Every Time This Baker Eats, She Risks Intense Abdominal Pain

01/29/25 • 68 min

Danni Hertel (aka foodie_with_da_booty) has turned her passion for baking into a full time career. She is known for putting a fresh spin on classic treats. Her recipes have been featured in the Houston Chronicle, she has worked with dozens of celebrities and she has even won Best Holiday Cookie for the Houston area in 2021. While she enjoys bringing tasty treats to the masses, behind the scenes not everything is so sweet. For almost 5 years she has been dealing with intense abdominal pain, which is set off almost every time she eats.

Danni has been through every test her doctors can think of, but her pain remains a mystery. She experiences early satiety (getting full quickly when eating), bloating, nausea and sharp shooting pains that often leave her curled up in agony. This condition seems to be flared not only by eating, but by external stress and anxiety. Doctors often don’t take her complaints seriously, blame it on anxiety, or even on the fact that she is a woman. She says, “A young woman walking into a hospital or ER complaining of stomach pains, the first thing they always think of, oh, it’s your cycle, you’re pregnant ... and so I’ve been tested for pregnancy a million times because that’s what they think it is.”

In this episode of the Major Pain podcast, Danni describes her quest to diagnose her medical mystery. She shares the mental toll her journey has taken, including the development of an avoidant eating disorder. Since she experiences pain so often after eating, she struggles to eat at all. She tells us about the tests she has undergone, the potential diagnoses her doctors have discussed and the immense impact her symptoms have had on her life. Even though this situation has been extremely difficult, it has also prompted intense personal growth. She shares the things she’s learned, the ways she’s changed and how this challenge has helped her become a better person.

After hearing Danni’s story, please reach out to [email protected] if you have any ideas of what might be causing her symptoms.

Connect with Danni on her website: https://www.foodiewithdabooty.com/

PlayWatch the episode on YouTube, or listen on your favorite podcast platform.

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After hearing Danni’s story, please reach out to [email protected] if you have any ideas of what might be causing her symptoms.

Connect with Danni on her website: https://www.foodiewithdabooty.com/

PlayWatch the episode on YouTube, or listen on your favorite podcast platform.

AFFILIATE LINKS
RARE PATIENT VOICE: https://rarepatientvoice.com/MajorPainPodcast
AMAZON SHOP: https://www.amazon.com/shop/majorpainpodcast
NEURAHEALTH: https://www.neurahealth.co/majorpain

Previous Episode

Tayler’s EDS was Screaming for Attention, But Doctors Ignored It

Looking back through the history of her medical challenges, it becomes painfully obvious that Tayler was born with the connective tissue disease EDS (Ehlers-Danlos Syndrome). Unfortunately, the lack of quality healthcare in her youth prevented this diagnosis for many years. She struggled physically throughout childhood, often being accused of laziness or being unwilling to participate, when in fact physical activity was more difficult, painful and dangerous for her than for her peers. Medical challenges often made her stand out, like her time spent in a back brace for scoliosis or her runaway heart rate in health class that led to a POTS diagnosis (postural orthostatic tachycardia syndrome) at 15 years old. Her EDS was constantly manifesting, screaming to be acknowledged, but doctor after doctor refused to take Tayler’s complaints seriously.

In this episode of the Major Pain podcast Tayler shares her remarkable health journey with us, eventually coalescing around her EDS diagnosis. The tumultuous road she has traveled includes many unexpected diagnostic detours, like septic arthritis, congenital muscular torticollis, visceroptosis, MALS and more, all conditions she teaches us about during this conversation. In the past year her GI issues have necessitated transitioning to an ostomy bag, and the ileostomy surgery led to unexpected complications that she will also share. Tayler found a creative outlet in crafting custom ostomy bags (found on her Etsy store). Since her ostomy bag gave her a second chance at living more fully, she likes to craft these bags out of second-hand materials found at thrift stores. Her experiences have given her a passion for helping others, working as a sign language interpreter and disability advocate.

Check out Tayler’s amazing projects or connect with her online: https://linktr.ee/distaaybled

PlayWatch the episode on YouTube, or listen on your favorite podcast platform.

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RARE PATIENT VOICE: https://rarepatientvoice.com/MajorPainPodcast
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NEURAHEALTH: https://www.neurahealth.co/majorpain

Next Episode

Premature Birth at 24 Weeks: Preeti Discusses The Lifelong Impact

The normal gestation period for birth is 40 weeks, and anything under 37 weeks is considered premature or preterm birth. Preeti experienced a premature birth at 24 weeks in 1989, weighing only 2 pounds, an astonishingly early birth that she feels incredibly lucky to have survived. Premature birth can impact health in a variety of ways over the course of someone’s life, including neurodevelopmental challenges, cardiovascular disease, congestive heart failure, high blood pressure, chronic kidney disease and more. These impacts can present throughout the course of someone’s lifespan, often unpredictably.

In this episode of the Major Pain podcast, Preeti discusses not only her personal history with preterm birth, but also the wide-ranging spectrum of how premature birth can impact someone’s life. She also shares the incredible steps that were taken to keep her alive at birth in 1989. So far, the majority of Preeti’s challenges have been neurodevelopmental. She lives with ADHD and anxiety, as well as mild issues with executive functioning, visual-spatial learning and focusing. Luckily she has not experienced any issues with her organs so far, but remains constantly aware that there is potential for these issues to develop at any point in her life. As an adult she has made it her mission to educate other people about premature birth, to help both patients and their parents learn about how their lives may be impacted.

Preeti has assembled a collection of research papers for anyone interested in learning more about premature birth. You can find them here: https://drive.google.com/drive/folders/1HfLIOUepjME6GX7UJHlH3PxUt_9gHux_?usp=sharing

She also recommends the following resources:

https://www.frontiersin.org/articles/10.3389/fped.2023.1213243/full#B16

https://adultpreemies.com/resources/

PlayWatch the episode on YouTube, or listen on your favorite podcast platform.