INTERVIEW: Morgan Villano & Ichylosis

03/24/21 • 32 min

Because We Are Strong

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BONUS: Avalon Foundation Youth Advisory Board #kc4k

#KC4K Advisory Board

We are committed to being kid driven & lead; while adult monitored & guided. Our youth advisory board is dedicated to creating self-awareness of an individual’s own abilities and power to be able to make a positive impact on the world through the pillars of Leadership, Compassion, Commitment, and Contribution (LCCC). Our program is designed to help our youth develop lifelong leadership skills, cultivate compassion and commitment, teach them to personally contribute to the betterment of society. By instilling these skills and values in our youth at a young age, we are creating a lifelong imprint that positively impacts the world.

The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much.

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INTERVIEW: Terri Gortner & Batten Disease

Hey Peeps ! We're back again for another real and raw episode of Because We are strong. This week we are sitting down with Terri, a mother of two. Her children Claire and Josef both have CLN2 Batten Disease. CLN2 is an inherited disease that is passed down through families that primarily affects the nervous system. Children with CLN2 are born with this condition, however, signs and symptoms typically begin between ages 2 and 4.

Connect with Terri @cureforclaire
Cureforclaire.com

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