Mortal And Strong - Scars of Gold - Voice No. 76 Roxy

03/11/25 • 49 min

Another interview from a fiercely determined health advocate Roxy - also known as Multiple Sclerosis Fashionista. Roxy is the latest Voice in the 100 women sharing their story for the Scars of Gold campaign and talks about how her MS symptoms first began when she was 18 years old. Originally mis-diagnosed as Lupus and multiple other autoimmune conditions, Roxy spent 8 years feeling like something wasn't quite adding up. When Roxy finally had the confirmed diagnosis of MS she shares what many other people relate to - relief - relief at finally having answers and something that made sense for her symptoms. Roxy was unable to finish University because of her condition but shares how she has used her skillsets and has worked for many years to become 'the voice for the voiceless' as championing representation has become her mission with so much of the work she does. Roxy shares her involvement with MS Society and the work she does with organisations to drive better inclusivity and representation - emphasising the need for having voices of lived experience involved with health care decisions but also the importance of diversity and inclusivity with this, leaving us with the quote 'be the change you want to see'.

Thank you to Roxy for sharing her scars of gold with us. Scars of Gold is a health awareness campaign sharing the voices of 100 women facing their mortality at a young age with life changing or incurable health conditions. Produced by the charity @mortalandstrong (No. 1209448).

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Hosted on Acast. See acast.com/privacy for more information.

Previous Episode

Mortal And Strong - Voice No. 75 - Pretti

Our latest voice - and number 75 out of 100 - is the beautiful and bright smiling soul that is Pretti. Pretti shares with us her experience of invasive ductal breast cancer. We interviewed Pretti just as she was finishing active treatment - a very poignant moment where many people think/presume because active treatment has finished that the individual is 'finished' with cancer and ready to 'move on' back to life. Pretti provides a beautifully honest and optimistic example of how this moment in the cancer pathway is actually, for some, as important as the active treatment. The point in time where the realisation of the enormity of the impact begins to set in, and the reflections happen and the mind begins to process the life changing diagnosis. Pretti shares all this with us and how finding a way to share this with her children, taking her health into her own hands with exercise has been so crucial for her.

Thank you to Pretti for being another wonderful Voice bringing joy into our Scars of Gold campaign. Scars of Gold is a health awareness campaign sharing the voices of 100 women facing their mortality at a young age with life changing or incurable health conditions. Produced by the charity @mortalandstrong (No. 1209448)

#podcast #podcastprevious #interview #mortalandstrong #scarsofgold #kintsugi #hope #pov #dr #drliz #drlizmurray #art #documentary #realvoices #breastcancer #cancer #mortal #womenshealth #healthmatters #healthadvocate #healthinequalities

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Next Episode

Mortal And Strong - Scars Of Gold - Voice NO. 74 Nikki

Nikki is our latest Voice to share with us her reflections on living over 3 years with secondary breast cancer. After her close friend was diagnosed with breast cancer, Nikki had been breast aware but only thought the symptoms to be mindful of were lumps until seeing one of the Lorraine 'change and check' stickers at a hair salon. This alerted her to the fact that pain could be a symptom and prompted her to have her symptoms checked despite not having a lump. This was 5 years ago and Nikki was initially diagnosed with triple negative breast cancer (primary), after finishing treatment and receiving the 'all clear' Nikki then began to have symptoms that were initially suspicious of a stroke. After investigations, this then turned out to be brain metastases and was told her cancer was no longer curable. Nikki reflects how being given a secondary diagnosed changed her perspective on so much, whilst also sharing some humour with how the brain tumour gave her a slightly more impulsive trait to her personality leading to some home renovations which her and her husband later laughed about. Nikki's thoughts on how ;'knowing you're facing your mortality actually makes you live more' are so poignant and Nikki is a prime example of how she has strived to embrace life to it's fullest 'you can't change what's happening to you, but you can change how you react'. Nikki has gone on to do so much work with the breast cancer community, being a voice to help change the support available for women with secondary and triple negative cancer. Thank you so much to Nikki for being another beautiful Voice sharing with us her Scars of Gold.

Scars of Gold is a health awareness campaign sharing the voices of 100 women facing their mortality at a young age with life changing or incurable health conditions. Produced by the charity @mortalandstrong (No. 1209448)

Hosted on Acast. See acast.com/privacy for more information.