Paolo Volpati-Kedra, who features prominently in Freedome Pancakes for Ukraine!
At the end of the episode, I recommend that you make a tradition in your home of reading a new story about someone who was an upstander every year during the holidays!
It is a great time when we are already more focused on shining light into dark places! And it is a great way to help children see that they are capable of creating change in the world!
Such an empowering message that can help kids grow in their self-confidence and nurture the growth of more upstanders in the future!
Check out the Show Notes for links to more information about Freedom Pancakes for Ukraine, The Christmas Menorahs, Dr. Janice Cohn, Paola Volpati-Kedra, and more resources about being an upstander!
Show Notes: https://amybodkin.com/podcast-episode-65
For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website:
Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!
Next Episode
S4E67: Dysautonomia, POTS, and PANS... Oh My!
In this week's episode, we talk with Dr. Andrew Maxwell all about Dysautonomia, Postural Orthostatic Tachycardia Syndrome (POTS), and even Pediatric Acute-onset Neuropsychiatric Syndrome (PANS)!
Dr. Maxwell is a Board Certified Pediatric Cardiologist and Pediatrician who takes a particular interest in Ehlers-Danlos Syndrome, Dysautonomia, POTS, Mast Cell Activation Syndrome, and all the many other comorbidities so commonly seen in his "Pentad Super-Syndrome."
Dr. Maxwell also wrote the chapter on Dysautonomia in the book Disjointed Navigating the Diagnosis and Management of Hypermobile Ehlers-Danlos Syndrome and Hypermobility Spectrum Disorders.
Check out the Show Notes for links for more information about Dr. Maxwell and his Pentad Super-Syndrome!
Show Notes: https://amybodkin.com/podcast-episode-67
For more info about Amy Bodkin, a Special Needs Consultant for parents and professionals, visit our website:
Amy Bodkin Consulting – Seeing the Possibilities through a Neurodivergent Lens because Special Needs Kids Are People Too!
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