Log in

goodpods headphones icon

To access all our features

Open the Goodpods app
Close icon
headphones
Long COVID Real Talk Podcast

Long COVID Real Talk Podcast

Katherine Marie

* Discusses how Long COVID affects the daily lives of the millions of people worldwide. * For patients (and their friends/family) with: * Long COVID/Post Acute Sequelae of COVID-19 (PASC) * Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) * Postural Orthostatic Tachycardia Syndrome (POTS) & Dysautonomia * Post-Exertional Malaise (PEM) Listen to episodes here --> www.longcovidrealtalk.com Email: [email protected]
Share icon

All episodes

Best episodes

Seasons

Top 10 Long COVID Real Talk Podcast Episodes

Goodpods has curated a list of the 10 best Long COVID Real Talk Podcast episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to Long COVID Real Talk Podcast for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite Long COVID Real Talk Podcast episode by adding your comments to the episode page.

Long COVID Real Talk Podcast - Season 2, Episode 7: How to Fortify Your Boundaries
play

06/25/24 • 21 min

What to do if people give you a hard time when you try to set boundaries, and how to set boundaries with particularly challenging people. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)
bookmark
plus icon
share episode

S4 E19: "The Emotional Toll of Medical Appointments" + Bonus content: My Follow-Up Chronic Fatigue Clinic Appointment

Keywords: Long COVID, chronic fatigue, medical appointments, medication management, brain fog, patient experience

Summary: In this episode of Long COVID Real Talk, Katherine Marie shares her experiences during a recent chronic fatigue clinic appointment. She discusses the challenges of communicating her symptoms, the emotional toll of medical appointments, and the adjustments made to her medication regimen. Katherine emphasizes the importance of understanding and support from healthcare providers, as well as the need for patients to advocate for themselves in managing their health.

Takeaways:

  • The emotional toll of medical appointments can be significant.
  • Communication challenges can arise during medical visits.
  • It's important for patients to feel understood by their doctors.
  • Medication adjustments can be a difficult process.
  • Chronic fatigue clinics are not widely available to everyone.
  • Patients should advocate for their needs during appointments.
  • Brain fog can impact the ability to communicate effectively.
  • Follow-up appointments often lack sufficient time for discussion.
  • Support from healthcare providers is crucial for patient well-being.
  • Regular updates on medication can help manage symptoms effectively.

Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey!

You can:

Email: [email protected]

Google Voice/Text: 1-650-382-2217

YouTube: @LongCovidRealTalkPodcast

Facebook Group: https://www.facebook.com/groups/418306020831350

Instagram: longcovid.realtalk

Threads: longcovid.realtalk

Twitter: @LCRealTalk

Tik Tok: @katherinemarie974

Pinterest: @longcovidrealtalk

Bluesky: @longcovidrealtalk.bsky.social

Snapchat: @lcrealtalk

Discord: katherinemarielongcovidrealtalk

Discord group: https://discord.gg/aNbKfPHf

DISCLAIMER:

Last updated January 16, 2025

The information provided by Long COVID Real Talk Podcast ("we," "us," or "our") on http://www.longcovidrealtalk.com (the "Site") is for general informational purposes only. All information on the Site is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . UNDER NO CIRCUMSTANCE SHALL WE HAVE ANY LIABILITY TO YOU FOR ANY LOSS OR DAMAGE OF ANY KIND INCURRED AS A RESULT OF THE USE OF THE SITE OR RELIANCE ON ANY INFORMATION PROVIDED ON THE SITE . YOUR USE OF THE SITE AND YOUR RELIANCE ON ANY INFORMATION ON THE SITE IS SOLELY AT YOUR OWN RISK.

The Site cannot and does not contain medical/health advice. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical/health advice. THE USE OR RELIANCE OF ANY INFORMATION CONTAINED ON THE SITE IS SOLELY AT YOUR OWN RISK.

bookmark
plus icon
share episode

S4E25: **BIPOC Series** "Unprecedented Doesn't Mean Impossible" (w/ Cynthia Adinig)

How you can reach Cynthia:

Email: [email protected]

IG: @cynthiaadinig

Website: https://www.bipocequityagency.com/

Book: DEI Delusion: https://a.co/d/97VULjY

Keywords: Long COVID, advocacy, healthcare, legislation, domestic violence, patient engagement, AI in healthcare, community support, systemic barriers, research innovations, patient-centered research, diversity equity inclusion, AI in healthcare, advocacy, healthcare equity, chronic illness, Long COVID, patient support, healthcare reform, institutional accountability, BIPOC

