Transcending the Pain & Suffering of Autism with Lisa Joyce Goes
03/19/20 • 66 min
In this week's heartwarming episode, Brigitte Shipman interviews Lisa Joyce Goes who is an autism mom, editor, and writer for The Thinking Moms' Revolution and The Age of Autism.
Lisa Joyce Goes is the mom of three wildly gifted children Mads, Noah, and Liam. Noah was diagnosed with autism in 2008.
Noah was nonverbal for quite a while and didn’t potty train until he was 7. Noah also had terrible rashes all over his body as well as up to 20 diarrhea filled diapers a day. His body was on fire and was uncomfortable and a lot of his behaviors had so much to do with his metabolic, gastrointestinal, and methylation issues that needed to be addressed.
Noah, now in puberty, is doing much better and greets Lisa in the morning with "Good morning, Princess" which brings Lisa so much joy.
Lisa candidly talks about the feeling of isolation, emotional eating, and the pain and suffering that resulted from the autism diagnosis and the end of her marriage. She was angry, reactive, and heartbroken.
At one point during a neurofeedback session, Lisa was asked if she had been a soldier because her brain scan showed signs of PTSD. She answered, "No, I'm an autism mom."
Lisa and Brigitte also talk about judgment autism moms experience from other people who don't understand autism and the importance of educating others and doing advocacy work.
Lisa says that challenges are real and difficult but she considers Noah 110% a blessing.
Lisa urges other autism moms listening out there to be as compassionate with themselves as they would with their closest friend or their children.
Tune in to this heartwarming episode and be filled with hope and solidarity.
Enjoy!
Resources/Links:
BMV Life Coach
https://bmvlifecoach.com/
BMV Life Coach Facebook Page
https://www.facebook.com/BMVlifecoach/
Mother's Guide Through Autism Private Facebook Page
https://www.facebook.com/groups/mothersguidethroughautism/
The Thinking Moms' Revolution
https://thinkingmomsrevolution.com/
Documenting Hope
https://documentinghope.com/
The Thinking Moms' Revolution Book
https://www.amazon.com/dp/B00CA15A7K/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1
The Age of Autism
https://www.ageofautism.com/
TEAM TMR
https://teamtmr.org/
In this week's heartwarming episode, Brigitte Shipman interviews Lisa Joyce Goes who is an autism mom, editor, and writer for The Thinking Moms' Revolution and The Age of Autism.
Lisa Joyce Goes is the mom of three wildly gifted children Mads, Noah, and Liam. Noah was diagnosed with autism in 2008.
Noah was nonverbal for quite a while and didn’t potty train until he was 7. Noah also had terrible rashes all over his body as well as up to 20 diarrhea filled diapers a day. His body was on fire and was uncomfortable and a lot of his behaviors had so much to do with his metabolic, gastrointestinal, and methylation issues that needed to be addressed.
Noah, now in puberty, is doing much better and greets Lisa in the morning with "Good morning, Princess" which brings Lisa so much joy.
Lisa candidly talks about the feeling of isolation, emotional eating, and the pain and suffering that resulted from the autism diagnosis and the end of her marriage. She was angry, reactive, and heartbroken.
At one point during a neurofeedback session, Lisa was asked if she had been a soldier because her brain scan showed signs of PTSD. She answered, "No, I'm an autism mom."
Lisa and Brigitte also talk about judgment autism moms experience from other people who don't understand autism and the importance of educating others and doing advocacy work.
Lisa says that challenges are real and difficult but she considers Noah 110% a blessing.
Lisa urges other autism moms listening out there to be as compassionate with themselves as they would with their closest friend or their children.
Tune in to this heartwarming episode and be filled with hope and solidarity.
Enjoy!
Resources/Links:
BMV Life Coach
https://bmvlifecoach.com/
BMV Life Coach Facebook Page
https://www.facebook.com/BMVlifecoach/
Mother's Guide Through Autism Private Facebook Page
https://www.facebook.com/groups/mothersguidethroughautism/
The Thinking Moms' Revolution
https://thinkingmomsrevolution.com/
Documenting Hope
https://documentinghope.com/
The Thinking Moms' Revolution Book
https://www.amazon.com/dp/B00CA15A7K/ref=dp-kindle-redirect?_encoding=UTF8&btkr=1
The Age of Autism
https://www.ageofautism.com/
TEAM TMR
https://teamtmr.org/
Previous Episode
Never Ever Give Up - Autism Means Game On, Not Game Over with Ilana Gerschlowitz
In this powerfully inspiring episode of hope, Brigitte interviews Ilana Gerschlowitz, autism mom and Founding Director of The Star Academy which provides educational instruction to children with autism in South Africa.
