“Beyond the data to patients’ lived experience”

10/11/24 • 39 min

Host, Victoria Summers, welcomes colleagues Fiona Taylor and Albert Whangbo to discuss the need to go beyond the data to understand the lived experience of people living with diseases. They explore the impact of the social determinants of health on experience and outcomes as well as various quantitative and qualitative methods for gathering a full picture of the lived experience. This conversation is based on chapter 5, “Understanding People, Not Patients.”

Featuring: Fiona Taylor, principal at ZS and leader of ZS’s global qualitative expertise center, and Albert Whangbo, principal at ZS and leader of ZS’s real world data and insights team.

Produced by Samantha Keyes and Georgianna Moreland

Featuring: Fiona Taylor, principal at ZS and leader of ZS’s global qualitative expertise center, and Albert Whangbo, principal at ZS and leader of ZS’s real world data and insights team.

Produced by Samantha Keyes and Georgianna Moreland

Previous Episode

“Big pharma… victims of their own success?” (Part 2 of 2)

In the first episode about patient-centricity transformation, Torsten outlined how to shift the hearts, minds and hands of people in the organization. This episode continues the conversation and focuses on shaping the organizational structure and operating model to support patient centricity. Specifically, the need to break with traditional, and often successful, ways of operating, as well as the approaches and models organizations can adopt. This conversation is based on chapter 10, “Transforming to a Patient-Centric Organization.”

Featuring: Torsten Bernewitz, principal emeritus at ZS. Torsten created and led ZS’s global change management expertise center.

Produced by Samantha Keyes and Georgianna Moreland

Next Episode

“The long, arduous healthcare journey”

Host, Victoria Summers, welcomes colleagues Fiona Taylor and Michael Thomas to unpack the experience of people living and managing their diseases, what obstacles they face, and the realities of navigating a complex healthcare system. For many people, especially those facing complex and challenging conditions, including rare diseases, the healthcare journey is more aptly described as an odyssey. This conversation is based on chapter 1, “The Healthcare Journey,” and explores these efforts in more detail.

Featuring: Fiona Taylor, principal at ZS and leader of ZS’s global qualitative expertise center, and Michael Thomas, principal at ZS and leader of ZS’s global rare disease practice.

Produced by Samantha Keyes and Georgianna Moreland