CForYourself: Mental health and cystic fibrosis

05/09/22 • 45 min

CForYourself: A podcast from Cystic Fibrosis Trust

Living with cystic fibrosis (CF) means more than just a set of physical symptoms - it can also have an impact on our mental and emotional wellbeing. In this episode, our guest Sarah talks openly and honestly about how CF has affected her mental health; from struggling to fit in as teenager, to the complicated emotions she's experienced since taking Kaftrio. We also hear from CF psychologist Dr Maya Bowri, who shares her advice for what to do if you're struggling with your mental health.
For more information and support, you can call our Helpline on 0300 373 1000, or email [email protected].
For more information on Kaftrio, you can read our factsheet at: https://www.cysticfibrosis.org.uk/the-work-we-do/information-resources/publications. It includes information about dealing with mixed emotions, managing changes, the reactions of family and friends, and other possible impacts of Kaftrio.
Find out more about CForYourself at www.cysticfibrosis.org.uk/podcast.

Next Episode

CForYourself: Work and cystic fibrosis

Growing up with CF, it’s completely normal to worry about what the future might hold; how CF might affect your working life and if you will still be able to achieve everything you want to. But it’s important to remember that more people with cystic fibrosis (CF) are in employment than ever before. And as far as possible, CF shouldn’t be a barrier to you achieving a fulfilling career and achieving your dreams, whatever that might mean for you.
Working life when you have CF can also bring its challenges, though– whether that be a less than understanding employer, managing treatments at work or time off for hospital appointments.
In this podcast we explore all that and more. Our host Lucy enjoys a (virtual) cuppa with guests Rupert and Cicely, who share their experiences of working with CF, discuss some of the barriers they’ve faced, and reflect on their hopes and dreams for the future.

We’ll also hear from Matthew, who works on the Trust’s Helpline and will be answering your questions on CF and employment, as well as introducing the Trust’s new programme of employment support for the CF community.

For information and support on any of the issues we talk about in the podcast, you can call our Helpline on 0300 373 1000, or email [email protected].

You can find lots more information on work and CF, including details of organisations that can provide support with discrimination, on our website: https://www.cysticfibrosis.org.uk/life-with-cystic-fibrosis/work.
Find out more about CForYourself at www.cysticfibrosis.org.uk/podcast.