The AVM Research Foundation

11/22/22 • 21 min

Today we are going to be talking with guest Sherri Logan who started The AVM Research Foundation with her husband Mark and we will end with a short discussion on the second half of Chapter 1 of our current focus book “Suffer Strong" by Katherine and Jay Wolf. The AVM Research Foundation’s mission is to raise funds for AVM awareness, with their biggest goals to 1) create a way for early detection, and 2) find a safer treatment for those affected by brain AVMs. The Foundation was created after Ryan Logan, who was 11 years old at the time, was told by doctors that no treatments were safe with his complex grade 4 AVM.” The doctors simply told the Logan family to let their son Ryan simply “let him live his life.” A year later, Ryan suffered a brain hemorrhage.
Video: https://www.youtube.com/watch?v=kLCJK5X9Om0
AVM Research Foundation: https://www.research4ryan.org/ryans-story.html

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Service Animals & Opportunity in Limitations

Today we are going to be talking about something many parents consider for their child who has a disability: service animals! We are going to go over the general ADA rules as well as the steps to take and things to consider when deciding if a service animal is the right addition for your family. Our guests are Terry and Nancy Cadel who own River’s Edge Dog Academy—a business who has been training service animals for over 35 years, and we will end with a short discussion on the first half of chapter 1 of our current focus book “Suffer Strong: How to Survive Anything by Redefining Everything by Katherine and Jay Wolf. Thank you for joining us.
Guest's Website: https://www.riversedgeda.com

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Next Episode

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Today we are going to be talking about the UCSF Pediatric Stroke Research Center and three of their current research projects headed by Dr. Heather Fullerton. We will visit with guest Jennifer Odell whose beautiful son Brayden gained his wings just days after his AVM rupture and learn what is important to families during this difficult time. We will end with a short discussion on part one of Chapter 2 of our current focus book “Suffer Strong” by Katherine and Jay Wolf focusing on the importance of redefining the past to allow peace and eventually healing on the inside.
Brayden's Story: https://www.cbc.ca/news/canada/montreal/brayden-odell-avm-sainte-justine-foundation-1.6496942
The Family's Website: https://teambrayden.org/

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AVM Alliance Podcast - The AVM Research Foundation

Transcript

Episode 3- The AVM Research Foundation

Raylene Lewis: [00:00:00] Hi there, and thank you for joining us on AVM Alliance, a pediatric stroke podcast for families and friends whose lives have been affected by traumatic brain injury, brain vessel disease, or stroke. The purpose of this podcast is to focus on the kid's side of brain injury with honest Talk News.

Information and discussion for our community. Being a parent of a medically complex child i