Summary: In this episode of Long Covid Real Talk, Katherine Marie interviews Cynthia Adinig, a prominent advocate for Long COVID patients. Cynthia shares her personal journey from being denied care to becoming a leading voice in legislative advocacy. She discusses the systemic barriers faced by patients, the importance of community support, and her innovative work using AI to improve healthcare outcomes. Cynthia also opens up about her personal struggles, including domestic violence and the challenges of navigating the healthcare system. In this conversation, Cynthia Adinig discusses her innovative approach to creating a patient-centered research framework that emphasizes diversity, equity, and inclusion without explicitly using those terms. She shares her strategies for stealthily implementing these frameworks in institutions, the development of tools to assess institutional equity, and the integration of AI in groundbreaking research. Cynthia also highlights her commitment to patient advocacy, accountability in healthcare, and her dedication to supporting patients in need, emphasizing the importance of accessibility and the refusal to let financial barriers hinder patient care.

Takeaways:

  • ​Cynthia's advocacy began after being denied care in 2020.
  • ​Cynthia has faced significant personal challenges while advocating.
  • ​The healthcare system often fails patients with chronic conditions.
  • ​AI can play a crucial role in advancing Long COVID research.
  • ​Community support is vital for those facing chronic illness.
  • ​Hope and resilience are essential in the fight for change.
  • ​Cynthia is developing tools to assess institutional equity.
  • ​Advocacy for patients is a core part of Cynthia's mission.
  • ​Cynthia emphasizes the importance of accessibility in healthcare.
  • ​She refuses to let financial barriers prevent patient support.
  • ​She is committed to helping patients navigate the healthcare system.

Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey!

You can:

Email: [email protected]

Google Voice/Text: 1-650-382-2217

YouTube: @LongCovidRealTalkPodcast

Facebook Group: https://www.facebook.com/groups/418306020831350

Instagram: longcovid.realtalk

Threads: longcovid.realtalk

Twitter: @LCRealTalk

Tik Tok: @katherinemarie974

Pinterest: @longcovidrealtalk

Bluesky: @longcovidrealtalk.bsky.social

Snapchat: @lcrealtalk

Discord: katherinemarielongcovidrealtalk

Discord group: https://discord.gg/aNbKfPHf

DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site .

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

bookmark
plus icon
share episode
Long COVID Real Talk Podcast - Season 2, Episode 10: Role Shame

Season 2, Episode 10: Role Shame

Long COVID Real Talk Podcast

play

07/05/24 • 11 min

How our learned roles can contribute to feelings of shame when recovering from Long Covid. Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350 Email: [email protected] Phone/Text: 1-650-382-2217 (for VM < 1 minute use Spotify voice messaging)
bookmark
plus icon
share episode
Long COVID Real Talk Podcast - Season 2, Episode 23: How To See A Movie With Long Covid
play

08/16/24 • 9 min

Recommendations for how to see a movie when you have Long Covid— what I wish I had done!

Please reach out, say hey, and tell me what you think!

Email: [email protected]

bookmark
plus icon
share episode
Long COVID Real Talk Podcast - S4 E9: Escape to New Orleans

S4 E9: Escape to New Orleans

Long COVID Real Talk Podcast

play

12/20/24 • 13 min

S4 E9: Escape to New Orleans

Current Prescribed medications:

Psychotropic meds (for anxiety, depression and ADHD)

Abilify (for chronic fatigue/Long Covid)

Singular (for Long Covid/mast cell stabilization)

Low Dose Naltrexone (for Long Covid)

Valtrex (for Long Covid)

Nifedipine (for dysautonomia/blood pressure)

Carvediol (for dysautonomia/elevated heart rate)

Pepcid (allergies/Long Covid)

Zyrtec (allergies/Long Covid)

Metformin (regulate blood glucose - a study showed people on Metformin were less likely to develop Long COVID so I am on it in case I get COVID again, to decrease the risk of having worse Long COVID)

Please subscribe, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟

Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey! You can email: [email protected]

Google Voice/Text: 1-650-382-2217

DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. We are not responsible for any losses, damages or liabilities that may arise from the use of this podcast. This podcast is not intended to replace professional medical advice. The views expressed in this podcast may not be those of the host or the management.

bookmark
plus icon
share episode
Long COVID Real Talk Podcast - Season 3, Episode 24: How To Brush Your Teeth With Long COVID
play

11/15/24 • 8 min

Season 3, Episode 24: How To Brush Your Teeth With Long COVID

Discusses two recommendations from my dental hygienist and dentist to help people with Long COVID perform dental care/oral hygiene when symptomatic.

