INTERVIEW: Stephanie Stavros & Get Loud CF

12/08/20 • 53 min

Stephanie was born with Cystic Fibrosis, a genetic disease that primarily leads to irreparable damage of the lungs. In spite of the considerable challenges, Stephanie continued her successful career as a designer all while being a devoted wife and loving mother. Unfortunately, CF started to have a greater impact on her life, forcing her to leave her career so that she could focus on her health. Through much introspection and painful self-acceptance, Stephanie made the courageous decision to begin sharing her story, reaching thousands through her platform and has made profoundly impactful changes on the lives of others living with CF. After a battle with an unrelenting pneumonia in 2019, Stephanie learned of a new "miracle medicine" that became available in the US. Unfortunately, this drug is not available in Canada, but this did not deter Stephanie. Stephanie was interviewed by local and national news stations; she reached out to her local members of government and even wrote to each executive of the pharmaceutical company. All that effort paid off when she learned that she was granted Compassionate Care by the manufacturer in January 2020, literally saving her life. Through unwavering faith and tireless effort, Stephanie was able to make her dreams a reality.

After this personal victory, Stephanie continued her advocacy work to help other CF patients fight for their right to breathe. Together with 3 CF patients that were fighting for their lives and the parent of a CF patient, Stephanie co-founded the volunteer advocacy group called CF Get Loud. The team’s mission is to elevate patients' stories; empowering them to use their voices and educate families on the barriers that are blocking the accessibility of innovative medicine. Today, the movement has over 4300 members and is growing. Together, they continue to fight to save the lives of 4400 Canadians.

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Connect with Stephanie
@rosielifewithgrey
@cfgetloud
www.cfgetloud.com
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The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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____________
Connect with Stephanie
@rosielifewithgrey
@cfgetloud
www.cfgetloud.com
dgL76H07Hi2k9C26NcM4

Support the show

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INTERVIEW: Terry Pirovolakis & Cure SPG50

My name is Terry Pirovolakis and on April 2nd my life changed forever. My son Michael was diagnosed with a terrible neurodegenerative disease that will take away his ability to use his limbs and mind. My goal is to cure my son and as many children as I can of this terrible disease.
Connect with Terry:
@cure_spg50 on Instagram
Help the cause:

https://CureSPG50.org
https://ca.gofundme.com/f/cure-michael-curespg50-spg50
You can also help our Cure SPG50 by shopping at RARE. and choosing Cure SPG50 at check out or shopping our Greater Than SPG50 Tee. >>> https://findyourrare.info/spg50

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INTERVIEW: Pamela Price & We Care When

About Pamela

Award Show Executive Producer | Journalist | Competitive Athlete | Dance Teacher

Mentored by PR/Media mogul Michele Elyzabeth, Pamela Price is the Vice President of LATF USA, a daily lifestyle/entertainment news site, as well as the Executive Producer of the acclaimed annual award show, the Hollywood Beauty Awards, known as the ‘Oscars of Beauty’ and the Daytime Beauty Awards, which celebrates ‘Science behind Beauty.’

From the office to the outdoors, Pamela is a competitive trail runner, obstacle course athlete and American Ninja Warrior.

THE PRODUCER | JOURNALIST

At LATF, she directs story assignments, runs content management, social media, conducts celebrity interviews, and oversees the creative process/design of the news site and magazine. She writes film reviews, fitness tips, gear/apparel must-haves and race highlights. As an award show producer, Pamela runs talent booking, board and award roster correspondence, as well as oversees the show's production with Founder, Michele Elyzabeth and President, Otis Stokes.

THE ATHLETE | DANCE TEACHER

A formally trained dancer, Pamela began her dance training at the Portland Ballet Company in Maine before studying contemporary and Luigi jazz, while simultaneously running track & field, as well as cross-country; specializing in hurdles and long distance.

She taught dance in New York City and ran the dance department for YMCA’s “Strong Kids Campaign” as well as their after-school hip-hop classes for youth and teens. Choreographing for musicals including “Cabaret” and “Pippin” at French Woods Festival of the Performing Arts, Pamela served as co-head of their dance department and taught contemporary & hip-hop at East Hollywood’s Dance Refuge. She has choreographed for music videos, including Kaneholler’s “Lite Brite” single and the early days of Justine Marino & Heidi Heaslet’s “Funny Dance Show,” which now airs on E!.

Pamela was scouted for Season 11 of American Ninja Warrior. She competed at the Los Angeles Regionals at Universal Studios. Throughout the year, she competes in trail and obstacle course races; representing her Pro Race Team, HARDKOUR PERFORMANCE under the direction of Coach Justin Nucum.

Pamela’s top competitive results include: