On this episode of the CMT 4 Me, Chris and Liz O introduce Edmonton CMTA Branch leader Victoria Berezovich. Victoria is known as CMT Barbie because she is a model with Kello Inclusive. She’s also one of the stars of the docu-series Push which takes place in Canada and gives viewers an inside look at a diverse group of people living with physical disabilities.

Are you ready to be moved by Victoria's story? Here are three impactful moments you won't want to miss:

Finding a supportive community: Victoria emphasizes the importance of having a supportive community while living with a progressive disease like CMT. She shares her experiences with the CMT community and her advocacy work, which have helped her find support and strength.

Advocacy work: Victoria is a passionate advocate for people with disabilities, and her work has made a significant impact in the CMT community. She has been actively involved in advocacy work and has raised her hand to be a CMTA branch leader in Edmonton, Canada. She encourages others to get involved in advocacy work as well.

“Push”-ing boundaries Victoria talks about her experience on the docu-series "Push," available on the GEM Network in Canada, which takes you inside and intimately with a very special disabled group in Edmonton, coined the “Wheelie Peeps.” The show follows people with disabilities as they navigate life through good times and bad. Victoria shares how the show has helped her push boundaries and break stereotypes, and how she found support through acceptance, knowledge, and one big ambition - to live life to the fullest.

Don't miss this inspiring conversation with Victoria Berezovich! Listen to the full episode of the CMT 4 Me podcast to learn more about her experiences and advocacy work. And if you want to get involved in the CMT community, consider participating in the Cycle 4 CMT event or other advocacy work. Together, we can make a difference!

CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal is to spread CMT awareness and unite as a community. We will also cover research updates, fundraising, unique stories, interviews with the CMTA community, including board members, branch leaders, and CMTA team members. Have a story you’d like to share? Write to [email protected]. You may be our next guest on the new CMT 4 ME podcast! For more information on the CMTA, please visit our website: cmtausa.org

For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Charcot-Marie-Tooth (CMT) disease comes with its set of daily mobility challenges, intensified by the search for comfortable and supportive footwear amidst nerve damage, foot weakness, and deformities. In this episode of the official podcast of the CMTA, we explore adaptive solutions that bring hope and enhanced mobility to those living with CMT.

Hosts Chris and Liz O. welcome Tom DuPont for a heartfelt discussion about his life with CMT. Tom opens up about his battle with the disease, from initial diagnosis to finding innovative footwear and support devices that have significantly improved his mobility and quality of life.

• Tom DuPont's CMT Journey: A look into Tom's early symptoms, the diagnosis process, and how he successfully manages his CMT with adaptive devices and footwear.
• Innovative Solutions for Better Mobility: Tom showcases the external braces and neoprene silicon boots that have been transformative in his fight for comfort and stability, shedding light on the importance of innovative mobility solutions.
• The Power of Determination: Highlighting Tom's philosophy of "move it or lose it," this segment emphasizes the importance of staying active to slow CMT progression, inspired by Tom's unwavering determination.
• A Peek into Future Innovations: Tom discusses the exciting potential of 3D-printing technology in creating personalized mobility solutions for those with CMT, pointing to a future of even greater adaptability and support.

Join us as we explore personal stories, breakthroughs, and insights within our CMT community. As the official podcast of the CMTA, "CMT 4 Me" is your monthly source of inspiration, information, and community connection. Don't miss out on this empowering experience—join our journey to navigate and improve life with CMT together.

If you found the information above informative and want to stay up-to-date with topics related to accessibility and disability rights, please follow CMT 4 Me podcast on your favorite platform and our social media channels:

-Join our email list at www.podpage.com/CMT4Me

By following us on these platforms, you'll receive regular updates on news, events, and resources related to Charcot-Marie-Tooth disease and disability inclusion. And if you have a moment, we would greatly appreciate it if you could leave us a rating and review on your favorite podcast platform.

Please note that the transcript provided by Apple Podcasts for the CMT 4 Me podcast is generated using AI models, which may result in inaccuracies or errors in the transcript. If you prefer to consume the podcast with human-generated captions, we invite you to check out our "Raw & Unedited" series on YouTube. Thank you for your understanding and support.
CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me provides a platform for people with CMT to have a voice, describe challenges, find ways to overcome those challenges, and share successes. Another goal

For more information about CMT and to support the CMTA, please visit www.cmtausa.org

Yohan Bouchard was diagnosed with CMT (Charcot-Marie-Tooth disease) at age 7, resulting from a new, spontaneous mutation. With the mind of a warrior and the support of family, friends and the CMT community, Yohan deals with CMT using integrity, compassion, and insight. Living in the now, Yohan willingly accepts the challenges of CMT, skilfully redirects its forces and creates positivity and hopefulness for all.
For more information about CMT and to support the CMTA, please visit www.cmtausa.org

For more information about CMT and to support the CMTA, please visit www.cmtausa.org

In this episode, we hear from Jeff Seitzer, a stay-at-home dad, and author of "The Fun Master," who was diagnosed with CMT at a young age. Despite facing incredible challenges, Jeff has shown remarkable resilience and positivity. He shares his story of how he learned to find joy in the face of hardship and triumph over tragedy.
Jeff discusses his journey of finding what works best for him when it comes to managing CMT. He emphasizes the importance of discovering what works best for each individual, which may require some experimentation, but the effort is worth it in the end.
Jeff also shares his deeply personal journey of coping with loss after losing his young son Ethan while trying to save their lives while swimming in the powerful currents of Lake Michigan. He talks about how he and his family have been coping with grief and how it has affected his life with CMT.
Despite the challenges he faced when his son Ethan was born with special needs, including surgeries, hospitalizations, breathing and swallowing problems, hearing loss, and a difficult social environment, Ethan thrived and taught Jeff to take things as they come. Later, Jeff and his family adopted Penelope from China, and Jeff learned that true happiness comes from putting others first and living in the moment.
Jeff's journey of resilience and positivity is chronicled in his book, "The Fun Master," where he shares valuable insights and lessons he learned through his experiences.
Jeff's story is a reminder that even in the darkest of times, there is light at the end of the tunnel. With a positive attitude, determination, and the support of loved ones, anyone can overcome any obstacle.
Jeff Seitzer is a finalist in the 2022 Best Book Award and is serving as a distinguished reader in the Do the Write Thing Challenge in Chicago, a program that encourages kids to write essays about how violence affects their lives. Winners of the challenge will travel to DC to speak with leaders about reducing violence that affects their futures.
You can learn more about Jeff and his work by visiting his website at jeffreyseitzer.com. His book, "The Fun Master," is available at major online retailers such as Amazon, Barnes and Noble, and Target, as well as local bookstores.
Don't forget to follow the CMT 4 Me Podcast for more inspiring stories like Jeff's and to stay up to date on the latest developments in the CMT community. You can follow us on Instagram @CMT4Me and on Facebook at https://www.facebook.com/profile.php?id=100087317297516.
Please leave us a positive review on your favorite podcast platform, as this really helps spread awareness about CMT.
For more information about CMT and to support the CMTA, visit their website at www.cmtausa.org. You can also join the CMTA Emotional Support group at https://www.cmtausa.org/emotional-support-group/, read Liz O's Blog at https://bestfoot4wardblog.com/tag/elizabeth-ouellette/, donate to the CMTA at https://www.cmtausa.org/ways-to-give/imagine-whats-next/, and check out Camp Footprint if you have children with CMT at https://www.cmtausa.org/get-involved/camp-footprint/.
CMT 4 Me is hosted by Chris Ouellette and Elizabeth Ouellette, produced by iRonick Media
CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family,

For more information about CMT and to support the CMTA, please visit www.cmtausa.org

In this episode of the CMT 4 Me podcast, we are joined by Ashley, a rehabilitation engineer with CMT. Ashley shares with us what a typical day looks like for her and what her focus is, which is to use her engineering background to improve people's lives. Ashley works with individuals to modify their homes and work sites to make them more accessible, as well as helps students with technology to complete their assignments.

During the conversation, Ashley shares some of the amazing projects she has worked on, including creating a device to help someone roll napkins around silverware in a restaurant, and an assistive technology system for a woman to play with her dog. Ashley explains that she and other rehab engineers work one-on-one with individuals, customizing products for each person's unique needs, and building them in the local technology lab.

As a person living with CMT, Ashley has plenty of advice for fellow CMT community members on how to adjust their surroundings to make them more CMT-friendly. We were impressed with Ashley's creativity and dedication to helping others and we hope you enjoy this episode as much as we did! Here are five takeaways from our conversation with Ashley:

1. Ashley is a rehabilitation engineer who uses her skills to make people's lives better.
2. Ashley works with individuals to modify their homes and work sites to make them more accessible, as well as helps students with technology.
3. Ashley has worked on some amazing projects, including a device to roll napkins around silverware and an assistive technology system for a woman to play with her dog.
4. Ashley and other rehab engineers work one-on-one with individuals, customizing products for each person's unique needs.
5. Ashley and her team build the products they design in the local technology lab.

Tune in to hear Ashley’s inspiring journey and the valuable advice she offers to those living with CMT.

New episodes featuring inspiring people from the CMT community drop every third Thursday of the month.

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LifeWithALimp on Instagram

Please leave us a positive review on your favorite podcast platform! This really helps spread awareness about CMT!

Our Official Website https://www.podpage.com/cmt4me/ Don’t forget to join our email list for updates!

Visit the Charcot-Marie-Tooth Association official website www.cmtausa.org

Join the CMTA Emotional Support group https://www.cmtausa.org/emotional-support-group/

Read Liz O’s Blog https://bestfoot4wardblog.com/tag/elizabeth-ouellette/

You can make a difference! Donate to the CMTA https://www.cmtausa.org/ways-to-give/imagine-whats-next/

Have children with CMT? Check out Camp Footprint! https://www.cmtausa.org/get-involved/camp-footprint/

CMT 4 Me is Hosted by Chris Ouellette and Elizabeth Ouellette

An iRonick Media Production

Released February 16th 2023
CMT 4 Me is an emotional, heartfelt, and humorous podcast for the 3+ million people who have CMT (Charcot-Marie-Tooth disease), their friends, family, and the general public. CMT 4 Me pro

For more information about CMT and to support the CMTA, please visit www.cmtausa.org