Learning from Naomi and living with a child with a life-limiting illness
12/06/19 • 35 min
Nicky joins Jenni and Nick to talk about caring for her daughter Naomi who was born with a degenerative and life-limiting condition and about her death at the age of 7. Nicky describes how they explained Naomi’s death and cremation to her brother.
As a fellow professional, Nicky tells Jenni how her experience of parenting Naomi has guided her to co-found the charity SLOW and how it has helped in the bereavement group work that they do together.
Angus Lawson Memorial Trust - http://www.almt.org/
SLOW Surviving the loss of your world - https://slowgroup.co.uk/
Rosie's Rainbow Fund - https://www.rosiesrainbowfund.co.uk/
Winston's Wish - https://www.winstonswish.org/
Cruse Bereavement Care - https://www.cruse.org.uk/
The Compassionate Friends - https://www.tcf.org.uk/
Hospice UK - https://www.hospiceuk.org/
Jenni Thomas website with further resources - http://www.jennithomas.com/
Hosted on Acast. See acast.com/privacy for more information.
Nicky joins Jenni and Nick to talk about caring for her daughter Naomi who was born with a degenerative and life-limiting condition and about her death at the age of 7. Nicky describes how they explained Naomi’s death and cremation to her brother.
As a fellow professional, Nicky tells Jenni how her experience of parenting Naomi has guided her to co-found the charity SLOW and how it has helped in the bereavement group work that they do together.
Angus Lawson Memorial Trust - http://www.almt.org/
SLOW Surviving the loss of your world - https://slowgroup.co.uk/
Rosie's Rainbow Fund - https://www.rosiesrainbowfund.co.uk/
Winston's Wish - https://www.winstonswish.org/
Cruse Bereavement Care - https://www.cruse.org.uk/
The Compassionate Friends - https://www.tcf.org.uk/
Hospice UK - https://www.hospiceuk.org/
Jenni Thomas website with further resources - http://www.jennithomas.com/
Hosted on Acast. See acast.com/privacy for more information.
Previous Episode
The death of a child
Jenni talks about the grief experienced when a child dies. From the different ways that partners can grieve to how trauma can affect grief, Jenni draws on her lifetime of experience to share what parents have said was important to them following the death of a child at any age.
Jenni describes how there is no right or wrong way to grieve. She explains that there are very different and varied ways in which people may behave after the death of a child, in particular that anxiety is often misunderstood and not recognised as a normal part of grieving.
Angus Lawson Memorial Trust - http://www.almt.org/
Daniel Spargo Mabbs Foundation - http://dsmfoundation.org.uk/
The Compassionate Friends - https://www.tcf.org.uk/
Cruse Bereavement Care - https://www.cruse.org.uk/
Winston's Wish - https://www.winstonswish.org/
Horatio’s Garden - https://www.horatiosgarden.org.uk/
Rosie’s Rainbow - https://www.rosiesrainbowfund.co.uk/
The Danger Age film - https://youtu.be/1JzmlUw49jA
David Trickey website - http://davidtrickey.com/resources
Nick Cave writing - https://www.theredhandfiles.com/
Nick Cave music - https://www.nickcave.com/
Palliative Care for Children and Families (book) - https://www.amazon.co.uk/dp/0230200028/ref=cm_sw_em_r_mt_dp_U_5Sr5DbS8JHZF0
Jenni Thomas website with further resources - http://www.jennithomas.com/
Hosted on Acast. See acast.com/privacy for more information.
Next Episode
Grieving the sudden unexplained death of Rosie
Jenni and Nick are joined by guests Nikki and Tom, the parents of 2-year-old Rosie, who talk about what happened when she died.
They talk to Jenni about their grief and caring for their bereaved son, following the sudden and unexplained death of his younger sister.
They discuss the value of the support they received professionally, from their family and about the charity that they have co-founded, SUDC.
Angus Lawson Memorial Trust - http://www.almt.org/
Sudden Unexplained Death in Childhood - https://sudc.org.uk/
Childhood Bereavement Network - http://www.childhoodbereavementnetwork.org.uk/
Winston's Wish - https://www.winstonswish.org/
The Compassionate Friends - https://www.tcf.org.uk/
Cruse Bereavement Care - https://www.cruse.org.uk/
Rosie’s Rainbow - https://www.rosiesrainbowfund.co.uk/
Jenni Thomas website with further resources - http://www.jennithomas.com/
Hosted on Acast. See acast.com/privacy for more information.
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