Schizophrenia: Three Moms in the Trenches
Randye Kaye
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A Plan of Action for COD (co-occurring disorders): The Harris Project (Episode 53)
Schizophrenia: Three Moms in the Trenches
09/29/22 • 54 min
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A Plan of Action for COD (co-occurring disorders*): The Harris Project
*mental health challenges plus and substance misuse or addiction
What comes first: substance use or mental health challenges? It can happen either way.
Adolescence is a time of change and challenge. It is also during this time that most mental health disorders arise. In fact, 22% of teens 13-18 have a diagnosable mental health and/or addictive disorders, and 50% of all cases of mental health disorders arise by the age of 14 and 75% by the age of 24 (MHFA.org).
We 3 Moms have been there. We share our family story in books and in this podcast, to help others.
Our guest has the same mission - to turn heartache into action, and to honor her son. She was recently featured in the NY times, and she’s here with us today.
Stephanie Marquesano, mom of Harris (who died at age 19 and had a COD, or co-occuring disorder), is founder and president of the project named for him - with a mission to change the way these two conditions are noticed and treated.
We ask:
- Tell us about Harris. If you had to tell the story of his life before the illness and after the illness in five minutes what would you want us most to know?
- Early signs: you said in NY times “He was crawling out of his own skin half the time.” - is there anything you wish you had known, anything you wish someone else had known or done?
- Can you share your journey to find psychological and psychiatric help?
- The combination of substance abuse and mental illness often co-occurs, and yet... not treated together . Talk to us about the “addiction treatment nonsystem” and what should replace it.
CODA goals include:
- Increased awareness and understanding of co-occurring disorders for youth.
- Increased early intervention for mental health challenges and substance misuse leading to a decline in incidence of youth mental health crises, drug misuse, addiction and overdose.
- Increased likelihood that those already impacted by co-occurring disorders will seek help and support.
- Raise a generation without the stigma typically associated with mental health challenges/substance misuse.
- Encourage youth to positively impact their peers/communities by building connections to each other and being a link to resources.
LINKS:
https://theharrisproject.org/Twitter: @theharrispro
Facebook: https://www.facebook.com/theharrisprojectCOD/
Instagram: https://www.instagram.com/theharrisprojectcod/
Mindy and her book: https://mindygreiling.com/
Randye and her book: https://benbehindhisvoices.com/
Miriam and her book: https://www.miriam-feldman.com/
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
1 Listener
Navigating Psychosis & Behavioral Health Systems: Against All Odds: Dr. Gary Tsai (ep. 52)
Schizophrenia: Three Moms in the Trenches
09/15/22 • 42 min
Send a Text to the Moms - please include your contact info if you want a response. thanks!
As a psychiatrist and system administrator who grew up with a mother with schizophrenia, Dr. Gary Tsai offers an insider’s perspective on the process of seeking care for serious mental illnesses, informed by both firsthand personal and expert professional experiences.
Dr. Tsai is also an award-winning documentary filmmaker and author, physician who is board certified in psychiatry and addiction medicine, and the director of the largest substance use system in the nation.
We’ll talk about his story, his documentary called Voices , and the tips in his his new book titled Against All Odds , including:
- How to approach impacted loved ones and resistance
- Understanding behavioral health systems, policies, programs, laws, practitioners, and payers
- Identifying a good clinician or care team
- Being an effective advocate
- ... And much more.
Against All Odds offers tools and strategies to navigate the recovery journey and will reshape your understanding of serious mental illness and behavioral health systems!
LINKS:
http://voicesdocumentary.com/film/
Mindy and her book: https://mindygreiling.com/
Randye and her book: https://benbehindhisvoices.com/
Miriam and her book: https://www.miriam-feldman.com/
Hosts:
Who:
Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”)
Miriam Feldman - is an artist, writer, and the mother of an adult son with schizophrenia. Her book, "He Came in With It" chronicles her family's story and was released to rave reviews on July 21st, 2020.
Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is “Fix What You Can.”
