Julia and Herb Beron share a moving story of courage, resilience, and autonomy.
Julia's never known life without CMT. Having had falls, foot and knee surgeries, hearing loss, and a diagnosis of Type 1 diabetes, Julia, with her family's unconditional support, keeps moving forward with grace, independence, and self-confidence. Hear her story. Learn her secrets. Watch her future. It's going to be amazing!
Highlights
- Who is Sally and how did she give Julia so much freedom?
- The best day of her life – where's the cat?
- Julia gives dating advice. You are going to love it!
- Rachael's Practicality + Herb's Emotional Intelligence = Julia's Brilliance
- If you had one wish? You won't believe their answers.
*Herb Beron is a member of the CMTA Board of Directors and a long-time supporter of CMTA.
*Julia Beron is a previous member of the Youth Council, Co-Illustrator of the book, Walk A Mile In My Braces, and Co-Leader of the CMTA COMPASS Group for Young Adults with CMT.
CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you’d like to share? Write to [email protected]. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org
For more information about CMT and to support the CMTA, please visit www.cmtausa.org
08/17/22 • 60 min
CMT 4 Me - Support. Love. Family. with Julia and Herb Beron
Transcript
All right, Elizabeth, you wanna do the countdown, girl?
- You always do the countdown.
- All right, here we go. One, two, three. Hello, everyone, this is Chris and Lizzo.
- We are a brother sister team.
- On behalf of the Charcot Marie Tooth Association, aka CMTA, we are coming at ya.
- Coming at you from coast to coast. I live in California and Chris lives in Vermont.
- And this is another fantastic episode of our famous podcast, named what, Lizzo?
- CMT, the number four,
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