Beyond the Surface: Vulva Health & Awareness
09/06/24 • 37 min
Welcome back to season four of Menopause Uprising Podcast. Today our first guest is Clare Baumhauer.
In 2016, Clare was diagnosed with Lichen Sclerosus and stage 3 Vulval Cancer after being misdiagnosed for 38 years. With no prior knowledge of either condition, she became determined to raise awareness and advocate for better healthcare responses. Following 6 years of remission, their cancer returned in April 2023, along with dVIN (pre-cancer). After surgery, clear margins were obtained for the cancer, but not for the dVIN, leading to close monitoring.
As an advocate, she represents patients with Lichen Sclerosus and vulval cancer, serving on the UK Dermatology Clinical Trials Network and PAVE group. Clare co-founded Lichen Sclerosus & Vulval Cancer UK Awareness and runs the largest support group for these conditions with over 10,000 members. She also raises awareness through social media and contributes to online learning for healthcare professionals.
To learn more about Clare see HERE
****Helpful links ****
To purchase tickets for the 5th Menopause Success Summit click HERE
To purchase my best-selling book, 'All You Need to Know About Menopause,' click HERE
To subscribe to my weekly newsletter, click HERE
Let's be friends! Follow me on socials Instagram Facebook Linkedin or Tiktok
Thanks for listening! As always, please rate and review the show as it helps get the word out!
Hosted on Acast. See acast.com/privacy for more information.
Welcome back to season four of Menopause Uprising Podcast. Today our first guest is Clare Baumhauer.
In 2016, Clare was diagnosed with Lichen Sclerosus and stage 3 Vulval Cancer after being misdiagnosed for 38 years. With no prior knowledge of either condition, she became determined to raise awareness and advocate for better healthcare responses. Following 6 years of remission, their cancer returned in April 2023, along with dVIN (pre-cancer). After surgery, clear margins were obtained for the cancer, but not for the dVIN, leading to close monitoring.
As an advocate, she represents patients with Lichen Sclerosus and vulval cancer, serving on the UK Dermatology Clinical Trials Network and PAVE group. Clare co-founded Lichen Sclerosus & Vulval Cancer UK Awareness and runs the largest support group for these conditions with over 10,000 members. She also raises awareness through social media and contributes to online learning for healthcare professionals.
To learn more about Clare see HERE
****Helpful links ****
To purchase tickets for the 5th Menopause Success Summit click HERE
To purchase my best-selling book, 'All You Need to Know About Menopause,' click HERE
To subscribe to my weekly newsletter, click HERE
Let's be friends! Follow me on socials Instagram Facebook Linkedin or Tiktok
Thanks for listening! As always, please rate and review the show as it helps get the word out!
Hosted on Acast. See acast.com/privacy for more information.
Previous Episode
Endometriosis with Kathleen King
Today on the Menopause Uprising Podcast we have Kathleen King. Did you know 1 in 9 women in Ireland have endometriosis and currently it takes 9 years to be diagnosed?
Kathleen is a well-known advocate for endometriosis, having lived with the condition herself. With over 25 years of experience as a volunteer, she has made significant contributions to the field through support, advocacy and work with organisations such as the Endometriosis Association of Ireland, World Endometriosis Organisation and the ESHRE Endometriosis Guidelines Review group.
Kathleen's research on the use of the internet for endometriosis diagnosis and treatment has further established her reputation as a knowledgeable and dedicated advocate. Her personal connection combined with her professional background as a medical scientist has motivated her to raise awareness and support those affected by endometriosis, inspiring others to join her in this mission. She is the founder of DEARG (Delivering Endometriosis and Adenomyosis Research and Guidance) Ireland’s only podcast dedicated to endometriosis. She is also the founder of MISE (Menstrual Information, Specialising in Endometriosis) a school programme that launched in Donegal in March 2024.
Follow Kathleen on Instagram, HERE
Learn more about Endometriosis Ireland HERE
DEARG: Delivering Endometriosis and Adenomyosis Resources and Guidance Podcast HERE****Helpful links ****
To purchase my best-selling book, 'All You Need to Know About Menopause,' click HERE
To subscribe to my weekly newsletter, click HERE
Let's be friends! Follow me on socials Instagram Facebook Linkedin or Tiktok
Thanks for listening! As always, please rate and review the show as it helps get the word out!
Hosted on Acast. See acast.com/privacy for more information.
Next Episode
Bridgerton, Testosterone & Libido
Today on the Menopause Uprising Podcast I am talking to my lovely friend, Diane Danzebrink. We talk about Bridgerton, Testosterone & Libido. Enjoy!
Diane's new book, Making Menopause Matter: The Essential Guide to What You Need to Know and Why can be bought HERETo learn more about Diane click HERE
****Helpful links ****
To purchase tickets for the 5th Menopause Success Summit click HERE
To purchase my best-selling book, 'All You Need to Know About Menopause,' click HERE
To subscribe to my weekly newsletter, click HERE
Let's be friends! Follow me on socials Instagram Facebook Linkedin or Tiktok
Thanks for listening! As always, please rate and review the show as it helps get the word out!
Hosted on Acast. See acast.com/privacy for more information.
If you like this episode you’ll love
Episode Comments
Generate a badge
Get a badge for your website that links back to this episode
<a href="https://goodpods.com/podcasts/menopause-uprising-with-catherine-okeeffe-587926/beyond-the-surface-vulva-health-and-awareness-75052336"> <img src="https://storage.googleapis.com/goodpods-images-bucket/badges/generic-badge-1.svg" alt="listen to beyond the surface: vulva health & awareness on goodpods" style="width: 225px" /> </a>
Copy