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Patients Rising Podcast

Patients Rising Podcast

Patients Rising

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5.0

(12)

Patients Rising brings its unique and established brand of patient advocacy to a weekly podcast, featuring honest and helpful discussions about issues impacting those with chronic illness. CEO Terry Wilcox hosts the show, with Robert "Dr. Bob" Goldberg, Co-Founder and Vice President of the Center for Medicine in the Public Interest.
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5 Listeners

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5.0

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Top 10 Patients Rising Podcast Episodes

Goodpods has curated a list of the 10 best Patients Rising Podcast episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to Patients Rising Podcast for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite Patients Rising Podcast episode by adding your comments to the episode page.

Patients Rising Podcast - The Power of Patient Data

The Power of Patient Data

Patients Rising Podcast

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06/03/22 • 32 min

Precision medicine harnesses the power of genetic data, which can improve treatment regimens and overall outcomes for patients. But accessing that data remains another challenge. Field correspondent Kate Pecora speaks with advocate Christine Von Raesfeld about how patient access to data can be a game-changer, and what can be done to expand that across the chronic disease community.

Plus, did you see your 2022 Medicare premium go up? Terry and Dr. Bob discuss why. They also deliver health policy updates from Capitol Hill that impact patients, including new legislation introduced that would shed light on the practices of drug supply chain middlemen known as pharmacy benefit managers (PBMs).

And June marks National Scleroderma Awareness Month. Patient correspondent Amy shares why more research funding is needed to understand this illness.

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent

Guests:

Christine Von Raesfeld, CEO and Founder, People with Empathy

Amy Gietzen, Patient Correspondent

Links:

E&C Leaders Unveil FDA User Fees Legislative Package | Democrats, Energy and Commerce Committee

2022 Medicare Costs

Statement from HHS Secretary Becerra: 2022 Medicare Part B Premium Increase Attributable to Alzheimer's Drug Aduhelm

MDUFA Up for Renewal, Congress Recommends a Facelift | Patients Rising Now

June Is National Scleroderma Awareness Month | NIAMS

Pharmacy Benefit Manager Transparency Act of 2022

Grassley, Cantwell Introduce Bipartisan Bill to Combat Rising Prescription Drug Prices and Provide More Transparency

Patients Rising Now Submits Comments to the FTC on the Impact of Pharmacy Benefit Managers on Patients

Patients Rising Now Joins over 100 Associations on Pharmacy Benefit Managers Letter

Prosperdtx Launches Strategic Collaboration with Health Equity Researchers and Seqster to Improve Health Equity for Cancer Patients

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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Patients Rising Podcast - How Nurse Navigators Can Help You

How Nurse Navigators Can Help You

Patients Rising Podcast

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04/29/22 • 29 min

Have you ever felt overwhelmed or confused in your health care journey? Many patients juggle numerous phone calls and appointments with labs, pharmacists, and specialists, while also trying to understand what is and isn’t covered. To help, some health plans have recruited nurse navigators, like Faith Barron.

In this episode, Faith provides a look into the role of nurse navigators and how she helps patients find high-quality providers, understand their medical claims, and triage communication from all members of the care team.

Field correspondent Kate Pecora also speaks with one of Faith’s patients, Sheridan Keck. She shares how Faith guided her through her cancer diagnosis.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent

Guests:

Faith Barron,RN, Nurse Navigator, Concierge Nurse Navigators

Sheridan Keck

Links:

Alzheimer's Trials Exclude Black Patients at 'Astonishing' Rate

Why We Need Patient Diversity in Clinical Trials

Full Committee Hearing: FDA User Fee Agreements: Advancing Medical Product Regulation and Innovation for the Benefit of Patients, FDA Center Directors

Health Plan Hero

Health Plan Hero: Matheny Motors

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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2 Listeners

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Patients Rising Podcast - Can Biosimilars Save You Money?

Can Biosimilars Save You Money?

Patients Rising Podcast

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07/15/22 • 34 min

Biosimilars have the potential to lower costs. But due to middlemen like pharmacy benefit managers (PBMs), those savings don’t always trickle down to patients at the pharmacy counter. How can we fix this system?

