My Spoonie Sisters
Gracefully Jen
Welcome to My Spoonie Sisters! If you're wondering what a "Spoonie" is, it’s a term lovingly embraced by those living with chronic illnesses, based on the Spoon Theory. It’s all about managing our limited energy (or “spoons”) while navigating life’s challenges.
Each week, join us to hear from your "Spoonie Sisters" host, co-hosts, and our inspiring special guests as we share real-life stories, tips, and encouragement. Whether you're here to learn, connect, or feel less alone, you’ll find a supportive space filled with understanding, laughter, and strength. Let’s journey through chronic illness together!
Tune in and join the sisterhood!
All guests featured or mentioned in this podcast will be listed for your convenience. Don't forget to rate and subscribe to My Spoonie Sisters and follow @MySpoonieSisters on Instagram for updates on new episodes and more. If you have a story to share or want to be featured on My Spoonie Sisters, please email [email protected]. We eagerly look forward to speaking and hearing from all our Spoonies!
Disclaimer: While we are not doctors or healthcare Practitioners, we want to assure you that this podcast is a credible source of information. It's based on our guests' personal experiences and the strategies we've found effective for ourselves. However, everyone's body is unique, and what works for one person may not work for another. If you have any health-related questions, it's always best to consult your Primary Doctor or Rheumatologist.
Remember, our goal at My Spoonie Sisters is to connect people and provide them with the support and tools they need to live better lives.
All episodes
Best episodes
Seasons
Top 10 My Spoonie Sisters Episodes
Goodpods has curated a list of the 10 best My Spoonie Sisters episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to My Spoonie Sisters for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite My Spoonie Sisters episode by adding your comments to the episode page.
Robin Robertson: A Journey to Healthy Knees
My Spoonie Sisters
12/11/23 • 42 min
How does one maintain an active lifestyle while battling osteoarthritis? Robin Robertson, a seasoned advocate for the Arthritis Foundation, shares her inspiring journey from a rare knee condition at birth, numerous surgeries, and an ultimate halt to all impact sports at 24 to leading a vibrant life despite her limitations. It's not simply a tale of resilience and courage but an exploration of alternative forms of exercise that can help maintain a healthy lifestyle while dealing with osteoarthritis.
As a coach and author of the 'Healthy Knees book series, Robin walks us through the nuts and bolts of osteoarthritis care in knees, hips, and feet, extolling the virtues of strength training and cycling. It's a fascinating look into her journey to become a 'Healthy Knees' coach, driven by her own experience with knee issues. Robin's mantra, "rest is rust" serves as a powerful reminder of the importance of movement and proper exercise for joint health.
Hear the story of the fear, the despair, and the monumental shift in lifestyle after a diagnosis of osteoarthritis. But also hear the hope, the resilience, and the adaptability that leads to strength training and a cycling adventure across America. Discover how we’ve refused to let arthritis limit our lives and find inspiration in the pursuit of a path that's right for you. Dive into our conversation about knee health, managing knee pain, and the upcoming Jingle Bell Run. Tune in, listen, learn, and be inspired by the relentless pursuit of life despite the challenges.
Healthy Knees Books: https://www.healthykneescoach.com/Shop
Healthy Knees for You (YouTube): https://www.youtube.com/@healthykneesforyou
Healthy Knees Coach: https://healthykneescoach.com/
Ride Across America Coast to Coast (Travel Journal): https://www.healthykneescoach.com/C2CList
Healthy Knees News email signup (and get the “Save Your Knees” Cheatsheet!): https://www.healthykneescoach.com/save-your-knees-cheatsheet
Bellingham Training & Tennis Club (information about the Healthy Knees Strength & Cycle program): www.bttc.fit
Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Resilient AF a Chronicle of Courage with Delicia
My Spoonie Sisters
04/22/24 • 49 min
Struggle and healing often go hand in hand, as Delicia's gripping tale of resilience unfolds in our latest conversation. Facing a health odyssey that begins with severe allergies and the emotional scars of childhood trauma, she takes us through her diagnosis and the powerful connection between emotional distress and physical health. Her story is a beacon of hope for anyone facing similar battles as she recounts her experiences with hay made from barley on a Swiss farm, propelling a discussion on the intertwining of past traumas and present health conditions.
