First time broke me, but now...
Explicit content warning
10/07/20 • 22 min
Alzheimer's disease is very mysterious. Caregivers are often guessing what their LO's (loved ones) are feeling, experiencing, etc. CG's live a life of magical charades.
The first time ALZ shows up in an ordinary daily event can turn a caregiver's heart on tilt. J Smiles takes time to share a handful of specific examples of just that. She was not prepared for the initial instance when Zetty did not recognize herself in a photograph.
There are many things that science can track but this is an area where a heart must rely on other humans. Shock and awe create pain and frustration for J Smiles with each first event. She never sees it coming. J hopes her stories can help others navigate the first time, unknowns.
###
Tune-in every Monday for Parenting UP! "LIVE video Caregiving Conversation" on Getvokl, @ 9p EST USA:
https://getvokl.com/channel/parenting-up
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"Alzheimer's is heavy but we ain't gotta be!"
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Patreon: https://patreon.com/jsmilesstudios
TEXT 'PODCAST" to +1 404 737 1449 - to give J topic ideas, feedback, say hi!
Be sure to leave us a review!
Alzheimer's disease is very mysterious. Caregivers are often guessing what their LO's (loved ones) are feeling, experiencing, etc. CG's live a life of magical charades.
The first time ALZ shows up in an ordinary daily event can turn a caregiver's heart on tilt. J Smiles takes time to share a handful of specific examples of just that. She was not prepared for the initial instance when Zetty did not recognize herself in a photograph.
There are many things that science can track but this is an area where a heart must rely on other humans. Shock and awe create pain and frustration for J Smiles with each first event. She never sees it coming. J hopes her stories can help others navigate the first time, unknowns.
###
Tune-in every Monday for Parenting UP! "LIVE video Caregiving Conversation" on Getvokl, @ 9p EST USA:
https://getvokl.com/channel/parenting-up
Subscribe to Parenting Up! Email List:
https://b4db2913.sibforms.com/serve/MUIEAFb7W1pjVP8P4JIrkBHRXOfRw5WmI0diWuV5VYbvytnea2JSVYv6EBwSGk9h_cPs_94Gz2EXg5v69ExKMcSs692SELz4zWoLERp99gNEiaZx8xzQ4xPVZ_6WLRKBofH0PFlsW3V48LQRegv5ybsLstpm14rY8fWyOAM0FhX9Qynnb-aPtwpIRYEMyLK55IcwLbSl2SvsPy8x
"Alzheimer's is heavy but we ain't gotta be!"
IG: https://www.instagram.com/parentingup
FB: https://www.facebook.com/parentingup
YT: https://www.youtube.com/channel/UCDGFb1t2RC_m1yMnFJ2T4jw
Patreon: https://patreon.com/jsmilesstudios
TEXT 'PODCAST" to +1 404 737 1449 - to give J topic ideas, feedback, say hi!
Be sure to leave us a review!
Previous Episode
The Lie of Love: with caregiver Chef Angela
Chef Angela (Angela Gorham) joins J Smiles for an in-the-trenches-right-now-conversation. Like J, she is single, childless and her mom's full-time caregiver. Another commonality, another's death made their mother's Alzheimer's undeniable. Listen for Ms Gorham's shocking thrust from condo to caregiver.
With less than one year of caregiving under her belt, Chef Angela asks J pertinent and picky questions as an OG caregiver. Such honest inquiries set the stage for a meaningful exchange not loss on either speaker. J Smiles laughs and softs steps through measured expectations of "does it get better" probes. J Smiles gives sage advice like never before. Each tells of talents unleashed through the journey of Parenting UP!
Chef Angela is quick to explain why lying is her newest sign of love --- "Trying to explain the truth... oh, no I do NOT do that anymore."
###
Chef Angela YOUTUBE CHANNEL
https://www.youtube.com/channel/UC_NQ62XEy-aWAlrPNqtTpzQ/about
Tune-in every Monday for Parenting UP! "LIVE video Caregiving Conversation" on Getvokl, @ 9p EST USA:
https://getvokl.com/channel/parenting-up
Subscribe to Parenting Up! Email List:
https://b4db2913.sibforms.com/serve/MUIEAFb7W1pjVP8P4JIrkBHRXOfRw5WmI0diWuV5VYbvytnea2JSVYv6EBwSGk9h_cPs_94Gz2EXg5v69ExKMcSs692SELz4zWoLERp99gNEiaZx8xzQ4xPVZ_6WLRKBofH0PFlsW3V48LQRegv5ybsLstpm14rY8fWyOAM0FhX9Qynnb-aPtwpIRYEMyLK55IcwLbSl2SvsPy8x
"Alzheimer's is heavy but we ain't gotta be!"
IG: https://www.instagram.com/parentingup
FB: https://www.facebook.com/parentingup
YT: https://www.youtube.com/channel/UCDGFb1t2RC_m1yMnFJ2T4jw
Patreon: https://patreon.com/jsmilesstudios
TEXT 'PODCAST" to +1 404 737 1449 - to give J topic ideas, feedback, say hi!
Be sure to leave us a review!
Next Episode
Uh oh! Zetty wants a smart phone.
Zetty throws J Smiles off with a request for a cell phone. What seems like a simple ask turns into a quest for the holy grail. For Zetty, J soon realizes it is a dignity issue too.
J Smiles takes listeners on a rollercoaster journey of communication product assessments. She points out design features created to improve the lives of seniors. Question is does J agree. Will any of the items help a dementia/ALZ sufferer like Zetty?
J Smiles leans into her product design and engineering expertise to dive deep into the market --- putting Zetty first, she finds a solution in the oddest place.
###
Tune-in every Monday for Parenting UP! "LIVE video Caregiving Conversation" on Getvokl, @ 9p EST USA:
https://getvokl.com/channel/parenting-up
Subscribe to Parenting Up! Email List:
https://b4db2913.sibforms.com/serve/MUIEAFb7W1pjVP8P4JIrkBHRXOfRw5WmI0diWuV5VYbvytnea2JSVYv6EBwSGk9h_cPs_94Gz2EXg5v69ExKMcSs692SELz4zWoLERp99gNEiaZx8xzQ4xPVZ_6WLRKBofH0PFlsW3V48LQRegv5ybsLstpm14rY8fWyOAM0FhX9Qynnb-aPtwpIRYEMyLK55IcwLbSl2SvsPy8x
Jitterbug Cell Phone for Seniors:
https://www.jitterbugdirect.com
Gizmo GPS Watch for Kids:
https://www.bestbuy.com/site/reviews/verizon-gizmowatch-smartwatch-verizon-wireless-black-with-blue-band/6300212
"Alzheimer's is heavy but we ain't gotta be!"
IG: https://www.instagram.com/parentingup
FB: https://www.facebook.com/parentingup
YT: https://www.youtube.com/channel/UCDGFb1t2RC_m1yMnFJ2T4jw
Patreon: https://patreon.com/jsmilesstudios
TEXT 'PODCAST" to +1 404 737 1449 - to give J topic ideas, feedback, say hi!
Be sure to leave us a review!
Parenting UP! Caregiving adventures with comedian J Smiles - First time broke me, but now...
Transcript
It was a Sunday morning, we were getting ready for church. Okay, back up caveat, not really, really Morning Morning probably more like midday. We don't do the early morning service in this family. Zetty's Alzheimer's was mild, leaning into moderate. She could still dress herself and do a decent job toileting. I was going to take my shower. I said, "Zetty, wash your face, brush your teeth." She said "okay, baby. I love you, JG." I said "okay, Zetty
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