The UpTic
New Jersey Center for Tourette Syndrome and Associated Disorders
The UpTic is a podcast that provides an opportunity for the eclectic voices of the TS community to be heard. The topics covered will be as diverse as this neurodivergent population. You will hear personal stories, learn more about Tourette Syndrome and be inspired to live fully. Wherever you are on your TS journey this podcast will inform and engage listeners and offer new insights and perspectives for self-reflection and action.
Why Listen?
- Explore the Iceberg: TS is more than tics. Discover the talents, challenges, and experiences that lie beneath the surface.
- Expert Takes: Stay updated with insights from therapists, psychologists, and neurodiversity professionals. Learn about cutting-edge TS therapies and research.
- Real Stories: Hear from diverse voices within the TS community, including LGBTQ+ and ethnic perspectives.
- Practical Tips: Get actionable strategies for managing TS in daily life.
Our Mission
We're not just here to educate; we aim to inspire action. Subscribe to join a movement committed to breaking down stereotypes and fostering inclusivity.
Tune In
Our first episode drops on November 7, with new episodes every other Tuesday. Subscribe now to never miss an episode and be part of a more inclusive world.
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Top 10 The UpTic Episodes
Goodpods has curated a list of the 10 best The UpTic episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to The UpTic for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite The UpTic episode by adding your comments to the episode page.
04/23/24 • 32 min
In this episode, I had a compelling conversation with Dr. Angie Landeros-Weisenberger, an Associate Research Scientist at the Yale Child Study Center. We discuss the current state of research and the latest breakthroughs in treating tics and co-occurring conditions such as OCD and depression. Dr. Angie's expertise and passion for research left me both inspired and hopeful for what's on the horizon in patient care.
Episode Highlights:
[01:30] - Dr. Angie’s history of research.
[02:39] - Innovative treatments on the horizon.
[06:10] - Exploring genetic mysteries of tics.
[09:37] - Breaking the habit loop.
[13:33] - The future of wearables.
[16:18] - Trichotillomania research and why it’s not a tic disorder.
[18:48] - Gender bias in tic diagnosis.
[20:46] - A lifetime with OCD and tics.
[24:33] - Selective serotonin reuptake inhibitors (SSRIs) treatment for OCD.
[27:09] - Science is not set in stone, changes will occur with more research.
[27:25] - Advances in research of tools, such as ketamine, for treatment-resistant depression.
[31:34] - Very promising things are coming through research and studies.
Links & Resources:
Yale Child Study Center: https://medicine.yale.edu/childstudy/
New Jersey Center for Tourette Syndrome and Associated Disorders (NJCTS): https://njcts.org/
I want to remind all our listeners that each episode we share is a stepping stone to better understanding the intricate world of Tourette Syndrome and related disorders. If you've enjoyed today's episode, rate us and leave a review. Your feedback not only supports the show but also helps us reach and educate more people like you.
Navigating Your Career as a Neurodivergent Professional: Advocacy, Accommodations, and Success
The UpTic
09/17/24 • 29 min
Let’s get to work and discuss job searching and career building as a neurodivergent professional. Whether you're dealing with Tourette Syndrome, ADHD, or other conditions, this episode is packed with practical tips to help you navigate the often tricky job market. I’ll share advice on disclosing your condition during interviews, the importance of requesting accommodations, and how to frame your neurodivergence as a strength. Plus, I’ll break down some tools and strategies to help you manage the job search process and give you an edge when applying for positions in today’s competitive market.
This conversation is for anyone looking to optimize their career approach—whether you're just starting out or you're already established but want to take your experience to the next level. We’re talking about everything from tackling applicant tracking systems (ATS) to turning your unique qualities into professional advantages. Join me as we explore how to land the right job and thrive in it!
[2:35] – The challenges of today's job market and how it's an employer’s market.
[6:50] – Navigating disclosure: Should you disclose your condition in an interview?
[12:18] – How to ask for accommodations at work and during the interview process.
[16:40] – Tips on tailoring your resume for applicant tracking systems (ATS).
[21:12] – Tools and resources for job seekers, including portfolio-building advice.
[26:00] – Reminders about key resources and support for neurodivergent professionals.
