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Living with Parkinson’s - Grieving the Life You Thought You’d Have

Grieving the Life You Thought You’d Have

04/23/25 • 16 min

Living with Parkinson’s

Send Bryce a text

When you’re first diagnosed with Parkinson’s, no one tells you that you’ll grieve a life you’re still living. But you do. You grieve the version of yourself you thought you’d be. The future you pictured. The plans you made.

In this deeply personal episode, I talk about the other kind of grief—the kind that sneaks in slowly as you start letting go of pieces of your independence, your identity, your rhythm. And I’ll tell you the truth I wish someone had told me years ago.

💬 I’ll also share:

  • The version of me I had to say goodbye to
  • What I gained once I let go
  • The mindset shift that helped me stop chasing who I was
  • And why grieving is a sign of love—not weakness

If this resonates, please share it with someone who’s quietly grieving too. And stick around to the end—I’ll tell you the one thing that helped me move forward when I thought I couldn’t.

⏱️ Chapter Timestamps

0:00 – Welcome Back + What No One Tells You at Diagnosis
1:30 – You’re Grieving a Life You’re Still Living
3:40 – What I Had to Let Go Of (That Version I Really Liked)
6:50 – Losing Identity, Roles & Multitasking Abilities
9:45 – “But You Look Fine!” – Grief That’s Invisible
11:30 – Letting Go Made Room for Something New
13:15 – This Podcast Wasn’t My Plan... Now It’s My Purpose
15:05 – What Helped Me Most (Spoiler: It Wasn’t a Pill)
17:20 – You’re Not Weak—You’re Grieving Because You Loved That Life
19:45 – Still Dreaming: How I Found Love Again at 50
22:30 – Final Words for Anyone in Quiet Grief

👇 If you’ve grieved the life you thought you’d have... you’re not alone.👇
Let’s talk about it 👇

💬 What’s something you’ve had to let go of—and what have you discovered in the process?
Your story might be exactly what someone else needs to hear. I read and reply to every single comment.

🔔 Subscribe for more honest, real conversations: https://bit.ly/3262ymG
🎧 Listen to all episodes here: https://feeds.buzzsprout.com/2466483.rss
▶️ Full podcast playlist: https://bit.ly/4h27D3y

Support the show

Stay Connected:

YouTube: Youtube.com/@DoingLifeToday

Instagram: @DoingLifeToday

TikTok: @DoingLifeToday

General Inquiries: [email protected]

Booking Requests: [email protected]

Sponsorship Inquiries: [email protected]

Disclaimer:

The information shared in this podcast is based on personal experiences and opinions. I am not a medical professional, and this content should not be considered medical advice. Always consult with your doctor or a qualified healthcare provider before making any changes to your treatment or lifestyle.

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Send Bryce a text

When you’re first diagnosed with Parkinson’s, no one tells you that you’ll grieve a life you’re still living. But you do. You grieve the version of yourself you thought you’d be. The future you pictured. The plans you made.

In this deeply personal episode, I talk about the other kind of grief—the kind that sneaks in slowly as you start letting go of pieces of your independence, your identity, your rhythm. And I’ll tell you the truth I wish someone had told me years ago.

💬 I’ll also share:

  • The version of me I had to say goodbye to
  • What I gained once I let go
  • The mindset shift that helped me stop chasing who I was
  • And why grieving is a sign of love—not weakness

If this resonates, please share it with someone who’s quietly grieving too. And stick around to the end—I’ll tell you the one thing that helped me move forward when I thought I couldn’t.

⏱️ Chapter Timestamps

0:00 – Welcome Back + What No One Tells You at Diagnosis
1:30 – You’re Grieving a Life You’re Still Living
3:40 – What I Had to Let Go Of (That Version I Really Liked)
6:50 – Losing Identity, Roles & Multitasking Abilities
9:45 – “But You Look Fine!” – Grief That’s Invisible
11:30 – Letting Go Made Room for Something New
13:15 – This Podcast Wasn’t My Plan... Now It’s My Purpose
15:05 – What Helped Me Most (Spoiler: It Wasn’t a Pill)
17:20 – You’re Not Weak—You’re Grieving Because You Loved That Life
19:45 – Still Dreaming: How I Found Love Again at 50
22:30 – Final Words for Anyone in Quiet Grief

👇 If you’ve grieved the life you thought you’d have... you’re not alone.👇
Let’s talk about it 👇

💬 What’s something you’ve had to let go of—and what have you discovered in the process?
Your story might be exactly what someone else needs to hear. I read and reply to every single comment.