Julie Reed, executive director of the Biosimilars Forum, joins the podcast to explain what biosimilars are, why uptake has been slow, and what can be done to improve patient access and lower costs.

We also hear from Lauren Kopsick, who shares her experience navigating burdensome step therapy requirements for her son’s care.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent

Guests:

Julie Reed, Executive Director, Biosimilars Forum

Lauren Kopsick, Founder, Parent it Forward

Becca Vacha, Patient Correspondent

Links:

Patients Rising Now Announces Masterclass Graduates

Patient Action Center

Learning Module: The Role Biologics & Biosimilars Can Play in Healthcare

Lend Your Voice to Support the Safe Step Act Here

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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2 Listeners

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Patients Rising Podcast - Where Does Congress Go from Here?

Where Does Congress Go from Here?

Patients Rising Podcast

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02/04/22 • 36 min

With Congress back in D.C. this week, the hill looks to debate on current legislation. This includes the Build Back Better plan, which has several health policies that would affect patients, particularly those on Medicare. To discuss these policies we hear from health policy expert Charla Penn from Winning Strategies Washington. While the future of BBB appears dim, she shares what policies might survive, be scaled down, or cut altogether.

Plus, hear from Beth Waldron, a patient advocate who suffers from both deep vein thrombosis DVT and pulmonary embolism PE. Beth’s insurance company recently forced her to be non-medically switched from a blood-thinning medicine she’s been stable on for the past eight years. Learn more about how insurance companies can hinder the doctor-patient relationship for chronic disease patients across the country.

And do you have a favorite Superbowl snack? Terry and Bob weigh-in.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent

Guests:

Charla Penn, Health Care Policy Specialist, Principal at Winning Strategies Washington.

Beth Waldron, Patient Advocate

Beth Steckler, Patient Correspondent

Links:

Build Back Better Plan

AARP Insurance

Exclusive: US diabetes deaths top 100,000 for second straight year | Reuters

AARP's Stop Rx Greed Campaign Should Focus on AARP's Rx Greed

Terry Wilcox Op-Ed: AARP’s drug pricing conflict of interest

Real Stories from People Who Have Experienced Blood Clots - Beth Waldron | CDC

Non-Medical Switching Hurts Patients Rising Podcast Episode

Center for Medicine in the Public Interest

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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Patients Rising Podcast - Patient Advocacy on Capitol Hill

Patient Advocacy on Capitol Hill

Patients Rising Podcast

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04/22/22 • 30 min

Frustrated with the health care system? Want to improve health care access, affordability, and transparency for you or a loved one? Learn how to make your voice heard by decision-makers on Capitol Hill by joining us for our 2022 #WeThePatients Fly-In happening on June 14th and 15th in Washington, D.C.

Terry and Dr. Bob outline the top policy priorities for the chronic illness community and fibromyalgia patient advocate Melissa Talwar underscores the importance of patient advocacy and how you can embark on your own advocacy journey.

And field correspondent Kate Pecora takes listeners international with her conversation with Megan Staley, who gives listeners a look into her life with Behcet’s and endometriosis.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent

Guests:

Megan Staley, Patient Advocate

Melissa Talwar, Executive Director, Support Fibromyalgia Network

Links:

Attend the 2022 We the Patients Fly-In

Patient Education

Advocacy Master Class - Patients Rising Now

Patients Rising Now

Endo Girl - Youtube Channel

Hospitals' massive cancer drug markups

Contributor: Reform Medicare's Payment Policy to Expand Patient Access to Nonopioids

Season 3 | Episode 13: How PBMs Raise Costs for Patients + Pharmacies

Patients Rising Now

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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1 Listener

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Patients Rising Podcast - Living with Lupus

Living with Lupus

Patients Rising Podcast

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03/26/21 • 31 min

This week, the Institute for Clinical and Economic Review (ICER) deliberates the fate of insurance coverage for patients with lupus.

In this episode, Mollee Huffman shares her diagnosis of lupus, how it impacted her Navy career and day-to-day life.

Plus, Terry and Dr. Bob look at how hospitals are making it impossible for patients to Google search their prices, drug pricing legislation in Congress (H.R. 3), and what ICER’s poor track record for undervaluing drugs signals to the lupus community awaiting their review.

