018 - Marc Ginsky COO of the CF Foundation
05/23/21 • 58 min
My guest today is Marc Ginsky, The Cystic Foundation's Chief Operating Officer.
On this episode we talk about the amazing research the CF Foundation is currently collecting, the community the Foundation has created, the lives it's currently saving, and the amazing lessons learned from working with such an amazing organization.
Here's our chat.
CFF.org
@CF_Foundation
Foundation Links:
About CF – Learn more about cystic fibrosis, a genetic disease that affects the lungs, pancreas, and other organs.
Our Mission – The CF Foundation will not stop until CF stands for Cure Found.
Path to a Cure – The most important work in CF is still ahead. Learn more about the research we are funding to reach treatments for all and eventually a cure for cystic fibrosis.
Get Involved – There are so many ways that you can get involved with the Cystic Fibrosis Foundation. Attend an event, donate your time, or donate to the cause so we reach a cure for cystic fibrosis.
Find Your Chapter – Find your local CF Foundation chapter and learn how you can get involved in your community.
Tomorrow’s Leaders – Join Tomorrow’s Leaders, the CF Foundation's young professionals group that provides opportunities to connect with others, learn and grow personally and professionally, all while making a difference in the lives of those living with CF.
Advocate – Volunteer advocates drive our legislative and regulatory agenda forward at every level of government. Together, we are improving access to high-quality, specialized care so people with CF can live longer, healthier lives.
My guest today is Marc Ginsky, The Cystic Foundation's Chief Operating Officer.
On this episode we talk about the amazing research the CF Foundation is currently collecting, the community the Foundation has created, the lives it's currently saving, and the amazing lessons learned from working with such an amazing organization.
Here's our chat.
CFF.org
@CF_Foundation
Foundation Links:
About CF – Learn more about cystic fibrosis, a genetic disease that affects the lungs, pancreas, and other organs.
Our Mission – The CF Foundation will not stop until CF stands for Cure Found.
Path to a Cure – The most important work in CF is still ahead. Learn more about the research we are funding to reach treatments for all and eventually a cure for cystic fibrosis.
Get Involved – There are so many ways that you can get involved with the Cystic Fibrosis Foundation. Attend an event, donate your time, or donate to the cause so we reach a cure for cystic fibrosis.
Find Your Chapter – Find your local CF Foundation chapter and learn how you can get involved in your community.
Tomorrow’s Leaders – Join Tomorrow’s Leaders, the CF Foundation's young professionals group that provides opportunities to connect with others, learn and grow personally and professionally, all while making a difference in the lives of those living with CF.
Advocate – Volunteer advocates drive our legislative and regulatory agenda forward at every level of government. Together, we are improving access to high-quality, specialized care so people with CF can live longer, healthier lives.
Previous Episode
017: Branden McWilliams - Ninja Warrior First, Cystic Fibrosis Warrior Second
Branden McWilliams has Cystic Fibrosis. He's also a Ninja Warrior. Literally.
As in incredible athletes who combine obstacle course training with elements of gymnastics & parkour. You have to have incredible strength, problem solving-skills, endurance, stamina, impulse control, and confidence.
And interestingly enough, despite his CF, Branden is one of the only athletes to reach the end of the obstacle courses and hit the final red button.
Being diagnosed with CF at a young age, he was challenged finding a way to stay focused, and decided instead to reject the limitations that come with CF.
In this episode not only do we talk about the many trials and tribulations with having Cystic Fibrosis, but we also speak on the limitations it creates for men when attempting to have kids, speak on the side effects of the new drug Trikafta, and everything in between.
Here's our chat.
You can follow Branden and his Ninja Warrior journey on instagram : @Cystic_Ninja
Next Episode
Podcast Episode 019: GMadison Brings Power to Perspective in "Invincible"
GMadison is a world renowned dancer, choreographer, and instructor.
His work has been seen on some of the largest stages in the world and he just finished up touring with Mariah Carey this last year.
Most recently, GMadison and his wife, singer & songwriter Chenelle, put together a beautiful and inspiring music video for Chenelle's song "Invincible," which focuses on how society has grown accustomed to labeling individuals before anyone even understands someone's true perspective.
We all have different journeys of course, and throughout our lives, certain experiences and events can unfortunately become triggers for us. It could be anything from racial divides, sexual harassment, or a myriad of other experiences and traumas.
GMadison and Chenelle encourage others to stop and listen, understand before judging, and only then can we truly uncover and comprehend someone's perspective.
Here's our chat.
GUEST INFO:
INVINCIBLE Music Video : https://www.youtube.com/watch?v=T1Uo2tF9-4o
@GMadison4 | www.GMadisonIV.com
@ChenelleWorld | www.ChenelleWorld.com
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