Ep 6: Going Down the Rabbit Hole of Diagnoses with Neurodiverse Children
07/04/23 • 60 min
Both of us have spiraled down the rabbit hole of diagnosis with our children. As a parent, when you first hear about autism, you don’t know what you don’t know. You find yourself asking, “Are these behaviors normal?” many, many times. What even is “normal”, anyway?
In today’s episode, we talk about the term “diagnosis”, the data around autism diagnoses, and our rabbit hole experiences with multiple diagnoses of autism, Tourette’s, OCD, and more with our children. If you’re currently experiencing this with your own children, we see you. We’ve been there.
In this episode, you’ll learn...
[10:49] The data around autism diagnosis, and why some folks with autism actually prefer not to use the term diagnosis
[21:25] Kristen’s rabbit hole diagnosis experience with her children
[30:16] Our shared experience with Tourette’s syndrome diagnoses for our kids
[41:22] Gwen’s rabbit hole diagnosis experience with her children
[55:03] The Last Word from our kids on what they think it means to be diagnosed with something
Get full show notes and the episode transcript:
If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/
Both of us have spiraled down the rabbit hole of diagnosis with our children. As a parent, when you first hear about autism, you don’t know what you don’t know. You find yourself asking, “Are these behaviors normal?” many, many times. What even is “normal”, anyway?
In today’s episode, we talk about the term “diagnosis”, the data around autism diagnoses, and our rabbit hole experiences with multiple diagnoses of autism, Tourette’s, OCD, and more with our children. If you’re currently experiencing this with your own children, we see you. We’ve been there.
In this episode, you’ll learn...
[10:49] The data around autism diagnosis, and why some folks with autism actually prefer not to use the term diagnosis
[21:25] Kristen’s rabbit hole diagnosis experience with her children
[30:16] Our shared experience with Tourette’s syndrome diagnoses for our kids
[41:22] Gwen’s rabbit hole diagnosis experience with her children
[55:03] The Last Word from our kids on what they think it means to be diagnosed with something
Get full show notes and the episode transcript:
If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/
Previous Episode
Ep 5: The Summer Suck: The Struggles of Summer with Neurodiverse Kids
Ahhh, summer time. Swim lessons, water parks, summer camps - it’s the dream life, right? *insert record scratch* For neurodiverse families, that’s not really the case. Instead, summer can be really hard for us.
In today’s episode, we talk about the struggles of summer, how we try to cope, and how summer is harder on parents than the kids. Plus, you can hear what our kids think about summer from their perspective.
In this episode, you’ll learn...
[11:39] Why summer is so hard for us as parents of neurodiverse children
[13:38] Why things like summer camps and water parks don’t really work out for our families
[20:48] The lack of structure summer brings is difficult to contend with and why we no longer set expectations during this time
[29:18] The little rays of hope we have to offer you about summer
[35:31] The Last Word from our kids who share some things that defined their summers growing up, the good and the bad
Get full show notes and the episode transcript:
If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/
Next Episode
Ep 7: The Ninth Circle of Hell: Traveling When You’re a Neurodiverse Family
Family travel is supposed to be fun, right? We’re bonding and making memories and all that jazz. In a perfect world, we’d agree with you, but the reality is a bit more miserable when you’re traveling as a neurodiverse family.
In today’s episode, we talk about how to plan for your trip in advance and get your neurodiverse kids used to the idea long beforehand, the issues you’ll likely encounter no matter which mode of transportation you’re using, and how exhausting it can be for the whole family, even if your kids don’t remember that part later. Plus, can we all just agree that theme parks are the worst?!
In this episode, you’ll learn...
[11:41] Travel is so important for our neurodiverse kids to experience, but it’s also very difficult because of the change in routine
[13:13] The importance of creating a social story for our kids before leaving for any trip
[16:13] The issues that come up when we travel, like food, heavy backpacks, entertainment devices, stuffed animals, having a backup plan for meltdowns, and so much more
[29:31] The traumatic experiences we’ve had at theme parks, especially in Orlando, FL
[44:47] Controversial opinion alert, but what if we take separate trips sometimes without our neurodiverse kids?
[49:49] The Last Word from our kids and their thoughts on travel
Get full show notes and the episode transcript: https://www.youdontwantahug.com/post/ep-7-the-ninth-circle-of-hell-traveling-when-you-re-a-neurodiverse-family/
If you can’t get enough of us, and want stay up to date with our other projects and ways you can connect, join our newsletter: https://www.youdontwantahug.com/
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