Guest:

Mollee Huffman

Chronic Illness Advocate and Patient

Links:

Mollee Huffman

ICER’s Lupus Nephritis Public Meeting (3/26)

Hospitals Hide Pricing Data From Search Results

States are Eyeing Public Option Health Plans. Many Obstacles Stand in the Way.

House Passes Bill That Would Extend Medicare Sequester Cuts Until December

Drug Pricing, Climate, Immigration: House Dems Eye ‘Kitchen Sink’ for Next Big Bill

ICYMI: Last Word: ICER’s flawed pricing recommendations for new high cholesterol treatments

Patient Correspondent: Megan Staley

Patients Rising Concierge

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands. Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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Patients Rising Podcast - Making Sense of California’s Healthcare News
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02/11/22 • 35 min

A bid for universal healthcare falters in California. Meanwhile, the state is posed to take up misleading “Right to Repair” legislation that would allow technicians who are not held to FDA safety standards to operate on medical equipment. What are the ripple effects for patients across the country? Health policy expert Sally Pipes of the Pacific Research Institute explains what patients should know.

And hear about what’s happening at the federal level, including potential bipartisan solutions for drug pricing legislation and Medicare coverage for COVID-19 tests.

Plus, guests Eric Koleda and James Barley discuss how hyperbaric oxygen therapy (HBOT) has helped veterans overcome PTSD and traumatic brain injuries (TBI). However, accessing and affording this care remains a challenge. And the “Real Forrest Gump,” Vietnam Veteran Sammy Lee Davis and his wife Dixie share their personal stories about how HBOT has impacted their lives.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent

Guests:

Sally Pipes, President and CEO, Pacific Research Institute

Eric Koleda, Veteran and Director of HBOT4KYVETS

James Barley, Brigadier General, Desert Storm and Vietnam Veteran

Sammy Lee Davis, “The Real Forrest Gump,” Medal of Honor Recipient

Dixie Davis

Links:

TreatNOW

Cancer Moonshot Fact Sheet

Universal Healthcare - CA

Right to Repair Act

Biden-Harris Administration Will Cover Free Over-the-Counter COVID-19 Tests Through

Medicare | CMS

Build Back Better Act

Hyperbaric Oxygen Therapy: Get the Facts | FDA

HBOT for Kentucky Vets

Letter Supported: Opposition to any “Right to Repair” Legislation - Patients Rising Now

Survey: Most Californians believe worst of COVID is over | The Sacramento Bee

California's single-payer bill dies - POLITICO

Is Your Medical Equipment Safe? | Patients Rising Podcast

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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Patients Rising Podcast - Can Virtual Doctor Visits Improve Your Health?
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01/07/22 • 38 min

With COVID-19 cases on the rise, remote care through telehealth is critical to keep patients safe. But it also serves a vital role beyond the pandemic. For chronic disease patients, it can unlock greater access to care regardless of where you live.

Former U.S. Secretary of the Department of Veterans Affairs, Dr. David Shulkin, led the charge to implement telehealth services within the VA. His model is a blueprint for success for broader telehealth adoption across all patient populations. Plus, Terry and Dr. Bob debunk the myth that telehealth isn’t a legitimate option for chronic and rare disease patients.

And Wisconsin rare disease advocate Kerri Engebrecht shares her mission to make patient voices heard by establishing a Rare Disease Advisory Council within the state legislature.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent, Patients Rising

Guests:

David Shulkin, MD, Former U.S. Secretary of the Department of Veterans Affairs

Kerri Engebrecht, Wisconsin Rare Disease Advocate

Nikki Lott, Patient Correspondent

Links:

The No Surprises Act Took Effect January 1; Here’s What It Means for Your Medical Bills

FDA Authorizes Pfizer COVID-19 boosters for 12 to 15 year olds

White House Aims to Improve Government’s Healthcare ‘Customer Service’

Telehealth in the Post-Pandemic World: What Do Stakeholders Want?

Telemedicine As The New Face of Healthcare in the US?

