Life with Long Covid
Paul Clarke
The Covid-19 pandemic is a distant memory for many people, and it is not given much news coverage. Yet there is a growing number of people who have reported that symptoms never left them after contracting the virus; many of them have had these symptoms for years.
The Office of National Statistics estimates that over 2 million Britons have Long COVID-19. You may have it or know somebody who is struggling with it. The number worldwide is unknown.
My name is Paul, and long Covid has debilitated me since January 2022. In this podcast, I share my journey and the things I have experienced along the way.
I aim not to give medical advice; I am not qualified. Instead, I want to share my experiences. I have been gaslit, ridiculed and dismissed for my symptoms, which has been a lonely place to be. Through this podcast, I want people to know they are not alone.
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Top 10 Life with Long Covid Episodes
Goodpods has curated a list of the 10 best Life with Long Covid episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to Life with Long Covid for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite Life with Long Covid episode by adding your comments to the episode page.
18: "You need to find your baseline"
Life with Long Covid
10/23/24 • 20 min
What happens when the world moves on, but your body doesn't? From the isolation of feeling misunderstood to the frustration of being dismissed by others, I share my personal journey of living with persistent symptoms. Whether you're personally affected, know someone who is, or simply wish to broaden your understanding, this episode offers an unfiltered glimpse into the daily reality of living with an illness many choose to ignore. Let this conversation be a reminder of the importance of compassion and support for those facing chronic health battles.
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13: "When will this end?"
Life with Long Covid
09/11/24 • 23 min
What happens when you feel like your life has been put on pause indefinitely? Join me, Paul, as I share my raw and personal journey through the relentless battle of long COVID. In the chapter, 'When Will This End?', I open up about the emotional turmoil and physical setbacks that have marked over two years of my life. From fleeting moments of hope to the crushing reality of isolation, listen to how this invisible illness has not only impacted me but also created a rift in my family's daily existence.
Finally, I offer a message of resilience and hope, reminding us all that feeling stuck is not permanent. Let's draw strength from one another and look forward to a future full of promise and connection.
If you are feeling alone and isolated, this episode is for you!
19: "You should be in bed"
Life with Long Covid
11/01/24 • 28 min
How do you maintain your sense of self when living with a chronic illness like long Covid? Join me, Paul Clarke and my wife Rachel, as we uncover the emotional landscapes and societal hurdles that come with my journey of ill health retirement. In our latest conversation, we confront the misconceptions and judgments that arise when trying to live fully while managing a chronic illness. Rachel and I share our honest experiences, from the sting of social media criticism to the struggle of balancing joy and reality.
We also read out two of your messages, which add to the conversation of how to live life with Long Covid.
20: "There is no such thing as Long Covid"
Life with Long Covid
11/08/24 • 22 min
In this episode, I try to describe what it feels like to feel isolated with long covid. If you have a chronic illness and sometimes feel alone, this one is for you!
Imagine feeling trapped in an invisible world, where the echoes of long COVID linger long after the rest of the world has seemingly moved on. That's been my reality since January 2022. I talk openly about the mixed bag of reactions I encounter—from those who offer empathy to sceptics who blame everything but the virus itself. Through this episode, I hope to reach others on this difficult journey, reminding them that they're not alone.
4: Sunday afternoon "Walk" & talk
Life with Long Covid
07/21/24 • 16 min
My plan was to do a short walk and record how I was feeling. In reality, it turned into a 'wheel' and talk with my wife, Rachel! Join us on a Sunday afternoon wheel/walk as we discuss my use of a wheelchair, people's perceptions of my illness and how Rachel has had to change her life.
3: "Everybody gets tired"
Life with Long Covid
07/18/24 • 22 min
Living with Long COVID means constantly feeling tired, but it is likely that other people won't understand. In this episode, I delve deeper into fatigue and some of the coping strategies I have developed along the way.
It would be great to hear from you if you have any tips or comments, email me:
[email protected]
For more information about the Visible App: https://www.makevisible.com/
2: "You look well"
Life with Long Covid
07/17/24 • 19 min
Long Covid is hard to understand at the best of times, so no wonder people do not know how to respond to our illness. In this episode, I talk about how I deal (or find it hard to deal) with comments on our disability.
Guest starring Maisie the Pomeranian, who barks at the wind in the background!
1: An Introduction
Life with Long Covid
07/14/24 • 20 min
In this episode, Paul introduces himself and the series.
5: "You just need to do some exercise"
Life with Long Covid
07/23/24 • 21 min
In this episode, I talk about my experiences with various medical professionals and their reactions to my illness.
I recorded this whilst having a tired and emotional day. I thought about re-recording it, but in the end, I believe it is important that you hear me on the not-so-good days as well.
Let me know your experiences, email: [email protected], or message me here.
21: "Do you need any help?"
Life with Long Covid
11/15/24 • 23 min
I find myself constantly being grumpy with people who just want to help, and equally grumpy with people who don't offer! It is this contradictory mindset that I explore in this episode which hides a deeper fear of being vulnerable. As I come to terms with my disabilities, the move from being carer to being cared for is hard.
As always, I offer you this latest episode in full recognition that I am a bit foggy brained today and my dog Maisie is barking at everything that moves!
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FAQ
How many episodes does Life with Long Covid have?
Life with Long Covid currently has 23 episodes available.
What topics does Life with Long Covid cover?
The podcast is about Lockdown, Covid, Health & Fitness, Covid19, Podcasts, Virus and Pandemic.
What is the most popular episode on Life with Long Covid?
The episode title '3: "Everybody gets tired"' is the most popular.
What is the average episode length on Life with Long Covid?
The average episode length on Life with Long Covid is 21 minutes.
How often are episodes of Life with Long Covid released?
Episodes of Life with Long Covid are typically released every 5 days.
When was the first episode of Life with Long Covid?
The first episode of Life with Long Covid was released on Jul 14, 2024.
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