Links & Resources:
- Job Accommodation Network: https://askjan.org/
- Job Scan: Gives feedback on your resume based on a job description: https://www.jobscan.co/
- Huntr Chrome Extension: Also a smartphone app that helps save jobs: https://huntr.co/
- Teal HQ: Website and smartphone app to keep track of job applications and interviews: https://www.tealhq.com/
- Teal HQ Job Tracker Spreadsheet: https://www.tealhq.com/tools/job-tracker
- Neurodiversity Career Connector: Find inclusive and neurodivergent-friendly companies: https://ndcc.simplifyhire.com/
- National Disability Rights Network: https://www.ndrn.org/
- Leopold Talent: Career coaching and job search for neurodivergent professionals: https://www.leopoldtalent.com/
Remember, each story shared on this podcast brings light and understanding to the diverse experiences within the Tourette's community. Your journey is your own, and it's filled with potential and promise. If this episode resonated with you, I encourage you to like, share, and leave a review to help us connect with more listeners.
08/20/24 • 44 min
In this episode of The UpTick, I chat with Dr. Robert Zambrano, a clinical psychologist and cognitive behavioral therapist specializing in Tourette Syndrome (TS), Obsessive-Compulsive Disorder (OCD), and anxiety disorders. Dr. Zambrano shares his journey from an OCD-focused practice to becoming a key figure in the treatment of Tourette's, discussing the overlap between TS and OCD and the unique therapeutic approaches he uses.
Dr. Zambrano is a certified expert in Cognitive Behavioral Therapy, particularly in Exposure and Response Prevention (ERP) for OCD, and has been working with patients since 2000. He is also involved with the NJCTS Tim Howard Leadership Academy and specializes in treating persistent tic disorders and body-focused repetitive behaviors (BFRBs). His practice, Stress and Anxiety Services of New Jersey, offers specialized telehealth services for anxiety disorders.
Episode Highlights:
[1:25] - Dr. Zambrano shares how he unexpectedly entered the field of Tourette Syndrome through his work with OCD.
[6:14] - Discussing the overlap between Tourette Syndrome and OCD and the percentage of people with TS who also have OCD.
[10:23] - Delving into "tourettic OCD" and how it differs from standard OCD, with real-world examples from Dr. Zambrano's practice.
[14:50] - The importance of practicing therapy techniques like Habit Reversal Training (HRT) at home and integrating them into daily life.
[18:07] - Addressing anxiety in people with Tourette’s and how it can exacerbate tics.
[27:30] - Understanding cognitive therapy and the power of recognizing that we don't have to act on every thought our brain produces.
[39:22] - How to respond when others don't react kindly to tics and the importance of finding your tribe.
Links & Resources:
Dr. Robert Zambrano’s Website: http://www.stressandanxiety.com
Remember, each story shared on this podcast brings light and understanding to the diverse experiences within the Tourette's community. Your journey is your own, and it's filled with potential and promise. If this episode resonated with you, I encourage you to like, share, and leave a review to help us connect with more listeners.
04/09/24 • 41 min
Today I am joined by Slayton Cooper, a high school senior valedictorian and youth ambassador for the Tourette Association of America. Slayton is a passionate advocate for Tourette Syndrome, neurodiversity, and related conditions. We explore what it means to truly embrace our unique neural landscapes in school and at work.
We explore the positives and negatives of labels, the importance of advocating for your needs, and finding your most authentic self. Slayton offers profound wisdom well beyond his years on self-acceptance, resisting judgments, and seeing the beauty in our differences. His message of empowerment for those with Tourette Syndrome and similar conditions is truly uplifting.
From personal struggles to triumphant advocacy, this conversation unveils the importance of understanding, acceptance, and empowerment within the neurodiverse community and beyond. Don't miss this insightful journey into the heart of neurodiversity.
Timeline Highlights:
[01:20] What does neurodiversity mean?
[04:29] Advocating for inclusion.
[07:39] Challenges in employment.
[11:30] Stigmas in the workplace.
[16:43] Navigating standardized tests.
[20:23] Balancing goals and ambitions with neurodiversity.
[23:00] Tools and resources
[31:54] Suppressing tics.
