B's in a Pod - Advocacy Groups and Hemophilia B

Advocacy Groups and Hemophilia B

07/16/18 • 29 min

Host Becky chats with Wayne and Paul, members of the hemophilia B community, about the different advocacy groups in existence and how they can help people and families with hemophilia B. They discuss the benefits of keeping current with patient organizations and how to tap into valuable resources. The trio also recounts how each got involved in patient advocacy and what they enjoy most about being active participants in the patient community.

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Hemophilia in Sibling Relationships

Host Becky talks with Paul, a person with hemophilia B, about what it was like growing up with his brother, who does not have hemophilia, and his two sisters, who are symptomatic carriers. Paul chats about how his parents helped manage hemophilia as part of their family and worked to keep balance in their lives. He also reflects on how hemophilia B impacted his relationships with his siblings, ultimately helping to shape him as a parent.