A Chat with Jake Quigley: Brain Surgery, Hiking the Himalayas and the Fundamentals of Mountain Biking
04/22/19 • 37 min
Jake Quigley is the executive director of the non profit Outdoor Mindset. The organisation’s mission is to unite and inspire people affected by neurological challenges through a common passion of the outdoors. It is a free membership-based community. When he is not working, Jake can be found adventuring outdoors with his wife, Jeanie, by foot, bike, or ski.
If you haven’t listen to Jake’s story, be sure to head back to Part One so that you make the most of our conversation!
We talked about:
His epilepsy diagnosis at 11 years old
How adventure can increase confidence, positivity and the ability to deal with challenge
The path to brain surgery
How to dispel the fear and stigma around epilepsy
What is telemark skiing?
How altitude might affect epilepsy
What he could teach me in mountain biking!
Getting support from Diane Van Deren
What you CAN control when you are diagnosed
How exercise can help your brain
The influence of the outdoors on depression and anxiety
The changes in attitude towards epilepsy
His next big adventure
Terminology:
Grand mal: a generalised seizure where a person loses consciousness and convulses. Also known as a tonic-clonic (more modern term).
Aura: a change in brain activity that causes some strange sensations. Often a warning of a seizure.
More about Outdoor Mindset:
https://www.outdoormindset.org/
Follow Outdoor Mindset:
Facebook: https://www.facebook.com/OutdoorMindset/
Instagram: https://www.instagram.com/outdoormindset/
Twitter: https://twitter.com/OutdoorMindset
Music:
Lonely Lake by Kev Rowe | License: Creative Commons
SUPPORT THE PODCAST:
Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.
TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts
Follow Seize Your Adventure:
Facebook: https://www.facebook.com/SYAdventurers/
Twitter: https://twitter.com/syadventurers
Instagram: https://www.instagram.com/syadve
This podcast is an independent production - costs of the show are covered by me (Fran) with the support of patrons. If you want to help support the show financially, head to patreon.com/seizeyouradventure. This will help me to continue telling stories of epilepsy in adventure.
Or, support the show for free by sharing it on socials! Find us on Instagram @seizeyouradventurepod.
Seize Your Adventure is part of the Tremula Network - adventure and outdoor podcasts off the beaten track. To find out more, head to tremula.network
Get full access to Seize Your Adventure at seizeyouradventure.substack.com/subscribe
Jake Quigley is the executive director of the non profit Outdoor Mindset. The organisation’s mission is to unite and inspire people affected by neurological challenges through a common passion of the outdoors. It is a free membership-based community. When he is not working, Jake can be found adventuring outdoors with his wife, Jeanie, by foot, bike, or ski.
If you haven’t listen to Jake’s story, be sure to head back to Part One so that you make the most of our conversation!
We talked about:
His epilepsy diagnosis at 11 years old
How adventure can increase confidence, positivity and the ability to deal with challenge
The path to brain surgery
How to dispel the fear and stigma around epilepsy
What is telemark skiing?
How altitude might affect epilepsy
What he could teach me in mountain biking!
Getting support from Diane Van Deren
What you CAN control when you are diagnosed
How exercise can help your brain
The influence of the outdoors on depression and anxiety
The changes in attitude towards epilepsy
His next big adventure
Terminology:
Grand mal: a generalised seizure where a person loses consciousness and convulses. Also known as a tonic-clonic (more modern term).
Aura: a change in brain activity that causes some strange sensations. Often a warning of a seizure.
More about Outdoor Mindset:
https://www.outdoormindset.org/
Follow Outdoor Mindset:
Facebook: https://www.facebook.com/OutdoorMindset/
Instagram: https://www.instagram.com/outdoormindset/
Twitter: https://twitter.com/OutdoorMindset
Music:
Lonely Lake by Kev Rowe | License: Creative Commons
SUPPORT THE PODCAST:
Become a patron to support the podcast and continue telling stories of epilepsy in adventure. Find out more and sign up at patreon.com/seizeyouradventure. You can also make a one-off donation at https://www.paypal.me/seizeyouradventure.