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
1 Listener
Siblings: My Brother or Sister has Schizophrenia - What About Me?
Schizophrenia: Three Moms in the Trenches
06/09/21 • 58 min
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In this episode, we talk with our own daughters about the lived experience of the sibling when schizophrenia hits the family. The emotional toll on this group of family members is often swept aside in the wake of the crises involved in SMI. We give them a chance to speak.
Guests: Our Daughters - Angela, Lucy and Ali
PAST:
- What was it like for you growing up, as your sibling’s illness began?
- When did you start suspecting something was wrong?
- Did you second guess any things your parents were doing for him?
- Did you resent your brother for needing your parent(s) so much? Did you resent your parent(s)? And how did you work through that? (Kathy Day asked)
PRESENT:
- What is hardest for you about your brother's illness?
- How do your friends feel about him? How do they best support you?
- Has your life changed in any positive ways because of your brother?
- Do you see yourself as a mental health advocate? If so, how?
- What is it like now? Where are you on the “graph of emotions?
- Do you feel cheated that your mom spends more time with sick sibling? (Cindy Grossman asked - fb)
- Do you fear that you could also become schizophrenic at any given time? Or your kids? (Kathy Burchett, fb)
- Do you feel guilty that he got sick instead of you?? (Laura Pogliano)
FUTURE:
1. What are your major worries about when we parents aren't around to be front-line advocates for your brother?
2. What do you see yourself being able to do and what will you need help with?
3. What help do you hope will be in place?
Final question: What do you most want other relative groups - particularly parents - to know about your experience as a sibling of someone with SZ? How can we best be of help to you?
Links for mentions:
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
1 Listener
Better Mental Illness Outcomes through Community Collaboration: CIT
Schizophrenia: Three Moms in the Trenches
09/30/21 • 47 min
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“Collaborative partnerships between law enforcement, mental health service providers, advocates, family members, and people with lived experience.” - Amy Watson
Sound good? That’s the foundation of the CIT Model.
“I could treat people like human beings” - Amy Watson
Police Activity is very much in the news these days, and response to mental health crises is often left in their hands.
Each of us has had experience with first responders, some trained in crisis intervention and some not. CIT Training is at least part of why our sons are alive (and not incarcerated) today.
Our guest today is Amy Watson, President of CIT (Crisis Intervention Team) International, a leader in promoting safe and humane responses to those experiencing a mental health crisis. She is also a professor at Helen Bader School of Social Welfare at University of Wisconsin-Milwaukee.
CIT Basic Goals:
- Improve Officer and Consumer Safety
- Redirect Individuals with Mental Illness from the Judicial System to the Health Care System
We Talk About:
- What is the CIT(Crisis Intervention Team) program model? - and why do you personally do this work? -
- What does the research tell us about CIT?
- What is CIT Training - what are the goals? Why the need?
- What’s the cost? Who pays?
- What’s the cost of NOT getting the training?
- What do officers say who have had the training? Do they get pushback from other police officers?
- How can a family member advocate for getting CIT training locally?
Links:
https://www.citinternational.org/
What is CIT?
HBO Documentary “Ernie and Joe” - https://www.hbo.com/documentaries/ernie-and-joe
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
More of What Families Want Therapists to Know About Schizophrenia (Part 2 with Leah Brennan, LMFT, CADC) -Episode 63
Schizophrenia: Three Moms in the Trenches
04/19/23 • 48 min
Send a Text to the Moms - please include your contact info if you want a response. thanks!
Leah Brennan. a Licensed Marriage and Family Therapist and a Certified Alcohol and Other Drug Counselor, joined us with her own questions in Episode 55 so as to improve therapist-family communication.
Her Episode had such a great response that listeners asked for more - so here it is!
Leah got connected to 3 Moms In the Trenches through her clients. Over the past five years, she has had four different parents on her caseload who were all confronting the reality that their sons met the criteria for a diagnosis of schizophrenia.
Leah realized that despite her excellent training, she was not adequately equipped to help these parents navigate the challenges they were facing.