Links & Resources:
New Jersey Center for Tourette Syndrome and Associated Disorders (NJCTS): https://njcts.org/
Thank you for tuning into this enlightening conversation on neurodiversity. If you've found resonance or inspiration in our discussion, I encourage you to rate, follow, share, and review our podcast. Your support helps us bring more stories like this to light, empowering others to embrace their unique selves fully.
This episode is dedicated to and in memory of, Patricia Phillips. Rest in peace, Pat. May your memory be a blessing, always.
10/01/24 • 29 min
In this episode, I sit down with Dr. Lori Rockmore and Dr. Daniela Colognori, two clinical psychologists with extensive experience treating individuals with Tourette syndrome (TS) and related conditions. Both have a rich history of working at the Rutgers TS Clinic, where they gained invaluable insights into providing holistic, family-focused care. Throughout our conversation, we discuss their personal journeys into the field, how their practice has evolved, and the incredible strengths they see in their patients.
We discuss what it means to offer holistic treatment, going beyond the tics themselves to address broader issues like school performance, family dynamics, and other comorbid conditions such as OCD and anxiety. Dr. Rockmore and Dr. Colognori share stories of resilience, the importance of seeing the whole person, and how families play a crucial role in supporting individuals with TS.
Episode Highlights:
[01:17] – Dr. Rockmore shares how her work in Tourette began, sparked by her collaboration with Dr. Kathy Budman.
[03:57] – Dr. Colognori recounts how she was "randomly" placed in the Rutgers TS program and ended up working alongside Dr. Rockmore.
[06:49] – Holistic care explained: Addressing the patient as a whole, including family, school challenges, and comorbidities like OCD and anxiety.
[09:34] – Dr. Rockmore and Dr. Colognori discuss the strengths of children with TS, emphasizing their talents beyond their tics.
[12:45] – Exploring the challenges and rewards of training students to treat TS, and how the Rutgers program equips them for treating complex conditions.
[20:17] – Practical advice: Dr. Rockmore and Dr. Colognori outline how they prioritize interventions based on functional impairments and patient input.
[24:20] – Advice to patients with Tourette’s: "Tics are just one part of who you are—pursue your passions and live your life to the fullest."
Links & Resources:
Remember, each story shared on this podcast brings light and understanding to the diverse experiences within the Tourette's community. Your journey is your own, and it's filled with potential and promise. If this episode resonated with you, I encourage you to like, share, and leave a review to help us connect with more listeners.
01/16/24 • 34 min
In this episode, I have an illuminating discussion with Callum deQuevedo about his life-changing experience undergoing deep brain stimulation (DBS) surgery to treat his severe Tourette Syndrome (TS). Callum shares the incredible story of his journey to DBS, from exhausting medications and therapy options, to making the decision for surgery, going through the procedure and recovery, to the transformative impact it has had on reducing his tics and self-injurious behaviors. While not a cure, DBS has given Callum a new lease on life. This powerful testimony sheds light on an emerging treatment option that could help others find relief.
Episode Highlights:
[01:27] Callum emphasizes DBS is not a cure but has significantly reduced his tics.
[02:37] Callum details the lengthy DBS candidacy process.
[05:30] Mental health criteria for getting DBS.
[07:06] The process of DBS surgery.
[09:27] Remote monitoring of Callum's DBS device.
[10:58] Follow-up surgeries required.
[12:38] DBS reduced Callum’s motor tics by 70%.
[14:15] How DBS has lessened the burden of TS.
[15:30] DBS has saved money caused from severe tic episodes.
[16:25] How Callum enjoys going to the movies.
[18:10] Being triggered by each other’s tics.
[19:30] DBS has improved Callum's hand tremors and handwriting.
[20:23] Mental health benefits of DBS.
[21:33] Limitations after DBS, including high-contact sports and metal detectors.
[23:54] Callum’s future college and career plans.
[25:04] Impressed by Callum's deep knowledge of tic blockers.
[28:54] Finding a TS therapist.
[30:00] Callum’s one piece of advice for people with TS.
[31:40] Post-DBS, Callum needs less accommodation at school now.