🔔 Subscribe for more honest, real conversations: https://bit.ly/3262ymG
🎧 Listen to all episodes here: https://feeds.buzzsprout.com/2466483.rss
▶️ Full podcast playlist: https://bit.ly/4h27D3y

Support the show

Stay Connected:

YouTube: Youtube.com/@DoingLifeToday

Instagram: @DoingLifeToday

TikTok: @DoingLifeToday

General Inquiries: [email protected]

Booking Requests: [email protected]

Sponsorship Inquiries: [email protected]

Disclaimer:

The information shared in this podcast is based on personal experiences and opinions. I am not a medical professional, and this content should not be considered medical advice. Always consult with your doctor or a qualified healthcare provider before making any changes to your treatment or lifestyle.

Previous Episode

undefined - How to Build the BEST Parkinson’s Healthcare Team

How to Build the BEST Parkinson’s Healthcare Team

Send Bryce a text

In this episode of Living with Parkinson’s: The Good, The Bad, and The Reality, Bryce breaks down how to build a Parkinson’s healthcare team that actually supports you. He shares lessons from his 15+ year journey navigating doctors, specialists, therapists, and the occasional “you look fine” comment.

From your neurologist to your pharmacist—and even the front desk person who actually listens—Bryce explains who matters, why they matter, and how to advocate for yourself when you feel dismissed or overwhelmed. If you’ve ever felt like you’re managing Parkinson’s alone or unsure who should be in your corner, this is the episode that puts the power back in your hands.

What Listeners Are Saying:

“This helped me realize I need a team—not just a doctor.”
“Thank you for saying what so many of us are afraid to ask.”
“I didn’t know where to start. This gave me a roadmap.”

🎧 Listen to all episodes:
https://podcast.dolifetoday.com

📺 Watch the video series on YouTube:
https://bit.ly/4h27D3y

🔔 Subscribe & follow:
YouTube: https://www.youtube.com/@doinglifetoday
Instagram: @doinglifetoday

📌 Chapter Timestamps:
00:00 – Intro
01:30 – Why you need more than just a neurologist
03:50 – The power of a great movement disorder specialist
06:10 – Building trust with your pharmacist
09:15 – Speech, physio & occupational therapy: when and why
13:30 – Mental health matters: don’t skip this part
17:00 – What Bryce’s team looks like today
20:15 – Questions to ask your doctor (that they should be able to answer)
24:00 – Final thoughts: You’re the captain of the team

💥 Want more than just episodes?
Join The Inner Circle for exclusive perks:
• Monthly live Zoom hangouts with Bryce
• Early access & bonus content
• Priority replies + behind-the-scenes moments

⚡ Limited availability – join now!
https://www.youtube.com/channel/UCovLIEXUM5XKfUk8c8vbQzw/join

Hashtags:
#ParkinsonsPodcast #ParkinsonsHealthcareTeam #LivingWithParkinsons #ParkinsonsSupport #ChronicIllnessAdvocacy #DoingLifeToday #ParkinsonsJourney #BrycePerry

Support the show

Stay Connected:

YouTube: Youtube.com/@DoingLifeToday

Instagram: @DoingLifeToday

TikTok: @DoingLifeToday

General Inquiries: [email protected]

Booking Requests: [email protected]

Sponsorship Inquiries: [email protected]

Disclaimer:

The information shared in this podcast is based on personal experiences and opinions. I am not a medical professional, and this content should not be considered medical advice. Always consult with your doctor or a qualified healthcare provider before making any changes to your treatment or lifestyle.

Living with Parkinson’s - Grieving the Life You Thought You’d Have

Transcript

You know what they don't tell you at time of diagnosis?

It's that you're gonna grieve this life that you're still living, but that's exactly what Parkinson's does and today I'm going to share the truth that what I wish I would have heard this way back when I first got diagnosed and Stick around to the end because I'm going to share the one thing that helped me more move forward when I thought that I couldn't Alright, well, welcome to th

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