S5E3: "When It's A Struggle Just To Exist"

S5E2: **BIPOC Series** "Don't Lose Hope, People!" (w Kiki)

How you can reach Kiki:

Threads: @alchemythroughsisterhood

YouTube: https://youtu.be/KMtTrnC5m90

Keywords: Long COVID, personal story, health journey, coping strategies, mental health, recovery, lifestyle changes, healthcare, symptoms, advocacy

Summary: In this episode of the Long COVID Real Talk podcast, Kiki shares her personal journey with long COVID, detailing her life before the illness, the onset of symptoms, and the challenges she faced in navigating the healthcare system. She discusses the significant lifestyle changes she made to cope with her symptoms and emphasizes the importance of self-advocacy and hope in the recovery process. Kiki's story serves as an inspiration for others facing similar challenges, highlighting the resilience and adaptability required to manage long COVID.

Takeaways:

• Kiki felt she was thriving before long COVID, with a strong intellectual and physical capacity.
• The onset of COVID-19 was initially mild, but the second infection led to long COVID symptoms.
• Recognizing the gradual decline in her health was challenging, as symptoms worsened over time.
• Kiki had to navigate a complex healthcare system to receive proper care and diagnosis.
• Lifestyle changes, including pacing and self-care, were crucial in managing her symptoms.
• Kiki emphasizes the importance of rest and reducing cognitive load to aid recovery.
• She found value in herbal teas and mindfulness practices to help calm her nervous system.
• Kiki advocates for self-advocacy in healthcare, sharing her experiences with doctors.
• Despite the challenges, Kiki remains hopeful about recovery and the future of long COVID research.
• Kiki's journey highlights the importance of community and support in managing chronic illness.

Don’t forget to subscribe, share, and leave a 5 star review if you liked today’s episode! Thanks for listening! 🌟🌟🌟🌟🌟

Listen to our podcast here: www.longcovidrealtalk.com

or here: https://open.spotify.com/show/5GXxBfoO9JImpjYKegNfdS

If you would like to tell your story on the podcast or have any questions or comments — or just want to say hey!

You can:

Email: [email protected]

Google Voice/Text: 1-650-382-2217

YouTube: @LongCovidRealTalkPodcast

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Threads: longcovid.realtalk

Twitter: @LCRealTalk

Tik Tok: @katherinemarie974

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Bluesky: @longcovidrealtalk.bsky.social

Snapchat: @lcrealtalk

Discord: katherinemarielongcovidrealtalk

Discord group: https://discord.gg/aNbKfPHf

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The information provided by Long COVID Real Talk Podcast is for general informational purposes only. All information is provided in good faith, however we make no representation or warranty of any kind, express or implied, regarding the accuracy, adequacy, validity, reliability, or completeness of any information on the Site .

The medical/health information is provided for general informational and educational purposes only and is not a substitute for professional advice. Accordingly, before taking any actions based upon such information, we encourage you to consult with the appropriate professionals.