Parenting With IBD (With Alison McGauley)
10/15/24 • 34 min
1 Listener
Amber interviews Alison McGauley, a teacher and author of "Kenzie's Little Tree," a children's book about a girl whose mother lives with chronic illness. Alison shares her journey with ulcerative colitis, irritable bowel syndrome (IBS), and ankylosing spondylitis, and how her hospitalization impacted her two daughters. She emphasizes the importance of talking about illness with children to help them process their emotions. Alison’s book, set to release in March 2025, aims to provide a narrative for families dealing with chronic illness. Pre-orders are available, with proceeds donated to Crohn's and Colitis Canada and the Arthritis Society.
Buy Alison's book: https://www.alisonmcgauley.com/books/my-books
Find Alison McGauley at:
- Web: https://www.alisonmcgauley.com
- Facebook: @author.alison.mcgauley
- Twitter: @AlisonMcgauley
- YouTube: @AlisonMcGauleyAuthor
- Instagram: @alisonmcgauley
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell Health: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
- YouTube: @AboutIBD
- https://www.threads.net/@about_ibd
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- YouTube: @MacCooneyComposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
Episode transcript and more information at: https://bit.ly/AIBD160
These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Amber interviews Alison McGauley, a teacher and author of "Kenzie's Little Tree," a children's book about a girl whose mother lives with chronic illness. Alison shares her journey with ulcerative colitis, irritable bowel syndrome (IBS), and ankylosing spondylitis, and how her hospitalization impacted her two daughters. She emphasizes the importance of talking about illness with children to help them process their emotions. Alison’s book, set to release in March 2025, aims to provide a narrative for families dealing with chronic illness. Pre-orders are available, with proceeds donated to Crohn's and Colitis Canada and the Arthritis Society.
Buy Alison's book: https://www.alisonmcgauley.com/books/my-books
Find Alison McGauley at:
- Web: https://www.alisonmcgauley.com
- Facebook: @author.alison.mcgauley
- Twitter: @AlisonMcgauley
- YouTube: @AlisonMcGauleyAuthor
- Instagram: @alisonmcgauley
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell Health: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
- YouTube: @AboutIBD
- https://www.threads.net/@about_ibd
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- YouTube: @MacCooneyComposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
Episode transcript and more information at: https://bit.ly/AIBD160
These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Previous Episode
Choosing Ostomy Surgery With Hannah Martin-Spencer
Is it surprising to learn that some people living with IBD choose to have ostomy surgery? Hannah, a 24-year-old woman, shares her journey through the initial symptoms of IBD at the age of 15, to getting a diagnosis of ulcerative colitis. She describes how her symptoms worsened after diagnosis, including bleeding, bowel urgency, and fatigue, which led to multiple hospitalizations. Hannah advocated for surgery to treat her pancolitis, despite an initial difference of opinion with her medical team. After surgery, Hannah's symptoms were significantly improved and she regained a sense of normalcy in her life. Hannah discusses the pros and cons of choosing an ostomy over a J-pouch, the importance of quality of life, and how surgery could impact her future fertility.
Concepts discussed on this episode:
- Yang X, He M, Tang Q, et al. Assessment of anti-inflammatory efficacy of acupuncture in patients with inflammatory bowel disease: A systematic review and meta-analysis. Complement Ther Med. 2023;74:102946. doi:10.1016/j.ctim.2023.102946.
- Bao C, Wu L, Wang D, et al. Acupuncture improves the symptoms, intestinal microbiota, and inflammation of patients with mild to moderate Crohn's disease: A randomized controlled trial. EClinicalMedicine. 2022;45:101300. doi:10.1016/j.eclinm.2022.101300.
- Bae JH, Kang SY, You SE, Jeong HI, Jang S, Kim KH. The Effects of Acupuncture on Crohn's Disease: a systematic review and meta-analysis. J Pharmacopuncture. 2023;26(3):211-226. doi:10.3831/KPI.2023.26.3.211.
Find Hannah Martin-Spencer on:
- Instagram: @hans_colitisjourney
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell Health: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
- YouTube: @AboutIBD
- https://www.threads.net/@about_ibd
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- YouTube: @MacCooneyComposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
Episode transcript and more information at: https://bit.ly/AIBD159
These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
Next Episode
Finding the Balance - Honoring Veteran's Day With Stephanie Gish
Stephanie Gish, host of the Crohn's Fitness Food podcast, gives the details of her journey with Crohn's disease and IGA nephropathy. Stephanie's Crohn's symptoms began in 2003, but she was initially misdiagnosed with an anal fissure. After being discharged from the Army for medical reasons unrelated to IBD, she went through years of fragmented care, and finally received a Crohn's diagnosis in 2009. Stephanie brought her knowledge of health and fitness to bear in managing Crohn's, but the diagnosis of IGA nephropathy had her changing course and rethinking her approach.
Buy "Crohn's, Fitness, Food and My Rock Road to Health" at Amazon:
Find Stephanie Gish at:
- Web: Crohn's Fitness Food
- Facebook: @crohnsfitnessfood
- Podcast: Crohn's Fitness Food
- LinkedIn: @stephlivsey
- Instagram: @crohnsfitnessfood
Find Amber J Tresca at:
- AboutIBD.com: About IBD
- Verywell Health: Verywell Health
- Facebook: @aboutIBD
- Twitter: @aboutIBD
- Pinterest: @aboutibd
- Instagram: @about_IBD
- YouTube: @AboutIBD
- https://www.threads.net/@about_ibd
Find Mac Cooney (mix, sound design, and theme music) at:
- Facebook: @maccooneycomposer
- Instagram: @maccooneycomposer
- YouTube: @MacCooneyComposer
- Web: Cooney Studio
- Theme music, IBD Dance Party, is from ©Cooney Studio.
Episode transcript and more information at: https://bit.ly/AIBD161
These show notes contain affiliate links. If you choose to purchase after clicking a link, Mal and Tal Enterprises, LLC may receive a commission at no extra cost to you.
About IBD - Parenting With IBD (With Alison McGauley)
Transcript
I'm Amber Tresca, and this is About IBD. I'm a medical writer and patient educator who lives with a J pouch due to ulcerative colitis. It's my mission to educate people living with Crohn's disease or ulcerative colitis about their disease and to bring awareness to the patient journey. Welcome to Episode 160 living with a chronic illness isn't uncommon, but it's also not something that's well represented in popular culture. All parents need com
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