A Contemporary Approach to Palliative and Hospice Care for Family Caregivers and Their Recipients
11/14/23 • 20 min
How can you build a healthier relationship with death and dying that will benefit both caregiver and recipient? Aaron Yukich is an end-of-life doula, mindfulness practitioner, and hospice care worker. In his work with the Family Caregivers of BC Caregiver Support Line, Aaron incorporates meaning-making and self-reflection into his sessions with caregivers, helping them uncover new ways to provide support to their care recipients without overlooking their own well-being.
The end-of-life process has many varied aspects. Aaron helps caregivers navigate this intricate spiritual and emotional experience with grace, through activities and mindsets that can offer comfort and even joy. He also guides them in practical considerations, such as establishing often-overlooked financial and personal mental health support structures.
Aaron shares his holistic perspective on providing end-of-life care:
- Moving through the transition from palliative to hospice care
- Resources for addressing the impacts of caring for a care recipient
- Imbuing the time your loved one has left with more meaning
- Considering death and dying through a lens of celebration and reflection as well as grief
Resources:
- United Way Better at Home - https://betterathome.ca/
- Island Health Dementia Video Series - https://www.islandhealth.ca/learn-about-health/seniors/dementia-video-series
- Discover a local hospice - https://www.chpca.ca/listings/
- Hospice care information and assistance - https://www.virtualhospice.ca/
- Hospice resources with a cultural focus - https://livingmyculture.ca/
- Navigating the End of Life: A Road Map for Caregivers webinar - https://www.familycaregiversbc.ca/archives/video/navigating-the-end-of-life-a-road-map-for-caregivers
- Finding Peace at the End of Life: A Death Doula's Guide for Families and Caregivers by Henry Fersko-Weiss (2020 edition) - https://bookshop.org/p/books/finding-peace-at-the-end-of-life-a-death-doula-s-guide-for-families-and-caregivers-henry-fersko-weiss/13032460?ean=9781590035023
- Caring for the Dying: The Doula Approach to a Meaningful Death by Henry Fersko-Weiss (2017 edition) - https://www.amazon.ca/Caring-Dying-Doula-Approach-Meaningful/dp/1573246964
- BC Grief and Bereavement Society: list of support groups and other help for BC residents (also some options are across Canada) Contact the Helpline at 604-738-9950 and toll-free 1-877-779-2223 - https://bcbh.ca/groupsandevents/
- TalkDeath: death positive, grief and bereavement resources - https://www.talkdeath.com/
- Family Caregivers of BC Caregiver Support Line: 1-877-520-3267 (Monday through Friday 8:30am to 4pm PT)
Connect With Us!
To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast
Visit us at our office:
#6 – 3318 Oak Street, Victoria, BC V8X 1R1
Hours are Monday through Friday, 8:30 am to 4:00 pm
Telephone: (250) 384-0408 Toll-Free Line Within BC: 1-877-520-3267 Fax: (250) 361-2660 Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions - https://www.organizedsound.ca/
How can you build a healthier relationship with death and dying that will benefit both caregiver and recipient? Aaron Yukich is an end-of-life doula, mindfulness practitioner, and hospice care worker. In his work with the Family Caregivers of BC Caregiver Support Line, Aaron incorporates meaning-making and self-reflection into his sessions with caregivers, helping them uncover new ways to provide support to their care recipients without overlooking their own well-being.
The end-of-life process has many varied aspects. Aaron helps caregivers navigate this intricate spiritual and emotional experience with grace, through activities and mindsets that can offer comfort and even joy. He also guides them in practical considerations, such as establishing often-overlooked financial and personal mental health support structures.
Aaron shares his holistic perspective on providing end-of-life care:
- Moving through the transition from palliative to hospice care
- Resources for addressing the impacts of caring for a care recipient
- Imbuing the time your loved one has left with more meaning
- Considering death and dying through a lens of celebration and reflection as well as grief
Resources:
- United Way Better at Home - https://betterathome.ca/
- Island Health Dementia Video Series - https://www.islandhealth.ca/learn-about-health/seniors/dementia-video-series
- Discover a local hospice - https://www.chpca.ca/listings/
- Hospice care information and assistance - https://www.virtualhospice.ca/
- Hospice resources with a cultural focus - https://livingmyculture.ca/
- Navigating the End of Life: A Road Map for Caregivers webinar - https://www.familycaregiversbc.ca/archives/video/navigating-the-end-of-life-a-road-map-for-caregivers
- Finding Peace at the End of Life: A Death Doula's Guide for Families and Caregivers by Henry Fersko-Weiss (2020 edition) - https://bookshop.org/p/books/finding-peace-at-the-end-of-life-a-death-doula-s-guide-for-families-and-caregivers-henry-fersko-weiss/13032460?ean=9781590035023
- Caring for the Dying: The Doula Approach to a Meaningful Death by Henry Fersko-Weiss (2017 edition) - https://www.amazon.ca/Caring-Dying-Doula-Approach-Meaningful/dp/1573246964
- BC Grief and Bereavement Society: list of support groups and other help for BC residents (also some options are across Canada) Contact the Helpline at 604-738-9950 and toll-free 1-877-779-2223 - https://bcbh.ca/groupsandevents/
- TalkDeath: death positive, grief and bereavement resources - https://www.talkdeath.com/
- Family Caregivers of BC Caregiver Support Line: 1-877-520-3267 (Monday through Friday 8:30am to 4pm PT)
Connect With Us!