Delicia doesn't shy away from the raw realities of living with chronic pain, sharing the complexities of managing Crohn's disease with treatments ranging from Biologics to a holistic approach. Her journey is punctuated by surgeries and the acceptance of a permanent colostomy bag, yet it's her gratitude and unyielding spirit that captivates us. As she navigates the daily confines of the "Spoon Theory," we're reminded of the power of community, meditation, and a mindset geared towards positivity.
Tune in to hear Delicia's insights on the double-edged sword of medical treatments, the risks of immunosuppressive drugs, and the essential role of therapy in her well-being. The conversation also reveals her passion for advocacy against child molestation, highlighting her determination to turn personal adversity into a source of support and awareness for others. Her trilogy memoir stands as a testament to her courage and the transformative power of storytelling, offering a raw and authentic perspective on trauma, resilience, and the relentless pursuit of purpose.
Website - www.kissingasphalt.com
Facebook Page - kissingasphaltmemoir
Instagram - delicianiami_author
Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Unraveling the Threads of Invisible Illnesses with Olivia
My Spoonie Sisters
05/13/24 • 43 min
Our exploration of chronic illness doesn't stop there. Olivia courageously steps into the spotlight, shedding light on her life with a spectrum of genetic and chronic health conditions, including POTS, CMT, fibromyalgia, and gastroparesis. Her story is a testament to the relentless pursuit of balance between treatments and lifestyle changes, which includes a daily regimen of managing symptoms that could easily overwhelm the strongest among us. Our guest's insights into the genetic intricacies of CMT and the pervasive influence of fibromyalgia offer a poignant reminder of the complex battles fought behind the smiles of those with invisible illnesses.
Wrapping up with a touch of warmth and compassion, Olivia opened up about the joy she found in assembling spoonie boxes for fellow chronically ill young adults, a project that has seen 58 care packages spread light across the country. These acts of kindness, along with the steadfast support of therapy, family, and the unwavering love of pets, have become a cornerstone of her personal journey. Through stories of validation, laughter, and faith, this episode celebrates the indomitable spirit that unites us in the face of life's greatest health challenges. Join us for an episode filled with raw emotion, unwavering courage, and the healing power of community.
Instagram accounts: @oliviardennis
@yourpainhasapurpose
Info & Funding for Spoonie Boxes: https://www.gofundme.com/f/fund-care-boxes-for-chronically-ill-teens
Mental health resources: https://linktr.ee/mental.health.support
Olivia’s favorite ice packs: https://www.releafpack.com
Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Jessica's Recipe for Emotional and Physical Well-Being
My Spoonie Sisters
06/10/24 • 54 min
Jessica isn't just another voice in the health and wellness chorus; she's a maestro leading a symphony where everyday activities harmonize with our bodies' needs. Discover how dancing in your living room or tending to your garden can be acts of joyous self-care that keep lifestyle diseases at bay. We also dive deep into the sacred stillness of sleep and the gentle reprieve it offers from the day's chaos, sharing practical tips on how to enhance its restorative powers. And it doesn't stop with the physical; we unlock the secrets of stress management, exploring breathwork, journaling, and the intriguing Emotional Freedom Techniques (EFT) tapping, which Jessica adeptly integrates into her health coaching toolkit.
Join us as we wrap up this episode with heartfelt gratitude for the stories and insights Jessica Mitchell brought to our virtual table. Our dialogue reaches out to all those seeking solidarity on their health journeys, reminding us that true well-being is a tapestry woven from the threads of nutrition, movement, sleep, stress management, and emotional resilience. If you're looking to tap into a community where accountability is the norm and mutual support is as nourishing as a home-cooked meal, our Lifestyle Reset community awaits. Let's continue this conversation, and together, create lives that resonate with health and happiness.
