Mad in America: Rethinking Mental Health

Audrey Clare Farley is a writer, editor, and scholar of 20th-century American culture with a special interest in science and religion. She earned a PhD in English literature at the University of Maryland, College Park. She now teaches a course on U.S. history at Mount St. Mary’s University.

Her first book, The Unfit Heiress: The Tragic Life and Scandalous Sterilization of Ann Cooper Hewitt, tells the story of a 1930s millionairess whose mother secretly sterilized her to deprive her of the family fortune, sparking a sensational case and forcing a debate of eugenics. Her second book, which we will be discussing today, Girls and Their Monsters: The Genain Quadruplets and the Making of Madness in America, explores the lives of the four women behind the National Institute of Mental Health’s famous case study of schizophrenia. It was named a New York Times Editors’ Pick and will be the focus of our conversation today.

Audrey’s essays have appeared in the Atlantic, New York Times, Washington Post, and many other outlets. She lives in Hanover, Pennsylvania.

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Mad in America podcasts and reports are made possible, in part, by a grant from the Thomas Jobe Fund.

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Today, we bring you the second in our series of podcasts on the topic of the global mental health movement. These interviews are led by our Mad in America research news team.

On October 9th and 10th, 2018, World Mental Health Day, the UK government hosted a Global Mental Health Ministerial Summit with the intention of laying out a course of action to implement mental health policies globally. In the same week, The Lancet Commission on Global Mental Health and Sustainable Development published a report outlining a proposal for “scaling up” mental health care globally. In response, a coalition of mental health activists and service-users have organized an open letter detailing their concerns with the summit and report. The response has attracted the support of policy-makers, psychologists, psychiatrists, and researchers.

In our last episode, we were joined by Dr Melissa Raven, a critical psychologist and epidemiologist, who discussed problems with the scientific evidence base used by the global mental health movement. She also emphasized the need to consider responses to the distress and suffering of people globally that address the social determinants of mental health, including poverty, education, and healthcare.

Today we turn our focus to the concerns raised by mental health activists in response to the UK summit and the Lancet report. To discuss these issues, we are joined first by Jhilmil Breckenridge, a poet, writer and mental health activist and later by social science researcher Dr Bhargavi Davar.

Jhilmil is the Founder of Bhor Foundation, an Indian charity, which is active in mental health advocacy, the trauma-informed approach, and enabling other choices to heal apart from the biomedical model. Jhilmil also heads a team leading Mad in Asia Pacific; this is an online webzine working for better rights, justice and inclusion for people with psychosocial disability in the Asia Pacific region. She is currently working on a PhD in Creative Writing in the UK and, for the last three years, she has also been leading an online poetry as therapy group for women recovering from domestic violence.

She is working on a few initiatives, both in the UK and India, taking this approach into prisons and asylums. Her debut poetry collection, Reclamation Song, was published in May 2018.

For our second interview, we are joined by Dr Bhargavi Davar. She identifies as a childhood survivor of psychiatric institutions in India. She went on to train as a philosopher and social science researcher at the Indian Institute of Technology in Bombay and has published and co-edited several books, including Psychoanalysis as a Human Science, Mental Health of Indian Women, and Gendering Mental Health, while also producing collections of poems and short stories. Dr Davar is an international trainer in the Convention on the Rights of Persons with Disabilities (CRPD) and the founder of the Bapu Trust for Research on Mind and Discourse in Pune, India. This organization aims to give visibility to user/survivor-centred mental health advocacy and studies traditional healing systems in India.

This week on MIA Radio we interview Sera Davidow, a psychiatric survivor and prolific activist for the human rights of people labeled mentally ill. Sera serves as the Director of the Western Massachusetts Recovery Learning Community and is a founding member of the Hearing Voices USA Board of Directors.

Through her work, she has gained a range of experiences including starting up a peer respite, opening resource centers, and producing educational materials on non-coercive, non-pathologizing alternatives to the traditional mental health system. Sera is a regular blogger for Mad in America and has written extensively on the topics of forced treatment and sexual violence.

In this interview, we discuss the parallels and intersections between coercive psychiatric care and sexual assault.

• Sera’s lived experience as a psychiatric survivor and survivor of sexual violence.
• The similarities between sexual violence and forms of psychiatric abuse including forced drugging, forced intubation, forced catheterization, strip searches, restraint, and containment
• How even seemingly minor or routine parts of psychiatric hospitalization, such as regularly monitoring patients, can be violating
• The role that victim-blaming and gaslighting play in both sexual violence and psychiatric coercion
• That the language and terminology of the mental health system such as “mental illness,” “noncompliance,” and “anosognosia” serve to perpetuate violence
• That people’s discomfort with big emotions and taboo topics often prevent trauma survivors from speaking about their experiences within psychiatric settings
• How we can help providers and the general public understand the trauma and violence of psychiatric coercion

Sera Davidow

A World That Would Have Us Doubt: Rape, the System, and Swim Fans

Us, Too: Sexual Violence Against People Labeled Mentally Ill

Feminism 101: What is Gaslighting?

To get in touch with us email: [email protected]

© Mad in America 2018

On MIA Radio this week, MIA’s Gavin Crowell-Williamson interviewed Adriane Fugh-Berman, MD, a professor in the Department of Pharmacology and Physiology and in the Department of Family Medicine at Georgetown University Medical Center (GUMC).

She is the director of PharmedOut, a GUMC research and education project promoting rational prescribing and exposing the effects of pharmaceutical marketing on prescribing practices. Dr. Fugh-Berman leads a team of volunteer professionals that has deeply impacted prescribers’ perceptions of the adverse consequences of industry marketing.

She is interested in physician-industry relationships and is an expert witness in litigation regarding pharmaceutical marketing processes. She was formerly a medical officer in the Contraception and Reproductive Health Branch of the National Institute for Child Health and Human Development.

Dr. Fugh-Berman is the lead author on key articles on physician-industry relationships, including a national survey of industry interactions with family medicine residencies, exposés of how ghostwritten articles in the medical literature are used to sell drugs, an analysis of drug rep tactics, and an explanation of industry publication planning.

She wrote the first chapter on alternative medicine to appear in Harrison’s Principles of Internal Medicine and authored the first clinicians’ reference text on dietary supplements, the 5-Minute Herb and Dietary Supplement Consult, as well as an evidence-based book aimed at consumers, Alternative Medicine: What Works.

In addition to dozens of articles in peer-reviewed literature, Dr. Fugh-Berman coauthored The Truth about Hormone Therapy and co-edited The Teratology Primer. Dr. Fugh-Berman is the former chair of and currently writes a column for the National Women’s Health Network, a consumer advocacy group that takes no money from industry. Dr. Fugh-Berman has appeared on 20/20, the Today Show, and every major news network.

This week on MIA Radio we interview Dr. Stuart Shipko. Dr. Shipko is a psychiatrist in private practice in Pasadena, California and author of the books Surviving Panic Disorder, Xanax Withdrawal and Dr. Shipko’s Informed Consent for SSRI Antidepressants.

Stuart has over 30 years' experience as a psychiatrist and an extensive background in the psychotherapies. He writes for Mad in America on issues relating to SSRI withdrawal and he has a particular interest in the side effects and withdrawal effects of antidepressants and benzodiazepines and the need for informed consent when prescribing.

We discuss: SSRI withdrawal, Tardive Akathisia, informed consent and psychiatric drug tapering.

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