Today Leah asks the questions she didn't get to include in the last episode that all center around the theme: "What Do Parents/Families Wish Their Therapist Knew About Schizophrenia?"
The discussion includes:
- Marijuana and Schizophrenia - what do we now know? What do families need to know.
- Can needs to be done about HIPAA?
- How can we better approach families with a possible early diagnosis, and why?
- What about recent moves to legislate involuntary intervention?
- Who should therapists alert and educate in the larger communities BEFORE kids reach the age when symptoms of SMI typically start to manifest?
Links:
Leah Brennan:
https://www.leahbrennantherapy.com/
mentioned in show:
Hope for Troubled Minds Project.
WHO: Those with brain illnesses or other mental health conditions and their loved ones.
WHAT: Submit a 1,000 word or less letter expressing gratitude for your loved one or the one you care for in spite of the circumstances.
WHY: Letters can promote a healing journey and also serve for advocacy as we humanize the issue of brain illness.
WHERE: Email it, along with a photo or image and an (optional) brief bio to me at: [email protected] .
Mindy and her book: https://mindygreiling.com/
Randye and her book: https://benbehindhisvoices.com/
Miriam and her book: https://www.miriam-feldman.com/
Hosts:
Who:
Randye Kaye - was a morning Radio Personality bringing humor to CT families when her own son was diagnosed with schizophrenia. Now she is still a Broadcaster, Actress, Voice Talent, Speaker, and Author (Ben Behind his Voices, Happier Made Simple )
Miriam Feldman - is an artist, writer, and the mother of an adult son with schizophrenia. Her book, He Came in With It chronicles her family's story and was released to rave reviews on July 21st, 2020.
Mindy Greiling - Mindy Greiling was a member of the Minnesota House of Representatives for twenty years. She helped found the nation's first state mental health caucus, which successfully lobbied for a significant increase in Minnesota's mental health funding Her acclaimed memoir is Fix What You Can
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
Money and Mental Illness: The Effect of Finances on Family Mental Health
Schizophrenia: Three Moms in the Trenches
02/23/22 • 49 min
Send a Text to the Moms - please include your contact info if you want a response. thanks!
We talk a lot about the emotional stress and shock of caring for someone with SMI, but what about the financial shock? Is debt an issue? How does your loved one handle money? How do you get services? Do the wealthy have better support? Do families have to go broke to have support, and what is the additional emotional effect of money on the family mental health?
Savannah Price, in the UK, is doing research on this - and today we turn the tables and let her interview us.
Savannah is building a company to improve the mental and financial resilience of young people with mental health problems by targeting the vicious cycle between money management and poor mental health.
We talk about:
- financial shocks
- the vicious cycle between poor mental health and dysregulated spending
- financial literacy
- Family responsibility
- And look at another, international, health system of “care”
About Savannah:
Savannah is originally from South Africa, but moved to the UK for university. She started her career as a geologist before launching an Equestrian competition and sales business in Ireland. She most recently completed her MBA at the University of Oxford and is starting a company in Mental Health.
She has a strong history of mental illness and disability in her family - she has a sister with schizophrenia, another with bipolar and her youngest sister has autism with significant learning disabilities.
Given her lived experience, she is currently doing research into how money and mental health are interrelated, and how having serious mental health problems impacts families financially and emotionally.
Not only do many mental health problems result in financial strain for young people and their families, but ultimately the breakdown of supporting relationships over time.
To address these problems, we are working to develop personal “relapse signatures” for young people who suffer from dysregulated financial behaviours due to mental health problems such as personality disorders, bipolar, psychosis, depression, anxiety, gambling, substance use disorders and ADHD.
We do this by overlaying spending patterns with other data you can get from a mobile phone, to track symptoms of poor mental health.
This then allows us to tailor products and services according to their goals/needs, and improve wellbeing, both financial and otherwise.
What it can also do, is give their loved ones insight into our users' mental and financial state in real-time, to flag risk and possibly intervene before there is a crisis - all the while advocating for agency and empowerment. Our mission is to blaze the trail for preventative healthcare through behavioural finance.
