
Living Lupus Together with Rekha
02/17/23 • 39 min
Listen to this episode as I sit down to chat with Rekha about her journey with Lupus.
Lupus is a disease that occurs when your body's immune system attacks your own tissues and organs (autoimmune disease). Inflammation caused by Lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart, and lungs.
Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of Lupus — a facial rash resembling a butterfly's wings unfolding across both cheeks — occurs in many but not all cases of Lupus.
Some people are born with a tendency toward developing Lupus, which may be triggered by infections, certain drugs, or even sunlight. While there's no cure for Lupus, treatments can help control symptoms.
Rekha Sreedhara is a chronic illness warrior and advocate. She was diagnosed with systemic lupus erythematosus in 2001. Since then, she has been diagnosed with cutaneous lupus erythematosus and lupus nephritis as well as two rare diseases, pulmonary arterial hypertension, and thrombotic thrombocytopenic purpura.
Rekha works as a public health consultant specializing in substance use disorders. She resides in Massachusetts with her husband and three cats. In her spare time, Rekha loves to binge-watch shows; if you need a recommendation, she's your girl. She also enjoys traveling and has visited more than ten countries. Thriving one day at a time since 2001
Sharing experiences, strategies, hope, and laughter
Lupus | PAH | TTP
IG:https://www.instagram.com/livinglupustogether/
Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.
Let's Get Started - Rare Patient Voice
🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Discount Codes:
GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off
Listen to this episode as I sit down to chat with Rekha about her journey with Lupus.
Lupus is a disease that occurs when your body's immune system attacks your own tissues and organs (autoimmune disease). Inflammation caused by Lupus can affect many different body systems — including your joints, skin, kidneys, blood cells, brain, heart, and lungs.
Lupus can be difficult to diagnose because its signs and symptoms often mimic those of other ailments. The most distinctive sign of Lupus — a facial rash resembling a butterfly's wings unfolding across both cheeks — occurs in many but not all cases of Lupus.
Some people are born with a tendency toward developing Lupus, which may be triggered by infections, certain drugs, or even sunlight. While there's no cure for Lupus, treatments can help control symptoms.
Rekha Sreedhara is a chronic illness warrior and advocate. She was diagnosed with systemic lupus erythematosus in 2001. Since then, she has been diagnosed with cutaneous lupus erythematosus and lupus nephritis as well as two rare diseases, pulmonary arterial hypertension, and thrombotic thrombocytopenic purpura.
Rekha works as a public health consultant specializing in substance use disorders. She resides in Massachusetts with her husband and three cats. In her spare time, Rekha loves to binge-watch shows; if you need a recommendation, she's your girl. She also enjoys traveling and has visited more than ten countries. Thriving one day at a time since 2001
Sharing experiences, strategies, hope, and laughter
Lupus | PAH | TTP
IG:https://www.instagram.com/livinglupustogether/
Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.
Let's Get Started - Rare Patient Voice
🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Discount Codes:
GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off
Previous Episode

Anxiety Meets Amy & Jen
Reintroducing Amy, mental health advocate, fitness enthusiast, stillirun ambassador, and spoonie sister! Did you miss last year's episode? If so, scroll back and catch season one, episode 3, to catch up on Amy's story!
On today's episode, listen as Amy & Jen discuss life with anxiety, the good, the bad, and the ugly.
IG: https://www.instagram.com/alignedamy/
Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.
Let's Get Started - Rare Patient Voice
🎙 Living with a rare disease or chronic illness can feel isolating—but you are not alone. Find Your Rare is more than just a brand—it’s a movement. From empowering apparel to real, raw conversations, they’re here to remind you that your story matters. Because being RARE its your superpower. Explore, join & wear your rare with pride at FindYourRare.com
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Discount Codes:
GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off
Next Episode

From Myositis to Mindfulness with Angelic
Angelic is a holistic health practitioner, mindfulness coach, author, and spoonie sister from San Diego, California. She also volunteers with the Myositis Support & Understanding organization, where she leads mindfulness conversations and advocates for myositis awareness. She loves traveling with her husband, reading and writing inspirational stories, cuddling with dogs, and eating nachos!
Social Links:
website: www.mindfuljourneytofreedom.com
IG: @mindfuljourneys
LinkedIn: www.linkedin.com/in/angelicingram
Linktree: linktr.ee/angelicingram
Are you living with a chronic illness and want to make your voice heard? Rare Patient Voice connects patients and caregivers with research opportunities—so you can share your experiences and get paid for your time! Your insights help drive real change in healthcare.
Let's Get Started - Rare Patient Voice
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Discount Codes:
GIANT Microbes | Gag Gifts, Teacher Gifts, Doctor Gifts, Gifts for Girlfriends and Boyfriends code SPOONIE20 for 20% off
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