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INTERVIEW: Terri Gortner & Batten Disease
Hey Peeps ! We're back again for another real and raw episode of Because We are strong. This week we are sitting down with Terri, a mother of two. Her children Claire and Josef both have CLN2 Batten Disease. CLN2 is an inherited disease that is passed down through families that primarily affects the nervous system. Children with CLN2 are born with this condition, however, signs and symptoms typically begin between ages 2 and 4.
Connect with Terri @cureforclaire
Cureforclaire.com
The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.
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INTERVIEW: Brenna LeVine & Aidan's Journey
This episode is in loving honor to Aidan John LeVine 2016-2020
Hey Peeps! Welcome back for another episode of Because We are Strong. This week we are sitting down with Brenna. Brenna is the mother of two boys, 1 in heaven and one still here on earth. Brenna's son Aiden had nonverbal autism & dyspraxia who passed away from a rare internal hernia that doesn’t have a name. She is using her voice and platforms to raise awareness for grieving mothers so that no other parent has to go through what she did.
Meet Brenna:
I am a grieving mom 2 boys, 1 in heaven 1 on earth. I'm just trying to navigate through life after losing the love of mine. since this rare internal hernia took my son so unexpectedly I would like to just share his story, bc no parent/child deserves this
in memory of Aidan John LeVine 2016-2020
Aidan had nonverbal autism & dyspraxia. He passed away from a rare internal hernia that doesn't have a name. & Im just trying to figure out what happened to my baby & how to catch it, so no parent has to feel this pain that my husband and I feel all. the. time.
The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.
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