Bri: CHD; Ebstein's Anomaly

Explicit content warning

04/21/24 • 78 min

Bri's daughter Caroline was diagnosed with a rare form of CHD called Ebstein’s Anomaly. Living in Sacramento, her and her husband moved to Stanford to ensure she received the best possible care. After Caroline was born, she spent 27 days fighting for her life until ultimately passing away peacefully in her mother's arms. Among her diagnoses it was also found that she had Pallister-Killian Syndrome (PKS) after she was born.

Bri talks about this journey. From finding out about her daughter's rare disorder, to how to proceed, to giving birth to her daughter alive, to then deciding to do surgeries and the days she lived in the NICU. Bri walked away with zero regrets, something a lot of loss momma's wish they could do.

Our hope is that this story finds someone who needs to hear it. Bri would love to connect with anyone who can resonate with Caroline's story or needs guidance navigating their own. But no matter what your experiences are, it helps to hear about how to cope, how to hold onto hope, and how you are anything but alone.

Information on Ebstein's Anomaly: HERE

To connect with Bri, find her on Instagram at @brihansen

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NOTE: I am not a doctor or a therapist. The views of my guests are not always reflective of my own. I am just a real life loss mom describing her experiences with life after loss. These are my experiences, and I'm putting it out there so you feel less alone. Always do your own research and make informed decisions! For more REAL TALK about baby loss and grief, hit subscribe to be notified when another episode drops! Support the podcast and shop the store! At a Total Loss Shop Instagram @thekatherinelazar Youtube: @thekatherinelazar Email: [email protected] Website: www.katherinelazar.com Some helpful resources: https://countthekicks.org/ https://www.measuretheplacenta.org/ https://www.pushpregnancy.org/ https://www.tommys.org/ Local to Atlanta: https://www.northsidepnl.com/

Information on Ebstein's Anomaly: HERE

To connect with Bri, find her on Instagram at @brihansen

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Previous Episode

4 Types of Relationship Loss

Loss of relationships is a HUGE topic after baby death. In this episode, I break down the 4 categories of family & friend relationship loss that I see and hear about all the time.

1) People who choose to exit your life

2) Toxic people who you choose to separate from

3) Good intentioned people who just don't see your loss the same

4) Awesome people whose stage of life is too hard to be around.

I break each of these down and also dig into the fact that we have to take into accountability our own behaviors. It's a sticky situation and one that no one tells us how to navigate. i hope to shine light on this, help you feel less alone, and to potentially guide you in a way that helps you navigate it all.

Watch it on my At a Total Loss YouTube Channel!

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For more REAL TALK about baby loss and grief, hit subscribe to be notified when another episode drops!

Support the podcast and shop the store! At a Total Loss Shop

Instagram @thekatherinelazar

Youtube: @thekatherinelazar

Email: [email protected]

Website: www.katherinelazar.com

Some helpful resources:

https://countthekicks.org/

https://www.measuretheplacenta.org/

https://www.pushpregnancy.org/

https://www.tommys.org/

Local to Atlanta:

https://www.northsidepnl.com/

Next Episode

Courtney + Conrad

Courtney's precious Conrad was born still after a seemingly perfect pregnancy. Her journey to this point is super insightful and extremely raw. We chat about literally everything in this episode. No really, like, wanna hear 2 loss moms just going IN on this whole situation, this is the episode. Does it sound like we're ranting? GOOD because we are and we are allowed to. Most *normal* mothers do this but with wayyy less intense subject matter. We are keeping it very real here. Here is what else we talk about in this almost 2 HOUR episode...

Being sent home without babies but with our mental health in extreme danger.
Post Partum struggles
The loss of her parents + the loss of her baby.
We are expected to "move on" when we just cannot do that.
Society likes to distance themselves from death yet sensationalize it on TV & film.
Letting medical pros know how horrible this is so that they get it.
The struggles of having a living baby after loss.
Medications to take while struggling
Relationship with God
I told you we tackle a lot lol... AND there's more!

We just want this to help. You might not agree with everything you hear (that's ok) but at least one little nugget or glimmer is what we're going for here.

Find Courtney on Instagram at @courtneydouglascoaching

https://www.instagram.com/courtneydouglascoaching/

*************************************

For more REAL TALK about baby loss and grief, hit subscribe to be notified when another episode drops!

Support the podcast and shop the store! At a Total Loss Shop

Instagram @thekatherinelazar

Youtube: @thekatherinelazar

Email: [email protected]

Website: www.katherinelazar.com

Some helpful resources:

https://countthekicks.org/

https://www.measuretheplacenta.org/