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Caregivers Out Loud

Caregivers Out Loud

Family Caregivers of BC

Powered by Family Caregivers of British Columbia and hosted by Bill Israel, "Caregivers Out Loud" will explore the ways in which the role of a caregiver can be both rewarding, while also emotionally, psychologically, and physically taxing. By sharing stories of caregivers and insight from community experts, we bring you perspective and connection, and ensure that you have support and balance from inspired caregivers, who are caregiving out loud. Please share this podcast with family and friends who could also benefit from hearing these stories. Discover more episodes and find more caregiving resources at https://www.FamilyCaregiversBC.ca or call the Family Caregivers of BC Caregiver Support Line toll-free in BC at 1 (877) 520-3267.
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Top 10 Caregivers Out Loud Episodes

Goodpods has curated a list of the 10 best Caregivers Out Loud episodes, ranked by the number of listens and likes each episode have garnered from our listeners. If you are listening to Caregivers Out Loud for the first time, there's no better place to start than with one of these standout episodes. If you are a fan of the show, vote for your favorite Caregivers Out Loud episode by adding your comments to the episode page.

Caregivers Out Loud - Why Speaking Up For Your Needs Matters
play

05/12/20 • 28 min

In a healthy relationship, the needs of both people are important - it’s a two-way street. Good communication is the key to making sure everyone’s needs are met. Whether it is between you and a spouse, or with your friends, successful relationships are all about communication. In today’s episode, we share how for caregivers, relationships with others can be more complex than usual. It can be hard to find ways to speak up for your own needs. If you are the primary caregiver, recognizing your own need for support might be difficult - particularly if the care receiver is uncomfortable with the idea - but still, you need to make these choices for yourself.

Highlights

  • Relationships are complex, so resentment, sadness, and guilt can still exist in any happy relationship; which is all very normal when you are a caregiver.
  • It’s not uncommon with men to be uncomfortable with diagnosis and want to keep that a secret.
  • The whole caregiving relationship depends on the caregiver being well.
  • There is joy in caregiving, but there’s also the sadness.
  • Caregivers focus a lot on the practical aspects, but what’s the hardest part is doing the emotional work or anticipatory grief.
  • Through talking about the caregiver’s feelings and needs as well as the care recipient, helps the recipient see the importance of letting people help.
  • 8:15 Strategies for caring for yourself as a caregiver.
  • Caregivers can still be responsible for their own experience while balancing the need for others.
  • Choosing freely to be a friend caregiver.
  • The learning curve of being a caregiver is like being in medical school.
  • 11:59 How a friendship can change when a friend becomes a caregiver.
  • Caregivers don’t know what to do and how to ask for help because it’s all so new.
  • Community shows that we can do things better together than individually and alone.
  • Real challenge is finding out what the caregiver friend needs and then matching what friends are willing to do and give.
  • 21:04 How the trust relationship by telling the truth restores the sense of equity or equality before being a caregiver.
  • 22:57 Lots of Helping Hands to have an organized approach to caregiving by using an online care calendar.
  • Opening up a conversation with anybody can be helpful because people need to give as much as they need to receive.

Quotes

“Relationships are complex, so resentment, sadness, and guilt can still exist in any happy relationship; which is all very normal when you are a caregiver. It takes work to overcome the negatives by seeking help, communicating with your loved one, and having the self-awareness to put it all into perspective.” - Jodie

“I have to take care of myself. Because if I'm not taking care of myself, who's going to take care of you?” - Nancy to her husband Ted

“You are free to ask for anything. But you must also ask for everything that you need. And we agree to only give what we're capable of giving.” - Jim’s principle to share the truth

“The agreement is you tell us the truth about what you need. We will tell you the truth about what we can deliver. Once we got to that point, everybody relaxed, and we got back into the normal rapport because we have a model that we can talk to.” - Jim

“I felt a little uncomfortable in intervening in what could have been seen as a family affair, a family issue. But I overcame that because I realized the benefit of us all working together, rather than working independently and duplicating some efforts and leaving gaps and others.” - Jim

Links Mentioned In the Episode

Lotsa Helping Hands - online care calendar

Connect With Us!

Family Caregivers of BC Website

Visit us at our office: #6 – 3318 Oak Street, Victoria, BC V8X 1R1 Hours are Monday through Friday, 8:30 am and 4:00 pm.

