Patient Centricity - Parenting a child with a rare neurological condition: Nicole’s story

Parenting a child with a rare neurological condition: Nicole’s story

09/03/24 • 44 min

Nicole Johnson is the co-founder of the FOXG1 Research Foundation and the mother of 11-year-old Josie, who suffers with FOXG1 Syndrome, a rare neurological condition. With more than two decades of experience in media and communications, Nicole serves as executive director, overseeing every vertical across the organization.

Previous Episode

Patient Centricity, a business imperative

Host Victoria Summers welcomes colleague Sharon Suchotliff, co-author of the book “Reinventing Patient Centricity,” released in 2022.
They discuss what patient centricity is, why it’s no longer only a “nice to have,” but a business imperative, and the impact a patient-centric focus can have for patients, the ecosystem and life sciences business. This conversation is based on chapter 2, “The Forces Propelling Patient Centricity,” and chapter 3, “Defining Patient Centricity.”

Next Episode

Patient Centricity will become the new business model

Host Victoria Summers welcomes colleagues Sharon Suchotliff and Hensley Evans to discuss the future of patient centricity and the need for pharma companies to measure their Patient Outcome Impact (POITM) to supplement their traditional measures of performance. In addition, they explore models from other industries that could serve as inspiration for change and share their hopes for the future. This conversation is based on chapter 12 of the book.