Being Okay with Not Being Okay

12/01/23 • 2 min

As we journey together through the challenges of chronic illness, there's a recurring phrase that rings oh-so-very true — it's okay not to be okay. You've probably heard me chant this mantra on Instagram; in this empowering podcast, I bring the same spirit to uplift my beautiful Spoonie Sisters, who battle daily with various ailments. I speak candidly about the pain, the fatigue, and the emotional toll that comes with chronic illness. However, I also emphasize that your experiences are valid, your feelings hold importance, and it's perfectly okay to acknowledge that some days are harder than others.
The secret weapon here is self-care and I'm not talking about the occasional bubble bath or chocolate treat. I'm talking about serious, intentional self-care that forms a crucial part of managing your overall well-being. It's far from being selfish; it's about giving yourself permission to rest, recharge, and put your health above all else. So, grab a cup of something warm, find your coziest blanket, and join me as we explore what living with chronic illness truly means and how you can navigate it without losing yourself. And before we wrap up, remember, don't forget your spoon.

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Previous Episode

Adapting to Life's Challenges with Chronic Illness

Imagine waking up to find your body in a revolt against the change in weather. Sounds crazy, right? Yet, it's a reality that we've grappled with, alongside life's unexpected roller-coaster rides and the influence of modern fashion trends. This episode is an honest, heartfelt conversation about dealing with chronic illnesses, adapting to medication, finding the right doctor, and even coping with the stress that positive changes can bring.
Buckle in as we share some laugh-out-loud moments discussing the world of hats and the pressure to be stylish even when our bodies are in a flare. We've got some invaluable insights to share about the power of self-care, rest, and the underrated role of sleep in managing chronic illnesses. Most importantly, we address how to turn life's challenges into opportunities and find support during testing times. So sit back, relax and tune in for an episode filled with candid advice, laughter, and shared experiences.
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Next Episode

The Power of Faith in Managing Chronic Pain: Kayla's Inspiring Journey

Imagine finding yourself in a whirlwind of chronic pain and being told by the medical world to just lose weight and follow a keto diet. Picture the emotional turmoil that comes with such advice and the relief of finally finding a medical professional who listens. This is the narrative of our guest, Kayla, a brave individual who faced chronic conditions head-on. Her journey from diagnosis, mental health struggles, the empowerment of finding the right medical team, to finally being diagnosed with Psoriatic Arthritis, is nothing short of inspiring. The resilience and determination she displayed in the face of prognosis will inspire listeners who might be in a similar situation or simply need a story of triumph against adversity.
With her unique toolkit of coping strategies for managing chronic pain, Kayla offers listeners a wealth of practical tips, from the utilitarian—like ice packs and ergonomic keyboards—to the emotional—such as building a supportive network and harnessing the power of faith and social media. Kayla underlines the necessity of self-care, drawing strength from devotional readings, prayer, and inspiring individuals who candidly share their own journeys. As a writer, she brings a fresh perspective on the themes of ability and disability and how they shape one's sense of self. Join us for a tale of hope, resilience, and the power of community in the face of chronic pain. This episode promises to stir, educate, and empower.
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