IG iam_jessicamitchell
FB IAmJessicaMitchell
www.iamjessicamitchell.com
Lifestyle Reset Community
https://iamjessicamitchell.com/lifestyle-reset-membership-register
Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Josie's Guide to Overcoming Autoimmune Challenges
My Spoonie Sisters
06/17/24 • 45 min
Why do we often expect a magical pill to cure chronic illnesses? Join us as we challenge this conventional mindset by shedding light on the grim reality that 70% of deaths in the US stem from chronic illnesses. With Josie's experiences as our guide, we delve into the limitations of both Western and alternative medicine in addressing the root causes. This episode is a call to broaden our approach to health, emphasizing the critical role of emotional and mental well-being in tackling chronic conditions head-on.
Healing from trauma and chronic illness isn't just about revisiting the past—it's about forging a healthier future. Explore practical strategies to regain emotional balance and self-empowerment as Josie shares how she transitioned from emotional overwhelm to a state of inner peace. Learn how to turn off the body's fight-or-flight response and foster self-confidence through guided education and mentorship. This episode is essential for anyone aiming to take control of their emotional health and, in turn, find physical harmony.
Email: [email protected]
Website: www.thehashimotosfix.com
YouTube: https://www.youtube.com/channel/UCnKqF94WFoie2jwH1rF6pMw
Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Finding Your Holiday Joy
My Spoonie Sisters
12/15/23 • 4 min
Feeling the holiday pressure? Can't seem to find that festive joy amidst the chronic illness challenges? Hold on to your spoons, my wonderful warriors, because this Wow This Podcast episode is a heartfelt guide to finding joy in the holiday season irrespective of your physical constraints. I, Gracefully Jen, your ever-enthusiastic host, am here to take you through seven simple yet effective strategies to unapologetically prioritize your well-being and embrace the holiday spirit on your own terms.
We're going to talk about embracing simple traditions that resonate, setting realistic expectations, and understanding the power of virtual connections. Let's not forget the importance of self-care amidst the holiday hustle and why it's okay to celebrate in your own time. Together we'll explore the idea of a gratitude journal and how to adapt traditional holiday activities to your abilities. And remember, the joy is in the experience, not perfection. As we wrap up, our podcast family extends a wish for a joyful and peaceful holiday season. So, tune in, be inspired, and remember, don't you dare forget your spoon!
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
The Power of Authenticity in a Chronic Illness Journey
My Spoonie Sisters
12/13/23 • 4 min
Wake up and smell the authenticity! Your host, Gracefully Jen, is getting personal and sharing her insights on why being true to oneself is essential, especially for those battling chronic illness. She's putting a spotlight on how chronic conditions can often blur our identities, and she's here to remind us of the power of authenticity - a tool that deepens connections, empowers through vulnerability, and inspires a positive mindset.
You'll hear Jen's take on embracing individuality and the freedom it brings to not just accept but celebrate each spoonie is unique journey. Relish in her wisdom as she highlights the importance of self-care for maintaining mental and emotional health and how being true to oneself lays the foundation for prioritizing joy and fulfillment. So, spoonie sisters, get ready to feel empowered, embrace your uniqueness, and harness the power of your voice and story in the chronic illness community. Remember, your spoon is your emblem of strength!
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
You Are More Than Enough
My Spoonie Sisters
12/08/23 • 4 min
You may face each day battling a chronic illness, but do you truly realize your immense strength, resilience and worth while doing so? Welcome to another episode where I, Gracefully Jen, acknowledge your daily struggles and take you through seven significant reminders that underscore your inherent worth and uniqueness. We'll explore the unique journey you're undertaking, your significant contributions to a community that understands what it's like living with chronic illnesses, and how every little effort you make is a testament to your strength.
Don't underestimate the power of self-compassion! As you navigate through the turbulence of invisible diseases, it's crucial to be kind to yourself. Remind yourself that you are doing the best you can, your worth isn't defined by your productivity. You are making a difference, inspiring others with your courage and authenticity. Remember, your journey is unique, you are resilient, and every small effort matters. So, warriors, listen in, embrace your worthiness and continue to inspire. And yes, don't forget your spoon!