In 2004, her oldest son David was diagnosed with autism at the age of 20 months and ten years later, her youngest son Aaron was also diagnosed with autism.
Ilana tells how her son David had perfect development until he was 15 months and then developed a high fever and was hospitalized for Rotavirus for 3 days. When he was discharged, David no longer made eye contact and he became unreachable. He started flapping his hands, stopped responding to his name, lined up his toys, and he vanished into his own world.
The developmental specialist who diagnosed David with autism told Ilana that he would never go to school, he would never speak, he would never toilet-train, he would be like a vegetable, he would never hold down a job, and that she should take out an insurance policy and seek psychological counseling for herself.
Devastated but refusing to believe that autism had to be a lifelong disability, Ilana immersed herself in research to find solutions.
Ilana eventually found the right doctors to partner up with and started working on diet and nutrition. Treating his gut flora, eliminating food allergies, supporting his immune system, supplementing with vitamins and minerals, identifying bacterial or fungal infections have all helped to alleviate many of the symptoms. Enrolling him in the ABA (Applied Behavior Analysis) program was an absolute game-changer as well.
David now at 17 has become very much an independent, functional human being who runs his own deli making sandwiches and pizza, though he still relies on an app to communicate. David still wrestles with symptoms of autism but Ilana never gives up hope that she’ll find the ultimate cure.
Ilana tells parents, "It is never too late to start the right treatments no matter how old your child is."
When her youngest son Aaron was also diagnosed with autism, Ilana was devastated again but she put on her boxing gloves and went to fight. Aaron went through the treatment protocol as well as ABA and he is now 7 years old, completely recovered from autism, and in mainstream school. Early intervention was key for recovery for Aaron.
Ilana encourages parents to never ever give up and to remember that what seems impossible at times can really become possible and that with the right treatment, the sky is the limit.
Tune in to this episode and you will be inspired!
Enjoy!
Resources:
BMV Life Coach
https://bmvlifecoach.com/
The Star Academy
https://thestaracademy.co.za/
The Yellow Canaries
https://thestaracademy.co.za/the-yellow-canaries-of-tembisa/
Saving My Sons: A Journey with Autism
https://www.amazon.com/dp/B07V59PY16/ref=tmm_kin_swatch_0?_encoding=UTF8&qid=1562740488&sr=8-1
ABA Therapy
https://www.autismspeaks.org/applied-behavior-analysis-aba-0
Next Episode
Creating Your Temporary New Normal: Tools to Help You and Your Kids with Autism
In this week's episode, Brigitte Shipman shares 3 tools she used to help her son Joseph on the spectrum when he was younger so that you can apply and benefit from these tools as you are adjusting to the new reality and creating a new routine for your child with autism and for your whole family.
We are all struggling right now and even more so for families living with autism. Brigitte wants to share her knowledge to make your day a little easier.
Brigitte explains how to utilize calendar for yourself and your child to establish a solid, new routine that feels safe especially for a child with autism who relies on a solid routine.
She also talks about using visual cues to make communication easier between you and your child as well as social stories to help your child understand what you're trying to have him or her accomplish in a given situation.
Tune in and make your day a little easier with these tools.
Enjoy!
Resources/Links:
BMV Life Coach
https://bmvlifecoach.com/
Facebook Live (Monday-Thursday 2pm Central)
https://www.facebook.com/BMVlifecoach/
Private Facebook Group
https://www.facebook.com/groups/mothersguidethroughautism/
The New Social Story Book by Carol Gray
https://www.amazon.com/Social-Story-Revised-Expanded-Anniversary-ebook/dp/B01A9SJ22Y/ref=sr_1_3?dchild=1&keywords=social+stories&qid=1586489618&sr=8-3
Social Skills Picture Book for High School and Beyond by Jed Baker
https://www.amazon.com/Social-Skills-Picture-School-Beyond/dp/1932565353/ref=sr_1_2?dchild=1&keywords=social+stories+jed+baker&qid=1586489694&sr=8-2
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