15: "if you could just fill in this form"
09/26/24 • 21 min
The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply? I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about the moments of despair, the exhaustive paperwork, and the sheer emotional toll it took to apply for Personal Independence Payment (PIP) in the UK. But there's also light at the end of the tunnel—I'll recount the sense of empowerment and relief when I was finally granted PIP and my blue badge, both of which have been a game-changer in making my daily life more manageable.
This episode also shines a spotlight on the unsung heroes at the Citizens Advice Bureau. Their invaluable guidance and encouragement played a pivotal role in my successful reapplication for PIP. I'll also discuss the broader support systems, such as Employment Support Allowance and occupational health assessments, which have been essential in helping me feel validated in my daily struggles . My aim is to offer insight, solidarity, and a beacon of hope for anyone facing similar struggles, encouraging you to seek the support you rightly need and deserve.
Get full access to Life With Long Covid at paulianclarke.substack.com/subscribe
The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply? I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about the moments of despair, the exhaustive paperwork, and the sheer emotional toll it took to apply for Personal Independence Payment (PIP) in the UK. But there's also light at the end of the tunnel—I'll recount the sense of empowerment and relief when I was finally granted PIP and my blue badge, both of which have been a game-changer in making my daily life more manageable.
This episode also shines a spotlight on the unsung heroes at the Citizens Advice Bureau. Their invaluable guidance and encouragement played a pivotal role in my successful reapplication for PIP. I'll also discuss the broader support systems, such as Employment Support Allowance and occupational health assessments, which have been essential in helping me feel validated in my daily struggles . My aim is to offer insight, solidarity, and a beacon of hope for anyone facing similar struggles, encouraging you to seek the support you rightly need and deserve.
Get full access to Life With Long Covid at paulianclarke.substack.com/subscribe
Previous Episode
14: "You are needed at the hospital urgently"
What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episode, I share the raw realities of balancing my own health struggles while supporting a loved one in crisis. From the emotional and physical exhaustion to the spiritual toll it takes, I discuss the importance of pushing through and adapting, knowing that recovery is on the horizon.
Discover how my life took a turn for the better with the addition of a foldable mobility scooter. This three-wheeled e-folding explorer has been a game-changer, offering newfound independence and freedom. I'll explain how it has outperformed my traditional powered wheelchair, enabling me to navigate curbs and rough terrain easily. Plus, I share the joy of customising and using it, especially for those daunting hospital visits. We'll also reflect on the critical role of a robust support system, whether it's family, friends, or simply knowing you're not alone.
https://efoldi.com/index.html - I have the explorer model.
Get full access to Life With Long Covid at paulianclarke.substack.com/subscribe
Next Episode
16: "Are you still tired?"
Can long COVID turn your life upside down? For me, Paul, it certainly did. Join me as I recount my deeply personal and ongoing battle with long COVID, an invisible illness that has forced me to retire prematurely from my role as a vicar. I recorded this on my retirement day, at the age of 52.
Through the lens of my daily struggles with chronic fatigue, discover practical tips that have been pivotal in my symptom management. I discuss the critical role of antihistamines, the importance of pacing your life according to your energy levels, and the benefits of using mobility aids. Hear about strategies like alternating between rest and small tasks, which can help you maintain a sustainable rhythm. This episode is not just about my journey, but also aims to build a community of solidarity and understanding for everyone grappling with this condition. Tune in, and learn how sharing personal experiences can foster mutual support and resilience.
Get full access to Life With Long Covid at paulianclarke.substack.com/subscribe
Life with Long Covid - 15: "if you could just fill in this form"
Transcript
For many people . The COVID-19 pandemic has passed and is not giving much thought or news coverage ,
Speaker 1yet there's a growing number of people who have reported symptoms that have never left them .
Speaker 1Many of them have had these symptoms for years .
Speaker 1Th
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