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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1 Listener

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Patients Rising Podcast - Congress’ Healthcare Showdown

Congress’ Healthcare Showdown

Patients Rising Podcast

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03/18/22 • 25 min

Healthcare discussions in Washington are in full swing this week. Both the House and Senate meet to discuss a multitude of bills affecting everyday Americans, specifically those with rare and chronic diseases. Hosts Terry Wilcox and Dr. Bob break down the D.C. lingo and highlight three healthcare bills that will shape access to care and elevate patient voices: Cures 2.0, the BENEFIT Act, and the STAT Act.

Lastly, what does the future hold for telehealth appointments? The use of telehealth medicine has skyrocketed, but does your insurance cover it? Hear from Monica Bryant, Chief Operating Officer at Triage Cancer, who gives the must-ask questions patients should ask of their insurance plan to find out if they’re covered.

Hosts:

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent

Guests:

Monica Bryant, Chief Operating Officer Triage Cancer

Links:

Benefit Act

Cures 2.0

STAT ACT

What is Telemedicine | Will it be accessible to those who need it most?

Senate Hearing: Prescription Drug Price Inflation: An Urgent Need to Lower Drug Prices in Medicare

House Hearing: on "The Future of Medicine: Legislation to Encourage Innovation and Improve Oversight" | Democrats, Energy and Commerce Committee

Triage Cancer

What is “Telehealth” & Does Your Insurance Cover it? Resources

Telehealth Has Played an Outsized Role Meeting Mental Health Needs During the COVID-19 Pandemic

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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Patients Rising Podcast - Have Health Plans Abandoned Rare Disease Patients?
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05/13/22 • 36 min

“Your medication is no longer covered” are the words no patient wants to hear. Yet this is a common occurrence for patients with rare diseases who are on private health insurance plans. In an effort for plans to save money, they’re dropping coverage for rare disease treatments and sending patients to patient assistance funds.

But once those funds are maxed out, it can leave patients on the hook for enormous copays. Guest Randi Clites of the Little Hercules Foundation shares how her son’s hemophilia treatment was dropped unexpectedly from their plan. Now, she’s on the hook for a $21,000 bill.

Kelly Maynard, Founder and President of the Little Hercules Foundation, also joins the show to share how private plans are able to get away with this, and policy solutions that can close the loophole and protect patient coverage for rare disease treatments.

Terry Wilcox, Executive Director, Patients Rising

Dr. Robert Goldberg, “Dr. Bob,” Co-Founder and Vice President of the Center for Medicine in the Public Interest

Kate Pecora, Field Correspondent

Guests:

Kelly Maynard, President of the Little Hercules Foundation

Randi Clites, Rare Disease Policy Director of the Little Hercules Foundation

Angela Deeds, Patient Advocate

Links:

Trends of Prescription Drug Manufacturer Rebates in Commercial Health Insurance Plans, 2015-2019

Hospitals Look to Raise Treatment Costs as Nurses' Salaries Increase - WSJ

Little Hercules Foundation

Need help?

The successful patient is one who can get what they need when they need it. We all know insurance slows us down, so why not take matters into your own hands? Our Navigator is an online tool that allows you to search a massive network of health-related resources using your zip code so you get local results. Get proactive and become a more successful patient right now at PatientsRisingConcierge.org

Have a question or comment about the show, or want to suggest a show topic or share your story as a patient correspondent?

Drop us a line: [email protected]

The views and opinions expressed herein are those of the guest(s)/ author(s) and do not reflect the official policy or position of Patients Rising.

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FAQ

How many episodes does Patients Rising Podcast have?

Patients Rising Podcast currently has 205 episodes available.

What topics does Patients Rising Podcast cover?

The podcast is about Health & Fitness, Medicine and Podcasts.

What is the most popular episode on Patients Rising Podcast?

The episode title 'How Nurse Navigators Can Help You' is the most popular.

What is the average episode length on Patients Rising Podcast?

The average episode length on Patients Rising Podcast is 33 minutes.

How often are episodes of Patients Rising Podcast released?

Episodes of Patients Rising Podcast are typically released every 7 days.

When was the first episode of Patients Rising Podcast?

The first episode of Patients Rising Podcast was released on Feb 28, 2020.

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