  1. ​Electric toothbrush

More expensive than regular toothbrushes but

Ideal for us when our arms are tired/aching and it is

hard to move our arms around.

I think of it as an investment to avoid having to pay

for fillings, etc.

I have an Oral B iO toothbrush but any electric toothbrush will do

  1. ​ OraCare Mouthwash:

You have to get it from your dentist

It kills bacteria, viruses, and fungi and breaks

down Biofilm

It is recommended for people undergoing

chemotherapy who are too weak to perform oral/

dental hygiene.

$45 per box of two 16 oz bottles

pump 3 pumps from each bottle, allow it to mix/

mingle for 30 seconds, then swish for 30-60

seconds and spit

website: https://www.oracareproducts.com/oracarehealthrinse.html

ALSO: this was not mentioned in the episode but if I am tired I will sit in a chair or on the bathroom floor while performing oral hygiene.

Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟

Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Google Voice/Text: 1-650-382-2217

DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

bookmark
plus icon
share episode
Long COVID Real Talk Podcast - S5E3: "When It's A Struggle Just To Exist"

S5E3: "When It's A Struggle Just To Exist"

Long COVID Real Talk Podcast

play

04/22/25 • 10 min

S5E3: "When It's A Struggle Just To Exist"

Keywords: Long COVID, fatigue, emotional health, mental health, hope, resilience, chronic illness, motherhood, coping strategies, personal experiences

Summary: In this episode, Katherine Marie shares her personal struggles with long COVID, focusing on the emotional and cognitive challenges she faces daily. She discusses feelings of hopelessness, fatigue, and the burden of illness on her identity and relationships. Despite these challenges, she emphasizes the importance of hope and connection, reminding listeners that they are not alone in their struggles.

Takeaways:

  • I usually don't have trouble sleeping, but tonight I do.
  • It affects your mind and how hopeless you feel.
  • I feel ashamed that I'm not working.
  • Just existing was almost painful.
  • It's hard to think of words that you want to say.
  • I keep thinking to myself that I'm gonna get better.
  • There's no one way that we know works for every person with long COVID.
  • I worry that my daughter and my husband will resent me.
  • You're not alone and not all the nights are gonna be bad.
  • I really miss myself.

Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey!

You can:

Email: [email protected]

Google Voice/Text: 1-650-382-2217

YouTube: @LongCovidRealTalkPodcast

Facebook Group: https://www.facebook.com/groups/418306020831350

Instagram: longcovid.realtalk

Threads: longcovid.realtalk

Twitter: @LCRealTalk

Tik Tok: @katherinemarie974

Pinterest: @longcovidrealtalk

Bluesky: @longcovidrealtalk.bsky.social

Snapchat: @lcrealtalk

Discord: katherinemarielongcovidrealtalk

Discord group: https://discord.gg/aNbKfPHf

DISCLAIMER:

The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site .

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.

bookmark
plus icon
share episode
Long COVID Real Talk Podcast - S4 E16: "Listen To Your Body" (w/ Carrie)

S4 E16: "Listen To Your Body" (w/ Carrie)

Long COVID Real Talk Podcast

play

01/28/25 • 24 min

S4 E16: “Listen To Your Body” (w/ Carrie)

Keywords: Long COVID, functional nutrition, health journey, dietary recommendations, liver health, holistic health, nutritionist, ME-CFS, wellness tips, health coaching

Summary: In this episode of Long Covid Real Talk, Katherine Marie speaks with Carrie Bailey, a functional nutritionist who shares her personal journey with ME-CFS. They discuss the differences between functional and conventional nutrition, the importance of understanding individual health histories, and practical dietary recommendations for those suffering from long COVID. Carrie emphasizes the significance of whole foods, liver health, and listening to one's body as key components in recovery. She also offers insights into common dietary mistakes and provides resources for listeners seeking to improve their health.

Connect with Carrie:

https://carriebaileyfunctionalnutritionist.com

YouTube: @carriebaileynutritionist

Free gift: https://longcovidrecoveryguide.com

Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thank you so much for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey!

