14: "You are needed at the hospital urgently"
09/19/24 • 21 min
What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episode, I share the raw realities of balancing my own health struggles while supporting a loved one in crisis. From the emotional and physical exhaustion to the spiritual toll it takes, I discuss the importance of pushing through and adapting, knowing that recovery is on the horizon.
Discover how my life took a turn for the better with the addition of a foldable mobility scooter. This three-wheeled e-folding explorer has been a game-changer, offering newfound independence and freedom. I'll explain how it has outperformed my traditional powered wheelchair, enabling me to navigate curbs and rough terrain easily. Plus, I share the joy of customising and using it, especially for those daunting hospital visits. We'll also reflect on the critical role of a robust support system, whether it's family, friends, or simply knowing you're not alone.
https://efoldi.com/index.html - I have the explorer model.
Get full access to Life With Long Covid at paulianclarke.substack.com/subscribe
What happens when you're grappling with the relentless symptoms of long COVID and suddenly your daughter is hospitalized? In this heartfelt episode, I share the raw realities of balancing my own health struggles while supporting a loved one in crisis. From the emotional and physical exhaustion to the spiritual toll it takes, I discuss the importance of pushing through and adapting, knowing that recovery is on the horizon.
Discover how my life took a turn for the better with the addition of a foldable mobility scooter. This three-wheeled e-folding explorer has been a game-changer, offering newfound independence and freedom. I'll explain how it has outperformed my traditional powered wheelchair, enabling me to navigate curbs and rough terrain easily. Plus, I share the joy of customising and using it, especially for those daunting hospital visits. We'll also reflect on the critical role of a robust support system, whether it's family, friends, or simply knowing you're not alone.
https://efoldi.com/index.html - I have the explorer model.
Get full access to Life With Long Covid at paulianclarke.substack.com/subscribe
Previous Episode
13: "When will this end?"
What happens when you feel like your life has been put on pause indefinitely? Join me, Paul, as I share my raw and personal journey through the relentless battle of long COVID. In the chapter, 'When Will This End?', I open up about the emotional turmoil and physical setbacks that have marked over two years of my life. From fleeting moments of hope to the crushing reality of isolation, listen to how this invisible illness has not only impacted me but also created a rift in my family's daily existence.
Finally, I offer a message of resilience and hope, reminding us all that feeling stuck is not permanent. Let's draw strength from one another and look forward to a future full of promise and connection.
If you are feeling alone and isolated, this episode is for you!
Get full access to Life With Long Covid at paulianclarke.substack.com/subscribe
Next Episode
15: "if you could just fill in this form"
The UK Government has recently once again made it clear that the national welfare benefit budget needs to shrink. What does it feel like for somebody with a chronic illness to apply? I share my deeply personal and often frustrating journey through the maze of seeking validation and support for a condition that many misunderstand. You'll hear about the moments of despair, the exhaustive paperwork, and the sheer emotional toll it took to apply for Personal Independence Payment (PIP) in the UK. But there's also light at the end of the tunnel—I'll recount the sense of empowerment and relief when I was finally granted PIP and my blue badge, both of which have been a game-changer in making my daily life more manageable.
This episode also shines a spotlight on the unsung heroes at the Citizens Advice Bureau. Their invaluable guidance and encouragement played a pivotal role in my successful reapplication for PIP. I'll also discuss the broader support systems, such as Employment Support Allowance and occupational health assessments, which have been essential in helping me feel validated in my daily struggles . My aim is to offer insight, solidarity, and a beacon of hope for anyone facing similar struggles, encouraging you to seek the support you rightly need and deserve.
Get full access to Life With Long Covid at paulianclarke.substack.com/subscribe
Life with Long Covid - 14: "You are needed at the hospital urgently"
Transcript
For many people . The COVID-19 pandemic has passed and is not giving much thought or news coverage ,
Speaker 1yet there's a growing number of people who have reported symptoms that have never left them .
Speaker 1Many of them have had these symptoms for years .
Speaker 1Th
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