Links & Resources:
New Jersey Center for Tourette Syndrome and Associated Disorders (NJCTS): https://njcts.org/
Remember, your story is powerful, and sharing your experiences can be the guiding light for someone else's journey. If you enjoyed this episode, please rate, follow, and share 'The Uptick' with others.
Intersectional Identity
The UpTic
01/02/24 • 33 min
I had an enlightening discussion with Mason, a fellow advocate in the Tourette's community, about the complex intersectionality between TS and other identities. We explored the stigma surrounding coprolalia, the financial barriers to Tourette’s advocacy, and the dangers of gatekeeping Tourette’s diagnoses. Our conversation shed light on the diversity within the TS experience.
Episode Highlights:
[02:22] Kicking people with coprolalia out of the Tourette's community.
[04:16] The camp video that emphasized Tourette’s is not about swearing.
[06:12] Navigating intersectional identities beyond just having Tourette’s.
[07:39] The heavy financial burden of Tourette’s advocacy.
[10:08] Unpaid labor expected in disability advocacy communities.
[12:53] Respecting gender diversity at Tourette’s summer camps.
[14:31] The problem with accusing people of “faking” their tics.
[15:56] Tourette’s manifestations viewed differently across gender.
[17:53] Pretty privilege when it comes to tics being seen as “cute”.
[19:32] Who is really behind the Tourette’s police?
[21:01] Supporting conflicting access needs in the TS community.
[22:50] Barriers to medical transition for trans people with disabilities.
[25:00] Mason’s experience when coprolalia tics first emerged.
[31:32] The importance of visible TS role models across the spectrum.
Links & Resources:
New Jersey Center for Tourette Syndrome and Associated Disorders (NJCTS): https://njcts.org/
Remember, your story is powerful, and sharing your experiences can be the guiding light for someone else's journey. If you enjoyed this episode, please rate, follow, and share 'The Uptic' with others.
Diverse Voices of Tourette Syndrome
The UpTic
12/19/23 • 32 min
Join me as we explore the diverse intersection of Tourette Syndrome, culture, and identity with Michael Chichioco, a Filipino American medical student with a powerful story. In this episode, Michael opens up about his life with Tourette's, shedding light on the unique cultural challenges and the journey to understanding and acceptance. Tune in for an enlightening conversation that delves into the heart of living with Tourette's in a multicultural setting.
Episode Highlights:
[01:11] - Meet Michael Chichioco and discover the pivotal role of culture in his Tourette Syndrome journey.
[01:53] - Michael's personal battle with Tourette's – the early signs, diagnosis struggles, and cultural barriers.
[04:20] - A deep dive into childhood memories, understanding Tourette's, and family dynamics in different cultures.
[08:43] - Exploring the diverse reactions to Tourette Syndrome and the complexities within families.
[14:29] - The challenge of support and advocacy in varied communities and the significance of cultural awareness.
[17:35] - Discussing the urgent need for more diverse voices and perspectives in the Tourette community.
[23:41] - The power of representation: How diverse role models can reshape Tourette advocacy.
[28:07] - Uncovering the geographical and cultural diversity in the Tourette world – why understanding matters.
[30:14] - Michael's heartfelt advice for those living with Tourette Syndrome: Embrace and trust yourself.
Links & Resources:
● Tourette Association of America, Northern California & Hawaii Chapter: https://tourette.org/chapter/ca-no/
● New Jersey Center for Tourette Syndrome and Associated Disorders (NJCTS): https://njcts.org/
Remember, your story is powerful, and sharing your experiences can be the guiding light for someone else's journey. If you enjoyed this episode, please rate, follow, and share 'The Uptick' with others.
11/20/23 • 43 min
Today we dig into the world of Tourette Syndrome (TS) and its management through Comprehensive Behavioral Intervention for Tics (CBIT). Our guest, Dr. Jeremy Lichtman, a licensed psychologist specializing in Tourette patients, sheds light on the myths and truths surrounding TS. We explore the intricacies of CBIT, debunking common misconceptions, and understanding its role as a transformative tool rather than a cure. Whether you're directly affected by TS, a caregiver, or just curious, this episode offers valuable insights and hope for managing Tourette Syndrome.
Key Moments:
- [00:00] Dr. Lichtman discusses the common misconception of CBIT as a cure for TS.
