Life with Long Covid

What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episode, I share the raw realities of balancing my own health struggles while supporting a loved one in crisis. From the emotional and physical exhaustion to the spiritual toll it takes, I discuss the importance of pushing through and adapting, knowing that recovery is on the horizon.
Discover how my life took a turn for the better with the addition of a foldable mobility scooter. This three-wheeled e-folding explorer has been a game-changer, offering newfound independence and freedom. I'll explain how it has outperformed my traditional powered wheelchair, enabling me to navigate curbs and rough terrain easily. Plus, I share the joy of customising and using it, especially for those daunting hospital visits. We'll also reflect on the critical role of a robust support system, whether it's family, friends, or simply knowing you're not alone.
https://efoldi.com/index.html - I have the explorer model.

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The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply? I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about the moments of despair, the exhaustive paperwork, and the sheer emotional toll it took to apply for Personal Independence Payment (PIP) in the UK. But there's also light at the end of the tunnel—I'll recount the sense of empowerment and relief when I was finally granted PIP and my blue badge, both of which have been a game-changer in making my daily life more manageable.
This episode also shines a spotlight on the unsung heroes at the Citizens Advice Bureau. Their invaluable guidance and encouragement played a pivotal role in my successful reapplication for PIP. I'll also discuss the broader support systems, such as Employment Support Allowance and occupational health assessments, which have been essential in helping me feel validated in my daily struggles . My aim is to offer insight, solidarity, and a beacon of hope for anyone facing similar struggles, encouraging you to seek the support you rightly need and deserve.

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In this episode, I talk about my experiences with various medical professionals and their reactions to my illness.
I recorded this whilst having a tired and emotional day. I thought about re-recording it, but in the end, I believe it is important that you hear me on the not-so-good days as well.
Let me know your experiences, email: [email protected], or message me here.

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I want this podcast to show the highs and lows of living with Long Covid. Today is a low, and I decided to record this short audio to try and describe it.
Reach out : [email protected]

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How do you maintain your sense of self when living with a chronic illness like long Covid? Join me, Paul Clarke and my wife Rachel, as we uncover the emotional landscapes and societal hurdles that come with my journey of ill health retirement. In our latest conversation, we confront the misconceptions and judgments that arise when trying to live fully while managing a chronic illness. Rachel and I share our honest experiences, from the sting of social media criticism to the struggle of balancing joy and reality.
We also read out two of your messages, which add to the conversation of how to live life with Long Covid.

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