Resilience and Hope

02/11/25 • 44 min

Parent and Feeding Matters consortium member Shanda Cool shares her family's experiences with pediatric feeding disorder, Avoidant/Restrictive Food Intake Disorder and tube feeding through the story of her daughter, Mira. She highlights the difficulties they encountered from Mira's birth, including her multiple disabilities and underscores the importance of families feeling acknowledged and supported in their journey, and the critical role that feeding tubes play in ensuring children like Mira receive the nutrition they need.

Previous Episode

Communication and Common Sense

Jaclyn Pederson and Hayley Estrem engage in a deep conversation with Dr. Richard Noel, a prominent figure in pediatric feeding disorder. They explore Richard's journey into the field, the evolution of PFD and ARFID definitions, and the importance of multidisciplinary care. The discussion emphasizes the need for effective communication and common sense in patient care, as well as the significance of recognizing PFD as a disability to improve support for families. The episode concludes with insights into future research opportunities and the ongoing efforts to bridge gaps in understanding and collaboration within the feeding disorders community.

Next Episode

Discussing the 10 PFD-ARFID Consensus Statements

In this episode of Feeding Does Matter, four of the authors (including our hosts) of the consensus paper on the diagnostic overlap and distinction for pediatric feeding disorder and Avoidant/Restrictive Food Intake Disorder discuss their thoughts on the 10 consensus statements, the importance of accurate diagnosis, and the need for collaboration and a common language in the field.

Guests: Cuyler Romeo and William Sharp

This consensus paper is published in the International Journal of Eating Disorders and is available via open access, made possible by the generous donors of Feeding Matters.

View Consensus Paper