If anyone wants to learn more or to get involved with the research and product design - they are more than welcome to reach me on [email protected], or my LinkedIn.
Want us to cover a topic? Facebook page @Schizophrenia3Moms
Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”,
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
The Other S-Word: Let’s Talk About Suicide (Ep.86)
Schizophrenia: Three Moms in the Trenches
03/20/24 • 55 min
Send a Text to the Moms - please include your contact info if you want a response. thanks!
Guests are: Karlyn Nelson and Michelle Post
Karlyn Nelson
Survivor of Suicide Loss | Breast Cancer Warrior | Realtor
Michelle Post, M.A., is a Licensed Marriage and Family Therapist (MFC 40198) with nearly 20 years of experience providing counseling and psychotherapy to clients in the greater Los Angeles area
According to the NIMH, People with schizophrenia have a much higher rate of suicide than the larger population: People with schizophrenia have a 10% rate of suicide compared with the larger population’s 1.3%rate of suicide.
Suicide is the biggest reason for the decreased life expectancy of people with schizophrenia.
A larger number of people with schizophrenia contemplate suicide. Around 40–79% of people with schizophrenia have reported having suicidal thoughts.
Saddest fact is that it is at the time of improved insight that most attempts are made. ie. when the person has finally moved past anosognosia and realizes his plight it is with improved understanding that this decision is made.
We Ask:
- What is an “emotional heart attack”/
- What are "The Five Things" when dealing with suicide loss in the family?:
- Get help yourself (best indicator of how well a child does after the death of a parent is how well the surviving parent copes... so if only one can get help, needs to be the parent).
- Use truthful and clear info about the cause of death and explain it in child terms – let the child lead with questions – do not over load them with info. They will need different info as they age
- Acknowledge and validate a child’s feelings
- Reassure them they are not to blame
- Address their fears and anxieties
- Encourage them to continue routine activities, structure gives them a sense of security
- Include them in as many memorial / activities around the illness, injury, and death as they choose.
- Prepare them
- Let them make an informed decision
- Share info and allow participation
- Debrief with them.
3. What can be done for suicide prevention?
LINKS:
Suicide hotline: 988
https://postfamilycounseling.com/
https://www.instagram.com/karlynnelson/
https://didihirsch.org/wp-content/uploads/Manual_for_Suppor
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
Help! I Don’t Understand SSI/SSDI - Ep 50, guest: Dani Page, JD
Schizophrenia: Three Moms in the Trenches
07/21/22 • 60 min
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SZ 3 moms Ep 50: Help! I Don’t Understand SSI/SSDI
Guest: Dani Page
§ SOAR (SSI/SSDI, Outreach, Access and Recovery) certified Retired attorney. Instructor on implicit bias in the space of disability.
§ Juris Doctorate
§ Certified Family to Family facilitator for National Alliance on Mental Illness
§ SOAR (SSI/SSDI, Outreach, Access and Recovery) certified—for individuals with behavioral health challenges who are homeless or at risk
§ Presenter and facilitator on implicit bias in the space of disability
We ask:
Clarification:
Dani would like to clarify something from the podcast in which I participated. The maximum a disability attorney or non-attorney advocate can charge is 25% of an applicant's backpay, up to a maximum of $6,000.
SSI/SSDI/SSA - please explain the differences!
Who makes the disability determination? (DDS)
What are the myths about SSI? Will my loved one have to stop working?
How to apply - steps
Do I need an attorney?
What is SOAR? Can they help? How much does it cost?
What materials/records do I need to gather/create?
And more
Want us to cover a topic? comment to share?
Facebook page @Schizophrenia3Moms
@SZ3MomsTrenches - twitter
Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, “Happier Made Simple”)
Miriam Feldman – Artist, Mom, Author “He Came in With It”
Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
Advocating for the Best Available SMI Care: guest, Rachel Streiff
Schizophrenia: Three Moms in the Trenches
02/18/22 • 55 min
Send a Text to the Moms - please include your contact info if you want a response. thanks!
