Meet the Founders of AlzAuthors: The POWER of Caregiver Collaboration
06/14/23 • 65 min
Meet the Founders of AlzAuthors! In episode 73, my co-host, Don Priess, and I had the unique pleasure of speaking with the three co-founders of AlzAuthors.com. In 2016, our guests, Marianne Sciucco, Jean Lee, and Vicki Tapia, founded the non-profit AlzAuthors.com, a global community of over 300 writers who are writing all about dementia from their personal experience. This ever-growing global community is united in an effort to light the way for others, with a vision of lifting the silence and stigma surrounding Alzheimer’s and other dementias through the sharing of personal stories.
If you're writing your own story or are thinking about it, this is a must see/hear episode! Regardless, you will be enriched by this dynamic trio who are truly Caregiver Crusaders!
You can find out more about AlzAuthors on their Website and their podcast, Untangling Alzheimer's and Dementia.
#writers #writer #podcast #experience #love #art #medical #nurse #community
Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.
YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE
Follow us on Twitter, FB, IG, & TiK Tok 💜
Listen on your favorite platform 💜
If you like what you hear leave us some love. 💜
Meet the Founders of AlzAuthors! In episode 73, my co-host, Don Priess, and I had the unique pleasure of speaking with the three co-founders of AlzAuthors.com. In 2016, our guests, Marianne Sciucco, Jean Lee, and Vicki Tapia, founded the non-profit AlzAuthors.com, a global community of over 300 writers who are writing all about dementia from their personal experience. This ever-growing global community is united in an effort to light the way for others, with a vision of lifting the silence and stigma surrounding Alzheimer’s and other dementias through the sharing of personal stories.
If you're writing your own story or are thinking about it, this is a must see/hear episode! Regardless, you will be enriched by this dynamic trio who are truly Caregiver Crusaders!
You can find out more about AlzAuthors on their Website and their podcast, Untangling Alzheimer's and Dementia.
#writers #writer #podcast #experience #love #art #medical #nurse #community
Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.
YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE
Follow us on Twitter, FB, IG, & TiK Tok 💜
Listen on your favorite platform 💜
If you like what you hear leave us some love. 💜
Previous Episode
ANTHONY COPELAND PARKER: Who Runs The World?! Tony & Cat. That's who.
Anthony "Tony" Copeland-Parker is back for a record 3rd time on Love Conquers Alz... and Don and I are thrilled. Tony and his, partner Cat, have a unique and inspiring story that has been unfolding before our eyes and this new chapter is as heartening as ever.
For those who may not be familiar with Tony andhis partner, Cat, here's a little background to get you up to speed. (I'm killing it with the running puns!) Tony and Cat were in there 50s going their merry way, when they were presented two life-changing pieces of news...at the same time. Tony was told he needed a heart valve replacement and Cat had early-onset Alzheimer’s. But both being endurance athletes, their reaction to this news was, let's say, unique. They retired, sold their home, & became nomads, running marathons & half-marathons - literally over the world.
Their book, Running All over the World, Our Race Against Early Onset Alzheimer’s, is an engaging travelogue with a heart. Don't let the word "Alzheimer's" give you the wrong impression! It's filled with fun, humor, heart, and adventure. It's chock-full of interesting facts and detailed travel advice. And if you ever thought about running a marathon, but just can't seem to check that off your list, you'll experience the thrill of the finish...blister-free! The book is an account of their 5+ years of flying, running, walking, sailing, & sightseeing from Atlanta to Antarctica and back again.
Now that Cat's Alzheimer's has progressed and she can no longer run marathons, she and Tony have embarked on a new chapter in their unique and awe-inspiring story. Enjoy this episode!
Love,
Susie
SPECIAL GIVEAWAY! The first 5 people to leave a comment at RunningwithCat.com will receive an ebook version of Tony's book and one signed copy! Leave a comment and then let me know you did at [email protected]. Good luck!
Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.
YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE
Follow us on Twitter, FB, IG, & TiK Tok 💜
Listen on your favorite platform 💜
If you like what you hear leave us some love. 💜
Next Episode
TERRI PEASE, Ph.D., CONSULTANT - FROM CARE PARTNER TO CAREGIVER
In Episode 74, Don Priess and I had an incredible conversation withTerri Pease, Ph.D., an Author, Coach, and Consultant for Spousal Caregivers. As a highly experienced professional in the social services and healthcare industries, Terri has dedicated her working life to encouraging Parkinson's caregivers, to make self-care real, practical, and possible. But really, the same applies to almost all Spousal Caregivers - including those caring for spouses with Alzheimer's.
Terri has has also dedicated her life to working with people who are facing highly stressful situations. Her experience has taught her how to provide supportive and trauma-informed care to those who need it most. When Terri married her husband who had Parkinson's Disease, she brought her wealth of knowledge and experience to bear on caring for him. She trained staff in organizations around the United States on how to offer supportive, empathic, and trauma-informed care. Her professional experience has informed her approach to caregiving, and to encouraging Parkinson's caregivers to make the idea of self-care real, practical, and possible. In addition to her work as an author and caregiver advocate,
Terri's book, "Love, Dignity, and Parkinson's: from Care Partner to Caregiver" (Paperback – October 19, 2022 ), is a great resource for caregivers whose spouse or loved one has been diagnosed with Parkinson's Disease. and are feeling overwhelmed and unsure of how to best care for them without losing themself. The book offers a new approach to caregiving that can help ease the stress and anxiety that come with this diagnosis. In this book, you'll learn how to strengthen your caregiving capacity, maintain peace of mind, and live a less stressful, upsetting, or lonely caregiving life. You'll also find practical tips on how to deal with common experiences like changes in mood, challenging behavior, and communication difficulties.
Most importantly, Love, Dignity, and Parkinson's will serve as a constant reminder that you are not alone in this journey. With compassion and wisdom, Pease offers invaluable insights into the caregiver experience, drawn both from her extensive professional experience providing trauma-informed care and from her own years as a caregiver to her husband. This book is an essential resource for any caregiver navigating the challenges of Parkinson's Disease or any challenging disease.
Enjoy!
xoxSusie
Terri continues to post information, support, and resources at SEABURY HOUSE.
You can also connect with Terri on LINKEDIN.
Please support our documentary: NO COUNTRY FOR OLD PEOPLE by pledging a tax deductible donation here on our partner site, The National Consumer Voice
Be a ROAR-ior!! JOIN THE R.O.A.R. MOVEMENT for quality long term care! Visit the No Country For Old People Website for more information.
YOU CAN ALSO SUPPORT THE COMPLETION OF OUR DOCUMENTARY "NO COUNTRY FOR OLD PEOPLE" BY MAKING A TAX DEDUCTIBLE DONATION THROUGH THE NATIONAL CONSUMER VOICE HERE
Follow us on Twitter, FB, IG, & TiK Tok 💜
Listen on your favorite platform 💜
If you like what you hear leave us some love. 💜
Love Conquers Alz - Meet the Founders of AlzAuthors: The POWER of Caregiver Collaboration
Transcript
When the world has gotcha down, and Alzheimer's sucks. It's an equal opportunity disease that chips away at everything we hold dear. And to date, there's no cure. So until there is we continue to fight with the most powerful tool in our arsenal. Love. This is love conquers all is a real and really positive podcast that takes a deep dive into everything. Alzheimer's, The Good, the Bad, and everything in between. And now here are your hosts Susie
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