"In my Head" or Just Rare? - Zebra Exists

03/01/23 • 15 min

For this episode, I share my medical journey for the last two and half years being absent on my podcast, how I got my diagnosis of Ehlers-Danlos Syndrome and other comorbidities, and what it is like to be a full-time patient advocate for myself.

I hope this will lead us in a new direction as I will bring more guests who are musicians with disabilities. I want to bring awareness to the music community to see this minority group of equally talented people, what issues we have encountered in terms of accessibilities, inclusivity, and how we manage our disability as each individuals to accommodate our music career.

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Thank you for listening! Find me on www.instagram.com/thrive_on_wheels/ and more video clips on Thrive x Strive YouTube Channel.

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Support the show

Thank you for listening! Find me on www.instagram.com/thrive_on_wheels/ and more video clips on Thrive x Strive YouTube Channel.

Previous Episode

Finding Your Blue Ocean - UMBS 2023

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Today, we have two of the event coordinators Dr. Garrett Hope and Dr. Heidi Kay Begay coming to the show to introduce you to their Ultimate Musician Business Summit, which will be taking place on January 5-7, 2023.
Books Mentioned: Seth Gordin - The dip Quotes:
People often say that motivation doesn't last. Well, neither does bathing– that's why we recommend it daily.” — Zig Ziglar
we are the average of the five people we spend the most time with. - Jim Rohn

To find more info on UMBS:
Website :https://www.musicsummit.biz/
Instagram: https://www.instagram.com/ultimatemusicb1
Facebook: https://www.facebook.com/UltimateMusicBizSummit/

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Blog Post: http://www.amywangviolin.com

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Thank you for listening! Find me on www.instagram.com/thrive_on_wheels/ and more video clips on Thrive x Strive YouTube Channel.

Next Episode

Living in the Now: The Journey of My Progressive Quadriplegia as a Musician

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In this episode, I shared my medical story, part 2, about how I experienced traumatic experiences with progressive paralysis while staying in the moment and continuing my performance career.
I want to share my stories now, right before my surgery next week, on the podcast to raise awareness of the rare disease and let everyone know that it’s okay not to know the answer or find your diagnosis yet but still be validated for your symptoms.
Living in the present is the ONE thing that helps me through each traumatic experience with paralysis, still enjoy each of my performances, and cherish each performance opportunity.
As a musician podcast, I want to encourage disabled musicians to come out and talk about their experiences with accessibility at work, inclusivity in different work settings - orchestras, chamber music, composition, conducting - of course, not limited to these.; and what do you think are the obstacles for the disabled musicians to shine... list literally can go on. So, if you are a disabled musician and love to talk about your story and experiences, you can reach out to [email protected]; or fill out the contact form on my website amywangviolin.com.

Support the show

Thank you for listening! Find me on www.instagram.com/thrive_on_wheels/ and more video clips on Thrive x Strive YouTube Channel.

Thrive x Strive Musician Podcast - "In my Head" or Just Rare? - Zebra Exists

Transcript

Today is Rare Disease day, it’s time to look back at the last 2 and half years. And using this as an opportunity to tell my story, where I have been, how far I have come, and what now?

So for anyone new to this podcast, I am a violinist and DMA student. I started this podcast to talk about mental health and self-discovery as a musician. When my health, especially my physical health, deteriorated in the fall of 2020, finding the medical diagnoses became my miss