You can:

Email: [email protected]

Google Voice/Text: 1-650-382-2217

YouTube: @LongCovidRealTalkPodcast

Facebook Group: https://www.facebook.com/groups/418306020831350

Instagram: longcovid.realtalk

Threads: longcovid.realtalk

Twitter: @LCRealTalk

Tik Tok: @katherinemarie974

Pinterest: @longcovidrealtalk

Bluesky: @longcovidrealtalk.bsky.social

Snapchat: @lcrealtalk

Discord: katherinemarielongcovidrealtalk

Discord group: https://discord.gg/aNbKfPHf

DISCLAIMER:

Last updated January 16, 2025

The information provided by Long COVID Real Talk Podcast ("we," "us," or "our") on http://www.longcovidrealtalk.com (the "Site") is for general informational purposes only. All information on the Site is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site . UNDER NO CIRCUMSTANCE SHALL WE HAVE ANY LIABILITY TO YOU FOR ANY LOSS OR DAMAGE OF ANY KIND INCURRED AS A RESULT OF THE USE OF THE SITE OR RELIANCE ON ANY INFORMATION PROVIDED ON THE SITE . YOUR USE OF THE SITE AND YOUR RELIANCE ON ANY INFORMATION ON THE SITE IS SOLELY AT YOUR OWN RISK.

The Site may contain (or you may be sent through the Site to links to other websites or content belonging to or originating from third parties or links to websites and features in banners or other advertising. Such external links are not investigated, monitored, or checked for accuracy, adequacy, validity, reliability, availability, or completeness by us. WE DO NOT WARRANT, ENDORSE, GUARANTEE, OR ASSUME RESPONSIBILITY FOR THE ACCURACY OR RELIABILITY OF ANY INFORMATION OFFERED BY THIRD-PARTY WEBSITES LINKED THROUGH THE SITE OR ANY WEBSITE OR FEATURE LINKED IN ANY BANNER OR OTHER ADVERTISING. WE WILL NOT BE A PARTY TO OR IN ANY WAY BE RESPONSIBLE FOR MONITORING AY TRANSACTION BETWEEN YOU AND THIRD-PARTY PROVIDERS OF PRODUCTS OR SERVICES.

The Site cannot and does not contain medical/health advice. The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals. We do not provide any kind of medical/health advice. THE USE OR RELIANCE OF ANY INFORMATION CONTAINED ON THE SITE IS SOLELY AT YOUR OWN RISK.

bookmark
plus icon
share episode
Long COVID Real Talk Podcast - Season 3, Episode 23: “It Was Hell & It Is Hell” (guest: Lydia)
play

11/12/24 • 30 min

Season 3, Episode 23: “It Was Hell & It Is Hell” (guest: Lydia)

Listen to Lydia’s story of going from working full time and being a homeowner to becoming homeless and everything in between. Grateful to hear her powerful story!

Please rate, review, share, and leave a 5 star review if you liked today’s episode to help other people with Long Covid find this podcast! Thank you so much for listening! 🌟🌟🌟🌟🌟

Long Covid Real Talk Facebook group: https://www.facebook.com/groups/418306020831350

Email: [email protected]

Google Voice/Text: 1-650-382-2217

DISCLAIMER: This podcast is for informational and entertainment purposes only and should not be considered medical advice. This podcast is not intended to replace professional medical advice.

bookmark
plus icon
share episode

Show more best episodes

Toggle view more icon

FAQ

How many episodes does Long COVID Real Talk Podcast have?

Long COVID Real Talk Podcast currently has 112 episodes available.

What topics does Long COVID Real Talk Podcast cover?

The podcast is about Health & Fitness and Podcasts.

What is the most popular episode on Long COVID Real Talk Podcast?

The episode title 'BONUS EPISODE #3: My Chronic Fatigue Clinic Appointment' is the most popular.

What is the average episode length on Long COVID Real Talk Podcast?

The average episode length on Long COVID Real Talk Podcast is 18 minutes.

How often are episodes of Long COVID Real Talk Podcast released?

Episodes of Long COVID Real Talk Podcast are typically released every 3 days.

When was the first episode of Long COVID Real Talk Podcast?

The first episode of Long COVID Real Talk Podcast was released on Mar 20, 2024.

Show more FAQ

Toggle view more icon

Comments