For this episode, I share my medical journey for the last two and half years being absent on my podcast, how I got my diagnosis of Ehlers-Danlos Syndrome and other comorbidities, and what it is like to be a full-time patient advocate for myself.
I hope this will lead us in a new direction as I will bring more guests who are musicians with disabilities. I want to bring awareness to the music community to see this minority group of equally talented people, what issues we have encountered in terms of accessibilities, inclusivity, and how we manage our disability as each individuals to accommodate our music career.
Thank you for listening! Find me on www.instagram.com/thrive_on_wheels/ and more video clips on Thrive x Strive YouTube Channel.
03/01/23 • 15 min
Thrive x Strive Musician Podcast - "In my Head" or Just Rare? - Zebra Exists
Transcript
Today is Rare Disease day, it’s time to look back at the last 2 and half years. And using this as an opportunity to tell my story, where I have been, how far I have come, and what now?
So for anyone new to this podcast, I am a violinist and DMA student. I started this podcast to talk about mental health and self-discovery as a musician. When my health, especially my physical health, deteriorated in the fall of 2020, finding the medical diagnoses became my miss
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