Purple Day Special Episode 2/2: Nicole Bateman chats with Sally Brighton from Young Epilepsy

03/26/24 • 28 min

In this special edition of "Conversations with a SEND Mum," host Nicole Bateman is joined by Sally Brighton, the Fundraising Director of the charity Young Epilepsy. Together, they share important insights, personal stories, and practical tips to raise awareness about epilepsy and celebrate Purple Day.

Episode Highlights:

Sally's Story: Sally bravely opens up about her journey with epilepsy, sharing her personal story of being diagnosed at the age of 34. She reflects on the challenges, misconceptions, and triumphs she has encountered along the way, offering hope and inspiration to listeners.
'Understand My Epilepsy' Campaign: Nicole and Sally delve into the 'Understand My Epilepsy' campaign launched by Young Epilepsy, aiming to increase awareness and understanding of epilepsy. They discuss the importance of education, empathy, and inclusivity in supporting individuals living with epilepsy and their families.
Celebrating Purple Day: Purple Day is an international effort dedicated to increasing awareness about epilepsy worldwide. Nicole and Sally share exciting ideas and opportunities for everyone to get involved in Purple Day, from wearing purple to hosting fundraising events and sharing educational resources.

For resources discussed in this episode go to: Young Epilepsy | Homepage

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Check out our Season 1 and 2 sponsor The Super Sensory Squad who support kids in understanding the eight sensory systems and emotional regulation using their penguin squad at: www.thesupersensorysquad.com and www.instagram.com/thesupersensorysquad

Episode Highlights:

Sally's Story: Sally bravely opens up about her journey with epilepsy, sharing her personal story of being diagnosed at the age of 34. She reflects on the challenges, misconceptions, and triumphs she has encountered along the way, offering hope and inspiration to listeners.
'Understand My Epilepsy' Campaign: Nicole and Sally delve into the 'Understand My Epilepsy' campaign launched by Young Epilepsy, aiming to increase awareness and understanding of epilepsy. They discuss the importance of education, empathy, and inclusivity in supporting individuals living with epilepsy and their families.
Celebrating Purple Day: Purple Day is an international effort dedicated to increasing awareness about epilepsy worldwide. Nicole and Sally share exciting ideas and opportunities for everyone to get involved in Purple Day, from wearing purple to hosting fundraising events and sharing educational resources.

For resources discussed in this episode go to: Young Epilepsy | Homepage

Previous Episode

Dyslexia and following the passions of your child: Nicole Bateman chats with Anne-Marie Beggs

In the final episode of Season 1 of "Conversations with a SEND Mum," host Nicole Bateman engages in a conversation with Anne-Marie Beggs, delving into the empowering world of dyslexia and the importance of nurturing and supporting the passions of children with special educational needs and disabilities.

Episode Highlights:

Understanding Dyslexia: Anne-Marie shares her expertise and insights into dyslexia, shedding light on the challenges and strengths associated. They explore the importance of recognising dyslexia as a unique learning difference and the transformative power of embracing neurodiversity.
Nurturing Passions: Anne-Marie then discusses the significance of identifying and nurturing the passions of children with special educational needs and disabilities. Nicole and Anne-Marie delve into the role of passions in fostering self-esteem, confidence, and resilience in children, despite any challenges they may face.
Supporting Neurodivergent Learners: They discuss practical strategies and approaches for supporting neurodivergent learners in pursuing their passions and interests. From advocating for inclusive education to providing accommodations and fostering a strengths-based approach, they highlight the importance of creating environments that celebrate diversity and individuality.

Next Episode

S2 E1: Advocating for your child: Nicole Bateman welcomes you to Season 2

Welcome to Season 2 of "Conversations with a SEND Mum" with your host, Nicole Bateman! In this exciting premiere episode, Nicole kicks off the new season by sharing what's coming up and offering valuable tips on advocating for your child with special educational needs and disabilities (SEND).

Episode Highlights:

Welcome to Season 2: Nicole warmly welcomes listeners back to the podcast and sets the stage for an empowering new season. She shares her enthusiasm for the upcoming episodes and guest interviews, promising insightful conversations and practical advice for SEND parents.
5 Tips for Advocating for Your Child:
1. Gathering Documentation: Nicole emphasises the importance of collecting and organizing relevant documentation, including assessments, reports, and medical records, to support your child's needs effectively.
2. Understanding Their Specific Needs: She encourages parents to gain a deep understanding of their child's specific needs, preferences, and challenges, which is key to advocating for appropriate support and accommodations.
3. Knowing Your Rights and SEND Law: Nicole highlights the significance of familiarising yourself with the rights of children with SEND and the relevant SEND laws and regulations. This knowledge empowers parents to navigate the educational system and access necessary services.
4. Establishing Communication Channels and Collaboration: Building effective communication channels with teachers, healthcare professionals, and support staff is essential. Nicole discusses the importance of collaboration and teamwork in advocating for your child's best interests but also acknowledges that in reality that is not always the case.
5. Documenting All Communication: Lastly, she underscores the importance of documenting all communication and interactions related to your child's education and care. Keeping records can help track progress, identify challenges, and ensure accountability.
Overall, Trust Your Instincts as a Parent: Nicole concludes with a powerful reminder for parents to trust their instincts and advocate passionately for their child's well-being. She shares that you are not alone and invites you to join her over on Instagram.

Conversations with a SEND Mum - Purple Day Special Episode 2/2: Nicole Bateman chats with Sally Brighton from Young Epilepsy

Transcript

00:00:00.299

Welcome to Conversations with a Send Mum podcast with me as your host, Nicole Bateman. Today for the special Purple Day episodes, I am joined with Sally Brighton, and she is the fundraising director at Young Epilepsy, which is a charity that really is trying Super passionate about raising that awareness of epilepsy and helping young people like my son to thrive. So Sally, welcome. we have got, so if you're listening on Spotify and on the podcast, we are wearing our pu