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CForYourself: A podcast from Cystic Fibrosis Trust - CForYourself: CF Week special on research and CF

CForYourself: CF Week special on research and CF

CForYourself: A podcast from Cystic Fibrosis Trust

06/15/23 • 36 min

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CF week 2023 is all about celebrating the incredible progress we’ve already made in CF research, and looking forward to the breakthroughs we can make in the future.

In this extra special episode, our host, Lucy, chats with two guests, researcher Alice Collins and her brother Alexander, who has CF, about their work, life and childhood.

We also hear from Dr Paula Sommer, Director of Research and Healthcare Data at the Trust, about the importance of funding our research here at Cystic Fibrosis Trust.

It's thanks to our incredible supporters that we can continue to be at the cutting edge of CF research. Making breakthroughs and discoveries that change lives for the better. Now and in the future. But we know this is just the start. Incredible progress has been made, but there is still a long way to go until everyone with CF can truly live a life unlimited.

Donate today and help us unite for a life unlimited.

Read the full episode transcript on our website.

  • For more information and support on any of the issues we've talked about in this podcast, you can call our Helpline on 0300 373 1000, or email [email protected].
  • Find lots more information about the research we fund at the Trust.
  • Visit our Clinical Trials Hub to find out more about clinical trials and how you can get involved. You can also take a look at our very own Trials Tracker: a CF clinical trials database to help you find suitable clinical trial opportunities.
  • We fund research to tackle some of the most pressing issues in CF today. Find out how your donations are making a difference.
  • Read our factsheet on Kaftrio - complex and individual experiences. It contains information for people with CF and their families, whether they are taking Kaftrio or not. It includes information about dealing with mixed emotions, managing changes, the reactions of family and friends, and other possible impacts of Kaftrio.

The podcast is also available on Spotify and Apple Podcasts.

06/15/23 • 36 min

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CForYourself: A podcast from Cystic Fibrosis Trust - CForYourself: CF Week special on research and CF

Transcript

Season 1, episode 8: CF Week: Research and CF

Lucy (host): Hello and welcome to CForYourself, with me, your host, Lucy Baxter. The podcast brought to you by UK charity, Cystic Fibrosis Trust. I’m one of over 10,800 people in the UK living with cystic fibrosis.

CF is a genetic condition that causes a build-up of sticky mucus in the lungs. So that means I experience a range of different symptoms like breathlessness and malabsorption. I was diagnos

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