TRANSCRIPT AVAILABLE at seizeyouradventure.com/transcripts
Follow Seize Your Adventure:
Facebook: https://www.facebook.com/SYAdventurers/
Twitter: https://twitter.com/syadventurers
Instagram: https://www.instagram.com/syadve
This podcast is an independent production - costs of the show are covered by me (Fran) with the support of patrons. If you want to help support the show financially, head to patreon.com/seizeyouradventure. This will help me to continue telling stories of epilepsy in adventure.
Or, support the show for free by sharing it on socials! Find us on Instagram @seizeyouradventurepod.
Seize Your Adventure is part of the Tremula Network - adventure and outdoor podcasts off the beaten track. To find out more, head to tremula.network
Get full access to Seize Your Adventure at seizeyouradventure.substack.com/subscribe
Previous Episode
Jake Quigley: Mind Over Mountains
For Jake Quigley, adventure is more than just a past time, or even a passion. Adventure is a lifestyle, and one he built up around his epilepsy. Jake was diagnosed with epilepsy when he was eleven years old. Rather than being scared by the condition, those around him encouraged and supported Jake to try adventurous things. But having carved out his adventure lifestyle, Jake’s seizures began to evolve when he was an adult, and they started to impact on his quality of life. Eventually, medication wasn’t working, and Jake was left with one last option. Brain surgery.
TERMINOLOGY
Medically refractory epilepsy - Epilepsy that is never fully controlled by medication. Generalised seizure - a seizure that affects the entire brain
Focal point - A place in the brain the seizure starts
Grand mal - a generalised seizure where a person loses consciousness and convulses. Also known as a tonic-clonic (more modern term).
More about Outdoor Mindset: https://www.outdoormindset.org/
MUSIC:
Groovy Guitar - LOOP by joshuaempyre | License: Attribution
Extract of "wrapped in dreams" by Frankum & Frankumjay | License: Creative Commons.
Lonely Lake by Kev Rowe | License: Creative Commons
git2016_4.WAV by Hoerspielwerkstatt_HEF | License: Attribution
BR_094_Himalaya_Buddhistmonks.mp3 by kevp888 | License: Attribution
Groovy Guitar 2 - LOOP.wav by joshuaempyre | License: Attribution
Explosion and Ski sound effects from Zapsplat | License: Creative Commons
READ THE FULL TRANSCRIPT AT seizeyouradventure.com/transcripts
Outdoor MindsetAn Outdoor-Focused Community For People Affected By Neurological Challenges
Disclaimer: This post contains affiliate links. If you make a purchase, I may receive a commission at no extra cost to you.
This podcast is an independent production - costs of the show are covered by me (Fran) with the support of patrons. If you want to help support the show financially, head to patreon.com/seizeyouradventure. This will help me to continue telling stories of epilepsy in adventure.
Or, support the show for free by sharing it on socials! Find us on Instagram @seizeyouradventurepod.
Seize Your Adventure is part of the Tremula Network - adventure and outdoor podcasts off the beaten track. To find out more, head to tremula.network
Get full access to Seize Your Adventure at seizeyouradventure.substack.com/subscribe
Next Episode
Adventurers Talk Epilepsy
We’ve heard from people with epilepsy how they seize adventure. Now it’s time to put some adventurers on the spot. I talk to three people who work within the adventure field to find out what they know about epilepsy, what they don’t, and how we can get more people with epilepsy in adventure.
We mention:
-These three adventure professionals’ first aid and epilepsy experience
-How they handle risk assessments
-The different types of seizure
-Basic epilepsy first aid
-How to encourage people with epilepsy to take part in adventure
-What adventure means to them
-Where to go to learn more about epilepsy
THE ADVENTURERS:
Jago Hartland (Outdoor Pursuits Guide)
David Willis (Bushcraft Instructor)
Nicki Bass (Resilience Consultant)
LEARN ABOUT EPILEPSY:
https://seizeyouradventure.com/learn-about-epilepsy/
This podcast is an independent production - costs of the show are covered by me (Fran) with the support of patrons. If you want to help support the show financially, head to patreon.com/seizeyouradventure. This will help me to continue telling stories of epilepsy in adventure.
Or, support the show for free by sharing it on socials! Find us on Instagram @seizeyouradventurepod.
Seize Your Adventure is part of the Tremula Network - adventure and outdoor podcasts off the beaten track. To find out more, head to tremula.network
Get full access to Seize Your Adventure at seizeyouradventure.substack.com/subscribe
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