Rachel Streiff: Mental Health Advocate, Mentor to SMI Caregivers, Data analyst for Team Daniel Running for Recovery from mental illness, (Dr. Robert Laitman’s organization), chemical and biomedical engineer with a legacy six sigma black belt certification - Mother of our guest in episode 22, who is currently a full-time college student.
If you enjoyed her son's story in Episode 22, hear his Mom's side of the advocacy and how she insisted on the best available care - a standard some practitioners do not follow. A very powerful hour.
Links:
[email protected]
TeamDanielRunningForRecovery.org
Get on the mailing list:
Dr. Laitman’s Book:
https://www.amazon.com/MEANINGFUL-RECOVERY-Schizophrenia-Serious-Clozapine/dp/172748424X
New finger-prick Point-of-service test
Who Are the 3 Moms?
Want us to cover a topic? Ask us a question? Facebook page @Schizophrenia3Moms
Randye Kaye -Broadcaster, Actress, Voice Talent, Speaker, and Author (“Ben Behind his Voices”, Happier Made Simple)
Miriam Feldman – Artist, Mom, Author “He Came in With It”
Mindy Greiling – member of the Minnesota House of Representatives for twenty years. Activist, Legislator, Author (“Fix What You Can“)
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
Mothers and Sons: Family, Mental Illness and Love (Ep. 77)
Schizophrenia: Three Moms in the Trenches
11/06/23 • 46 min
Send a Text to the Moms - please include your contact info if you want a response. thanks!
A Just Us Episode
- Can Families Help Prevent Tragedy? “The family of the gunman who killed 18 people last week in Maine contacted police with concerns about his mental health and access to guns more than five months before the massacre, according to their local sheriff.”
Listen to families!!!!
TIME magazine:
Five months before the deadliest mass shooting in Maine’s history, the gunman’s family alerted the local sheriff that they were becoming concerned about his deteriorating mental health while he had access to firearms, authorities said Monday.
- The Harris Project (see Episode 53) and the national PSA film, “You Don’t Know the Half of It,”
The film will be shown to policymakers in Washington, DC and has the support of social media influencers. the harris project hopes the film not only raises awareness for co-occurring disorders but also jumpstarts system transformation nationwide.
- A listener asks: What is your relationship like with your son — NOW?
“How was it before he was sick — not how was he - but how were you all as mother and son? How has it changed? How are you mother and son now?
I’d love to hear how you three women have learned to cope specifically with this - not the medicine, the addictions, the system, policies, laws, judicial system, stigmas - but how did you live through this and cope with the loss?”
Mindy and her book: https://mindygreiling.com/
Randye and her book: https://www.randyekaye.com/
Miriam and her book: https://www.miriam-feldman.com/
Want to know more?
Join our facebook page
Our websites:
Randye Kaye
Mindy Greiling
Miriam (Mimi) Feldman
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FAQ
How many episodes does Schizophrenia: Three Moms in the Trenches have?
Schizophrenia: Three Moms in the Trenches currently has 116 episodes available.
What topics does Schizophrenia: Three Moms in the Trenches cover?
The podcast is about Suicide, Health & Fitness, Stress, Parenting, Kids & Family, Mental Health, Family, Podcasts, Trauma and Mental Illness.
What is the most popular episode on Schizophrenia: Three Moms in the Trenches?
The episode title 'Navigating Psychosis & Behavioral Health Systems: Against All Odds: Dr. Gary Tsai (ep. 52)' is the most popular.
What is the average episode length on Schizophrenia: Three Moms in the Trenches?
The average episode length on Schizophrenia: Three Moms in the Trenches is 51 minutes.
How often are episodes of Schizophrenia: Three Moms in the Trenches released?
Episodes of Schizophrenia: Three Moms in the Trenches are typically released every 11 days, 17 hours.
When was the first episode of Schizophrenia: Three Moms in the Trenches?
The first episode of Schizophrenia: Three Moms in the Trenches was released on Jan 14, 2021.
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