
Adventurers Talk Epilepsy
06/11/19 • 21 min
We’ve heard from people with epilepsy how they seize adventure. Now it’s time to put some adventurers on the spot. I talk to three people who work within the adventure field to find out what they know about epilepsy, what they don’t, and how we can get more people with epilepsy in adventure.
We mention:
-These three adventure professionals’ first aid and epilepsy experience
-How they handle risk assessments
-The different types of seizure
-Basic epilepsy first aid
-How to encourage people with epilepsy to take part in adventure
-What adventure means to them
-Where to go to learn more about epilepsy
THE ADVENTURERS:
Jago Hartland (Outdoor Pursuits Guide)
David Willis (Bushcraft Instructor)
Nicki Bass (Resilience Consultant)
LEARN ABOUT EPILEPSY:
https://seizeyouradventure.com/learn-about-epilepsy/
This podcast is an independent production - costs of the show are covered by me (Fran) with the support of patrons. If you want to help support the show financially, head to patreon.com/seizeyouradventure. This will help me to continue telling stories of epilepsy in adventure.
Or, support the show for free by sharing it on socials! Find us on Instagram @seizeyouradventurepod.
Seize Your Adventure is part of the Tremula Network - adventure and outdoor podcasts off the beaten track. To find out more, head to tremula.network
Get full access to Seize Your Adventure at seizeyouradventure.substack.com/subscribe
We’ve heard from people with epilepsy how they seize adventure. Now it’s time to put some adventurers on the spot. I talk to three people who work within the adventure field to find out what they know about epilepsy, what they don’t, and how we can get more people with epilepsy in adventure.
We mention:
-These three adventure professionals’ first aid and epilepsy experience
-How they handle risk assessments
-The different types of seizure
-Basic epilepsy first aid
-How to encourage people with epilepsy to take part in adventure
-What adventure means to them
-Where to go to learn more about epilepsy
THE ADVENTURERS:
Jago Hartland (Outdoor Pursuits Guide)
David Willis (Bushcraft Instructor)
Nicki Bass (Resilience Consultant)
LEARN ABOUT EPILEPSY:
https://seizeyouradventure.com/learn-about-epilepsy/
This podcast is an independent production - costs of the show are covered by me (Fran) with the support of patrons. If you want to help support the show financially, head to patreon.com/seizeyouradventure. This will help me to continue telling stories of epilepsy in adventure.
Or, support the show for free by sharing it on socials! Find us on Instagram @seizeyouradventurepod.
Seize Your Adventure is part of the Tremula Network - adventure and outdoor podcasts off the beaten track. To find out more, head to tremula.network
Get full access to Seize Your Adventure at seizeyouradventure.substack.com/subscribe
Previous Episode

A Chat with Jake Quigley: Brain Surgery, Hiking the Himalayas and the Fundamentals of Mountain Biking
Jake Quigley is the executive director of the non profit Outdoor Mindset. The organisation’s mission is to unite and inspire people affected by neurological challenges through a common passion of the outdoors. It is a free membership-based community. When he is not working, Jake can be found adventuring outdoors with his wife, Jeanie, by foot, bike, or ski.
If you haven’t listen to Jake’s story, be sure to head back to Part One so that you make the most of our conversation!
We talked about:
His epilepsy diagnosis at 11 years old
How adventure can increase confidence, positivity and the ability to deal with challenge
The path to brain surgery
How to dispel the fear and stigma around epilepsy
What is telemark skiing?
How altitude might affect epilepsy
What he could teach me in mountain biking!
Getting support from Diane Van Deren
What you CAN control when you are diagnosed
How exercise can help your brain
The influence of the outdoors on depression and anxiety
The changes in attitude towards epilepsy
His next big adventure
Terminology:
Grand mal: a generalised seizure where a person loses consciousness and convulses. Also known as a tonic-clonic (more modern term).
Aura: a change in brain activity that causes some strange sensations. Often a warning of a seizure.