Telephone: (250) 384-0408 Toll-Free Line Within BC: 1-877-520-3267 Fax: (250) 361-2660 Email: [email protected]

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Instagram

LinkedIn

Twitter

Thank you!

BC Ministry of Health - Patients as Partners Initiative

Organized Sound Productions

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Caregivers Out Loud - Accessing Caregiver Support Networks
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04/14/20 • 26 min

Thank you for joining us for our inaugural episode! Over this first season, we’ll focus on caregiver wellbeing. How getting the support you need is vital. Why good communication with family members and medical professionals can be difficult, but rewarding. We’ll share some essential tips on how to look after yourself and you’ll hear stories from caregivers who have spent a great deal of time and energy living these experiences. These inspiring people will bring balance to caregiving along with the other aspects of your life.

Today, we take a look at how few of us can “go it alone” as caregivers. Having relationships with friends or organizations can boost your emotional strength for the marathon of caregiving. We’ll examine different sources of support available to caregivers, how to overcome challenges that prevent you from reaching out for support, and what it is like to really acknowledge your role as a caregiver. You’ll hear from caregivers who struggled with overwhelm before reaching out to access different kinds of support and the difference it made to their lives.

Highlights

  • 2:05 What is a caregiver?
  • Only 42% of caregivers self identify as a caregiver.
  • 3:55 The emotional work of caregiving.
  • 5:38 The rewards or benefits for caregiving.
  • Being an advocate - speaking on the care receiver’s behalf, not for them.
  • Caregivers need to access support to be a good advocate.
  • How to cope with caring for multiple people by sharing information with others.
  • Acknowledging that you need help and educate yourself to be a better caregiver.
  • Most people who come into the caregiving role are not trained for it.
  • 15:52 How support services can normalize what it is to be a caregiver.
  • 16:35 The benefits of a support group for caregivers.
  • Connect with others as if you’re part of a neighbourhood.
  • 19:00 How attending a support group meeting can leave you feeling with less weight on your shoulders.
  • 20:44 How to ask for help and how to accept support.
  • Know the importance of yourself; the healthier you are, mentally and physically, the better you will be able to care for someone else.

Quotes

“The more you open yourself up to communication with support groups, to support network, the more you think yes, you know, I guess you are right, I am a caregiver.” - Marlene

“I acknowledged, I need help. It's also very difficult for a caregiver to take that first step, thinking that it's for themselves because I don't need any help. But if we can share with them that the more you learn, the more information you have, the better you're going to be as a caregiver.” - Marlene

“Caregiving; it's not something they were trained for. It's something that's just come their way or they felt compelled to become a caregiver.” - Ben

“It takes caregivers to participate in community and it also takes people to offer that community to the caregivers. If everyone's doing their piece, then caregivers can feel held by community.” - Jodie

Links Mentioned In the Episode

The Change Foundation. For a brief summary, see Spotlight on Ontario’s Caregivers.

Spotlight on Ontario's Caregivers report – November 2018; page 15.

Caregiver Support Line, Toll-Free in BC, 1-877-520-3267.

Connect With Us!

Family Caregivers of BC Website

Visit us at our office: #6 – 3318 Oak Street, Victoria, BC V8X 1R1 Hours are Monday through Friday, 8:30am and 4:00pm.

Telephone: (250) 384-0408 Toll-Free Line Within BC: 1-877-520-3267 Fax: (250) 361-2660 Email: [email protected]

Facebook

Instragram

LinkedIn

Twitter

Thank you!

BC Ministry of Health - Patients as Partners Initiative

Organized Sound Productions

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Caregivers Out Loud - Grief as a Healing Gift

Grief as a Healing Gift

Caregivers Out Loud

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02/02/21 • 12 min

13 million Canadians or nearly half of the total population have provided care at some point in their lives. Yet caregiving may be a new term for many people. And often, unpaid caregivers do not identify with this title, as they feel it is part of their relationship with family or friends.

In today’s episode, we speak with Pat, who acknowledges that she was initially unfamiliar with the term caregiver, but learned more about this important role as she supported her husband, also named Pat, through his journey with Parkinson’s Disease and dementia.

Pat was engaged in a caregiver “learning process”, where she listened to her husband to better understand the effects of Parkinson's Disease in his daily life. Because of the value of their partnership, Pat’s relationship with her husband during his changing health conditions was sustained through humour and care.

