Beyond the Tics: Uncovering the Depths of Tourette Syndrome
11/07/23 • 41 min
In today's episode, I sit down with the incredible Aidy Smith to discuss our personal experiences with Tourette syndrome. From the challenges of getting diagnosed at a young age to confronting the stigmas we've encountered, we share our most personal stories and insights. Listen in as we unravel the complexities of living with Tourette and explore why some of us even view it as a superpower.
Links & Resources:
- NJCTS: https://njcts.org/
If this episode resonated with you, I'd be grateful if you could rate, follow, and share it. Your feedback means the world to me, so please leave a review. Together, let's foster understanding and compassion in our community.
In today's episode, I sit down with the incredible Aidy Smith to discuss our personal experiences with Tourette syndrome. From the challenges of getting diagnosed at a young age to confronting the stigmas we've encountered, we share our most personal stories and insights. Listen in as we unravel the complexities of living with Tourette and explore why some of us even view it as a superpower.
Links & Resources:
- NJCTS: https://njcts.org/
If this episode resonated with you, I'd be grateful if you could rate, follow, and share it. Your feedback means the world to me, so please leave a review. Together, let's foster understanding and compassion in our community.
Previous Episode
Welcome to The UpTic - Premieres November 7, 2023
Welcome to 'The UpTic' a podcast that dives deep into the world of Tourette syndrome (TS). Just like an iceberg, most see only the tics of TS, but there's so much more beneath the surface. From the unique talents and challenges of those with TS to the diverse experiences within our community, we explore it all. Whether you have TS, advocate for the community, or are simply curious, this is your window into our world. Our episodes are filled with compelling interviews, expert insights, personal stories, and the latest advancements in TS research. We go beyond just TS, sharing stories from the LGBTQ+ community, various ethnic and cultural groups, and adults living with TS. But, 'The UpTic isn't just about education – it's about inspiring action, breaking down stereotypes, and building a world where everyone can tick freely. Join us in this movement to change the narrative around Tourette syndrome and neurodiversity. Follow or subscribe now, and together, let's make a difference!
Brought to you by: NJ Center for Tourette Syndrome & Associated Disorders (NJCTS)
Next Episode
Transforming Tourette's Treatment: Dr. Lichtman's Perspective on CBIT
Today we dig into the world of Tourette Syndrome (TS) and its management through Comprehensive Behavioral Intervention for Tics (CBIT). Our guest, Dr. Jeremy Lichtman, a licensed psychologist specializing in Tourette patients, sheds light on the myths and truths surrounding TS. We explore the intricacies of CBIT, debunking common misconceptions, and understanding its role as a transformative tool rather than a cure. Whether you're directly affected by TS, a caregiver, or just curious, this episode offers valuable insights and hope for managing Tourette Syndrome.
Key Moments:
- [00:00] Dr. Lichtman discusses the common misconception of CBIT as a cure for TS.
- [01:17] Dr. Lichtman simplifies CBIT as a 'tool, not cure' for TS.
- [04:48] Deep dive into CBIT: the principles, components, and how it functions.
- [10:38] Real-life examples and success stories in managing TS with CBIT.
- [17:02] Understanding the unique challenges of vocal tics and adult patients in CBIT.
- [24:06] The journey of a patient mastering CBIT and its long-term impact.
- [30:14] Addressing misconceptions about CBIT and identifying ideal candidates.
- [35:20] Differentiating between TS and its comorbidities for effective treatment.
- [42:28] Dr. Lichtman reflects on the power of conversation and education in TS management.
Links & Resources
- New Jersey Center for Tourette Syndrome and Associated Disorders: https://njcts.org/
- Dr. Jeremy Lichtman's Practice Information: [Website Link]
- Comprehensive Overview of CBIT: [Resource Link]
Thank you for tuning into The UpTic. If you found this episode insightful, please consider rating, following, and sharing our podcast. Your support helps us reach and empower more individuals. Remember, you're not alone in your journey with TS. Let's continue to stretch the boundaries and live our best lives!
The UpTic - Beyond the Tics: Uncovering the Depths of Tourette Syndrome
Transcript
Aidy Smith 00:00
It was around about the age of nine or 10 when I actually got my diagnosis and fast forward years and I just I never spoke about my Tourette syndrome at all. In fact, even the word Tourette like we had to call it the T word. I was so embarrassed by it. I was so scared by it I couldn't be said around me it was like saying Voldemort in Harry Potter is just a word that she could not use. And if I ever heard that word in public, it would send shivers down my spine and I shatter
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