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Medical Mystery
My Spoonie Sisters
12/06/23 • 4 min
Today's conversation promises to provide solace, strategies, and a beacon of hope for all those grappling with a chronic illness that confounds the medical world. I, Gracefully Jen, assure you that navigating this web of complexity is not a journey you have to walk alone. I'll be your guide, offering wisdom on advocating for yourself, building robust support networks, seeking varied opinions, empowering yourself with knowledge, prioritizing mental health, staying abreast of medical advancements, and cherishing small victories.
In this heart-to-heart, we discuss the potential of maintaining a detailed health journal, the magic of online communities, and the significance of staying informed about your condition. We emphasize the indispensability of mental health care and the transformative power of openness to medical possibilities. The celebration of small victories along this journey is not only encouraged but also regarded as crucial to personal growth. Remember, you're not just a medical mystery, you're a person with strength, resilience, and a community that supports you through all the uncertainties. Tune in and let us journey together.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
#PlanToBeYourBest with Chronic Pain
My Spoonie Sisters
12/30/24 • 47 min
After years of enduring chronic pain, Rick Cram transformed his life by embracing resilience. His story of overcoming a high school football injury and multiple surgeries will inspire you to rethink how you approach life's challenges. We promise you'll gain valuable insights from his “Plan to Be Your Best” program, designed to build resilience and find purpose despite setbacks.
Rick’s journey offers a deep dive into the complexities of chronic pain and the mental fortitude needed to navigate it. As he shares his experiences — from the chaos of mental storms during daily tasks to the therapeutic power of writing — you'll discover practical strategies for maintaining focus and positivity. Through personal anecdotes, like his own knee replacement, Rick reveals how a shift in mindset can turn fear into opportunity, urging you to listen to your internal dialogue and create strategies to manage overwhelming moments.
This episode also explores the power of community and connection in fostering resilience. Rick emphasizes the importance of teaming up with those who understand your struggles, transforming pain into strength and compassion. By celebrating small victories and putting your greatest strengths into action, you'll learn how to be your best self, even amidst adversity. Join us as we explore these themes and visit rickcram.com for additional resources to guide your resilience journey.
RickCram.com
https://www.facebook.com/rick.cram.3
https://www.instagram.com/rickcram/
https://www.linkedin.com/in/rickcram/
https://www.youtube.com/RickCram21
#plantobeyourbest
Hi, Jen here! We are so glad to have you back. I want to personally thank those that have signed up with Rare Patient Voice recently. We love your support of the podcast, and this is another way that you can by signing up with Rare Patient Voice through our referral link. Remember, we're here to support you every step of the way.
Support:
https://rarepatientvoice.com/Myspooniesisters/
https://www.etsy.com/shop/MySpoonieSistershttps://www.graceandable.com/?bg_ref=980:nzTyG6c9zK (Use code GAJen10)
Website:
https://myspooniesisters.com/
Show more best episodes
Show more best episodes
FAQ
How many episodes does My Spoonie Sisters have?
My Spoonie Sisters currently has 122 episodes available.
What topics does My Spoonie Sisters cover?
The podcast is about Health & Fitness, Emotional Health, Autoimmune, Alternative Health, Mental Health, Personal Development, Chronic Pain, Wellness, Podcasts, Health and Mindfulness.
What is the most popular episode on My Spoonie Sisters?
The episode title 'The Power of Authenticity in a Chronic Illness Journey' is the most popular.
What is the average episode length on My Spoonie Sisters?
The average episode length on My Spoonie Sisters is 36 minutes.
How often are episodes of My Spoonie Sisters released?
Episodes of My Spoonie Sisters are typically released every 7 days.
When was the first episode of My Spoonie Sisters?
The first episode of My Spoonie Sisters was released on Mar 22, 2022.
Show more FAQ
Show more FAQ