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The Association Podcast - Advocacy, Impact and Empowerment: The Charge Against Neuromuscular Diseases with Morgan Roth

Advocacy, Impact and Empowerment: The Charge Against Neuromuscular Diseases with Morgan Roth

05/24/24 • 41 min

The Association Podcast

On this episode of The Association Podcast, we had the privilege of speaking with Morgan Roth, the Chief Marketing Officer of the Muscular Dystrophy Association. Morgan shares her fascinating career journey from broadcasting to the nonprofit sector, emphasizing her personal connection to MDA's mission as she lives with Charcot-Marie-Tooth disease. The discussion highlights significant milestones, such as recent FAA legislation improving air travel accessibility for people with disabilities, the organization's comprehensive roles in research, multidisciplinary care, and advocacy, and their community outreach activities. We also touch on the importance of digital fluency, actionable data, and proactive decision-making in nonprofit leadership. Morgan shares her pride in MDA's achievements and her commitment to supporting and advancing the neuromuscular disease community.

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On this episode of The Association Podcast, we had the privilege of speaking with Morgan Roth, the Chief Marketing Officer of the Muscular Dystrophy Association. Morgan shares her fascinating career journey from broadcasting to the nonprofit sector, emphasizing her personal connection to MDA's mission as she lives with Charcot-Marie-Tooth disease. The discussion highlights significant milestones, such as recent FAA legislation improving air travel accessibility for people with disabilities, the organization's comprehensive roles in research, multidisciplinary care, and advocacy, and their community outreach activities. We also touch on the importance of digital fluency, actionable data, and proactive decision-making in nonprofit leadership. Morgan shares her pride in MDA's achievements and her commitment to supporting and advancing the neuromuscular disease community.

Previous Episode

undefined - Thriving in Associations and Life with Joanna Pineda

Thriving in Associations and Life with Joanna Pineda

On this episode of The Association Podcast, we welcome Joanna Pineda, CEO and Chief Troublemaker at Matrix Group International. We discuss her entrepreneurial journey, web design fundamentals, and reflections on the association management industry. Our conversation spans from the significance of company culture and accountability to practical strategies for project management and maintaining work-life balance in a remote environment, all intertwined with the need for continuous learning, adapting to market needs, and fostering a diverse, inclusive workplace culture.

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undefined - The Intersection of Business and Accessibility with Mark Wallach

The Intersection of Business and Accessibility with Mark Wallach

On this episode of The Association Podcast, we have return visitor Mark Wallach, MBA, CEO Emeritus of Engagement Mobile Strategies. Mark, a prominent figure in the association market and an advocate for ALS awareness, shares insights on accessibility. Diagnosed with ALS in April 2021, Mark discusses his slower-than-average progression and the subsequent challenges. He talks about starting Engagement Mobile Strategies, a company offering mobile engagement consultations and other services, after reducing his full-time work commitment. Mark emphasizes the importance of accessibility in technology, websites, and events, citing its benefits for everyone, including those with disabilities. He also highlights events and efforts to raise ALS awareness. Tune in for an inspiring and informative discussion covering strategies for better accessibility and inclusivity in associations.

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