More about Outdoor Mindset:
https://www.outdoormindset.org/
Follow Outdoor Mindset:
Facebook: https://www.facebook.com/OutdoorMindset/
Instagram: https://www.instagram.com/outdoormindset/
Twitter: https://twitter.com/OutdoorMindset
Music:
Lonely Lake by Kev Rowe | License: Creative Commons
SUPPORT THE PODCAST:
Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.
TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts
Follow Seize Your Adventure:
Facebook: https://www.facebook.com/SYAdventurers/
Twitter: https://twitter.com/syadventurers
Instagram: https://www.instagram.com/syadve
This podcast is an independent production - costs of the show are covered by me (Fran) with the support of patrons. If you want to help support the show financially, head to patreon.com/seizeyouradventure. This will help me to continue telling stories of epilepsy in adventure.
Or, support the show for free by sharing it on socials! Find us on Instagram @seizeyouradventurepod.
Seize Your Adventure is part of the Tremula Network - adventure and outdoor podcasts off the beaten track. To find out more, head to tremula.network
Get full access to Seize Your Adventure at seizeyouradventure.substack.com/subscribe
Next Episode

Challenge One : Ice Climbing with Vertical Chill
Today’s story is a small epic of a tale. It starts on the other side of the world, it includes some dramatic moments, some aspirations achieved. I also had to download a beep sound to censor some swear words in this episode - and you’ll soon understand why. This is the story of my first #30at30forEpilepsy challenge. This is my ice climbing adventure. Why Ice Climbing? Well one reason is that I am trying out some of the sports that contributors to Seize Your Adventure already do. Some of you out there will be familiar with a gentleman called Alex Staniforth. Alex was plagued by adversity and epilepsy as a child, and has gone on to do some extraordinary things, including attempting to climb Everest on two occasions. The first time he tried was when he was eighteen, which is quite incredible. So ice climbing is partly inspired by Alex. I figured, this might be one of the harder challenges to arrange. I live near London, a place that’s not really known for its glaciers or icy mountains. I thought I’d have to jet off to another country, brave the cold on the remote side of a mountain, and contend with all the extra risks there might be from having epilepsy in that environment. But I did some research and I learned that there are actually a few indoor icewalls in the UK and the team at Ellis Brigham Mountain Sports invited me along to an session at their indoor wall, called Vertical Chill. So suddenly, from being one of the harder challenges to arrange it became the easiest. I was so excited I made it the 1st challenge and spent some time on MY ACTUAL 30th BIRTHDAY climbing a wall of ice, in the middle of London which is just... so cool. (I’m sorry for the pun.)
TRY ICE CLIMBING:
You can experience the thrill of real ice climbing in the city at the Vertical Chill Ice walls London and Manchester (located within Ellis Brigham Mountain Sports) Vertical-chill.com
MUSIC:
Cinematic Trailer - Epic Emotional Background Music / Action Orchestral Music by AShamaluevMusic | License: Creative Commons
SUPPORT THE PODCAST:
Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.
TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts
FOLLOW SEIZE YOUR ADVENTURE:
Facebook: https://www.facebook.com/SYAdventurers/
Twitter: https://twitter.com/syadventurers
Instagram: https://www.instagram.com/syadventurers/
And tag when you listen, share, subscribe!
Get bonus content on PatreonSee acast.com/privacy fo
This podcast is an independent production - costs of the show are covered by me (Fran) with the support of patrons. If you want to help support the show financially, head to patreon.com/seizeyouradventure. This will help me to continue telling stories of epilepsy in adventure.
Or, support the show for free by sharing it on socials! Find us on Instagram @seizeyouradventurepod.
Seize Your Adventure is part of the Tremula Network - adventure and outdoor podcasts off the beaten track. To find out more, head to tremula.network
Get full access to Seize Your Adventure at seizeyouradventure.substack.com/subscribe
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