To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast
Visit us at our office:
#6 – 3318 Oak Street, Victoria, BC V8X 1R1
Hours are Monday through Friday, 8:30 am to 4:00 pm
Telephone: (250) 384-0408 Toll-Free Line Within BC: 1-877-520-3267 Fax: (250) 361-2660 Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions - https://www.organizedsound.ca/
Previous Episode
How Brooke Ellison Maintains Dignity and Individuality as a Full-Time Care Recipient
How would you retain your sense of self if you required full-time care?
When Brooke Ellison was 11 years old, a car accident left her a ventilator-dependent quadriplegic. Her mother Jean stepped into the role of full-time caregiver, and their familial and caregiving relationship balance has continued for over thirty years.
Dr. Brooke Ellison graduated from Harvard, wrote two memoirs, and is a frequent public speaker on resilience, leadership, and hope. In this episode, she reflects on her experiences as a care recipient—both then and now. Specifically, Brooke shares how she navigates disability and how her definition of this term has changed and grown over the years.
Brooke shares what care feels like from the other side of the table:
- Why building a routine is so important when unpredictability is unavoidable
- How Brooke’s concept of disability as vulnerability has changed over the years
- The challenge of finding alone time when care needs are so pervasive
- Considering and communicating about the future despite its uncertainty
Resources:
- Family Caregivers of BC Caregiver Support Line: 1-877-520-3267 (Monday through Friday 8:30am to 4pm PT)
- Learn more about Brooke - https://www.brookeellison.com/
- Look Both Ways by Brooke Ellison - https://bookshop.org/p/books/look-both-ways-brooke-ellison/18034792?ean=9781951568184
- Miracles Happen by Brooke Ellison - https://www.amazon.ca/Miracles-Happen-Mother-Daughter-Journey/dp/0786867701
Connect With Us!
To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast
Visit us at our office: #6 – 3318 Oak Street, Victoria, BC V8X 1R1 Hours are Monday through Friday, 8:30 am to 4:00 pm
Telephone: (250) 384-0408 Toll-Free Line Within BC: 1-877-520-3267 Fax: (250) 361-2660 Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions - https://www.organizedsound.ca/
Next Episode
Supporting Young Caregivers: The Overlooked Caregiver Demographic
What difficulties develop when a child becomes a caregiver to their own parent? Studies show that young caregivers make up at least 12% of Canadian youth. One of these young people is Kristie Mar. At just 16 years old, Kristie set aside a significant part of her adolescence to become the sole carer for her mother, who was navigating schizophrenia and anorexia. The medical professionals, counsellors, and groups from whom she sought assistance, however, never gave her the title of “caregiver.” As such, it took her years to think of herself in this way or discover the resources that search term could unlock.
Today, Kristie is a medical student and an active participant in this community. She wants to help increase awareness and resources for fellow adolescents who are thrust, so often unprepared and unsupported, into the role of caregiver for their family members.
Hear the difficulties a young caregiver faced, caring on her own, including:
- The impact of expanding the narrow definition of “caregiver” to better identify young caregivers
- Where to uncover resources that help reduce the deep sense of isolation The many facets of childhood that are lost to young caregivers
- Strategies for maintaining mental health while balancing childhood and a very adult responsibility
Resources:
- Powerhouse program for young caregivers - https://www.familycaregiversbc.ca/young-caregivers-2
- Managing expectations - https://www.familycaregiversbc.ca/wp-content/uploads/2021/03/Managing-Expectations-April-2020-1.pdf
- Episode 11 How to Use Writing for Healing and Self Care - https://www.familycaregiversbc.ca/podcast/episode-11-how-to-use-writing-for-healing-and-self-care
- Episode 14 Creativity as a Form of Self Care - https://www.familycaregiversbc.ca/podcast/episode-14-creativity-as-a-form-of-self-care
- Family Caregivers of BC Caregiver Support Line - 1-877-520-3267 (Monday through Friday 8:30am to 4pm PT)
- Connect With Us!
To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast
Visit us at our office: #6 – 3318 Oak Street, Victoria, BC V8X 1R1 Hours are Monday through Friday, 8:30 am to 4:00 pm
Telephone: (250) 384-0408 Toll-Free Line Within BC: 1-877-520-3267 Fax: (250) 361-2660 Email: [email protected]
Facebook https://www.facebook.com/FamilyCaregiversBC/
Instagram https://www.instagram.com/familycaregiversofbc/
LinkedIn https://www.linkedin.com/company/18122187
X / Twitter https://twitter.com/caringbc
Thank you!
BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients
Organized Sound Productions - https://www.organizedsound.ca/
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