- [01:17] Dr. Lichtman simplifies CBIT as a 'tool, not cure' for TS.
- [04:48] Deep dive into CBIT: the principles, components, and how it functions.
- [10:38] Real-life examples and success stories in managing TS with CBIT.
- [17:02] Understanding the unique challenges of vocal tics and adult patients in CBIT.
- [24:06] The journey of a patient mastering CBIT and its long-term impact.
- [30:14] Addressing misconceptions about CBIT and identifying ideal candidates.
- [35:20] Differentiating between TS and its comorbidities for effective treatment.
- [42:28] Dr. Lichtman reflects on the power of conversation and education in TS management.
Links & Resources
- New Jersey Center for Tourette Syndrome and Associated Disorders: https://njcts.org/
- Dr. Jeremy Lichtman's Practice Information: [Website Link]
- Comprehensive Overview of CBIT: [Resource Link]
Thank you for tuning into The UpTic. If you found this episode insightful, please consider rating, following, and sharing our podcast. Your support helps us reach and empower more individuals. Remember, you're not alone in your journey with TS. Let's continue to stretch the boundaries and live our best lives!
12/31/24 • 39 min
Welcome back to The UpTic! As 2024 comes to a close, I’m reflecting on the incredible conversations we’ve had this year and the powerful insights shared by our guests. In this special highlights episode, we revisit some of the standout moments from the season, featuring discussions on occupational therapy, neurodiversity advocacy, groundbreaking research, and more.
Dive into inspiring stories, actionable advice, and cutting-edge research that not only demystify TS but also shine a light on the strength and resilience of the TS community. Press play and hear from parents, researchers, advocates, and professionals who’ve shared their experiences and wisdom with us throughout the year.
Episode Highlights:
[0:00] – Opening Reflections: Reflecting on the mission of the podcast and the unique diversity of Tourette Syndrome cases.
[3:20] – Empowering Through Occupational Therapy: Practical life tools for TS management with Shannon Floyd and Jan Rowe.
[4:59] – Empathy in Action: Nurse Jillian Firenze shares how laughter and support from her parents shaped her journey.
[6:29] – Parenting with Positivity: Insights from Rena and Maggie LaSalle on minimizing stress and building a support system for children with TS.
[9:37] – Advocating Unapologetically: Harvard freshman Slayton Cooper discusses the importance of owning your needs and advocating for them confidently.
[12:00] – Breaking the Feedback Loop: Dr. Angie Landeros-Weisenberger explains the brain's sensory gating system and the science of habit reversal.
[14:23] – Shaping the Home Environment: Drs. Jeremy and Jeff Lichtman, father and son psychologists who discuss what worked in their home environment.
[19:30] – Do You Tick in Your Sleep?: Occupational therapist Ben Mooney explores the connection between sleep and overall well-being in TS management.
[23:57] – Understanding TS Through Habits: Drs. Jay and Max Tischfield discuss the role of habit formation in TS and their cutting-edge research with Tourette mice.
[31:15] – Holistic Approaches to Care: Drs. Lori Rockmore and Dr. Daniela Colognori emphasize the power of attitude and family support in shaping a child’s long-term outlook.
[34:04] – Managing Public Perception: Dr. Robert Zambrano on navigating social situations and building resilience in individuals with TS.
Links & Resources:
Remember, each story shared on this podcast brings light and understanding to the diverse experiences within the Tourette's community. Your journey is your own, and it's filled with potential and promise. If this episode resonated with you, I encourage you to like, share, and leave a review to help us connect with more listeners.
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FAQ
How many episodes does The UpTic have?
The UpTic currently has 28 episodes available.
What topics does The UpTic cover?
The podcast is about Health & Fitness, Mental Health, Podcasts, Self-Improvement, Education and Neurodiversity.
What is the most popular episode on The UpTic?
The episode title 'Intersectional Identity' is the most popular.
What is the average episode length on The UpTic?
The average episode length on The UpTic is 34 minutes.
How often are episodes of The UpTic released?
Episodes of The UpTic are typically released every 14 days.
When was the first episode of The UpTic?
The first episode of The UpTic was released on Oct 27, 2023.
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