You will gain insight into her caregiving journey, awareness of the caregiving role, and the unfolding responsibilities; including end of life care and her current caregiving stages of grief, bereavement, and honouring her husband and life-partner.

Highlights:

  • Caregiving was a new term for Pat and then she was full-in caregiving mode.
  • Supporting her husband with humour and care for their relationship was very apparent.
  • Loss and grief - knowing he is still there with her by showing up in signs or thoughts.
  • Giving back by supporting others in a caregiver support group.

Resources on Grief and Loss:

Links Mentioned in Episode:

Caregiver Support Line, Toll-Free in BC: 1-877-520-3267.

Connect With Us!

Family Caregivers of BC Website

Visit us at our office:

#6 – 3318 Oak Street

Victoria, BC V8X 1R1

Hours are Monday through Friday, 8:30 am and 4:00 pm.

Telephone: (250) 384-0408

Toll-Free Line Within BC: 1-877-520-3267

Fax: (250) 361-2660

Email: [email protected]

Facebook

Instragram

LinkedIn

Twitter

Thank you!

BC Ministry of Health - Patients as Partners Initiative

Organized Sound Productions

bookmark
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share episode
Caregivers Out Loud - Trailer 2021

Trailer 2021

Caregivers Out Loud

play

01/26/21 • 1 min

No matter where caregivers live, you have access to support.

Welcome to “Caregivers Out Loud”, a podcast powered by Family Caregivers of British Columbia. This season's podcast is hosted by Bill Israel who will be leading heartfelt, connective conversations with caregivers.

By sharing stories of caregivers and insight from community experts, we bring you perspective and connection, and ensure that you have support and balance from inspired caregivers, who are caregiving out loud.

Listen wherever you go by subscribing and listening to the podcast for free on your favourite podcast listening app or wherever you listen to audio. You can also listen, read through notes from each episode, and find additional caregiving resources on our website at https://www.familycaregiversbc.ca/podcast/.

For direct support, call our Caregiver Support Line Toll-Free in BC at 1-877-520-3267, Monday to Friday, 8:30 am to 7:00 pm Pacific time.

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Caregivers Out Loud - Grief is a Human Experience

Grief is a Human Experience

Caregivers Out Loud

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03/02/21 • 17 min

Grief is a human experience and it often feels messy or is accompanied by not knowing if you are "doing it right". Grief and loss can feel isolating. And many caregivers share different examples of grief, such as grieving the loss of your old life during caregiving and then also grieving the loss of the person you are caregiving for.

Normal does not exist during grief and in today's episode, we chat with Tricia Wallace, a Clinical Counsellor with Parkinson Society BC about the topic of caregiver grief and loss and suggestions on how to work with these emotions.

Highlights:

  • Grief and the grief process.
  • Mourning rituals and practices.
  • Grieving during caregiving (loss of 'old life') and also loss of the person you are caregiving for.
  • There is no right or wrong way to grieve.
  • Normal does not exist during grief.
  • End of life planning.

Resources on Grief and Loss:

Links Mentioned in Episode:

Connect With Us!

Family Caregivers of BC Website https://www.familycaregiversbc.ca/

Telephone: (250) 384-0408 Toll-Free Line Within BC: 1-877-520-3267 Fax: (250) 361-2660 Email: [email protected]

Facebook https://www.facebook.com/FamilyCaregiversBC/

Instagram https://www.instagram.com/familycaregiversofbc/

LinkedIn https://www.linkedin.com/company/18122187

Twitter https://twitter.com/caringbc

Thank you!

BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients

Organized Sound Productions http://www.organizedsound.ca/

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Caregivers Out Loud - Friends Caring for Friends - A Circle of Care Approach
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05/11/21 • 20 min

Have you ever said this to a struggling caregiver - “Let me know if there’s anything I can do to help?’ The offering has good intent, but many times people say it because they don’t know how to help, are uncomfortable, or want to be polite. And although 29 percent of caregivers in BC are in distress, you will still hear caregivers say: ‘I don’t need any help’ or ‘It’s okay, I’m fine’.

Today we hear from Jim and how he supported his friend Art and Art’s wife Grace during Grace’s diagnoses and disease. Jim shares how in the process of supporting his friends, and at first it wasn’t with great success, he learned a lot about himself. We talk about the FCBC Circle of Care model and how it worked for Jim and his support group.

Highlights:

  • Watching a friend with caregiving
  • How to support his caregiver friend and his wife who was ill and then dying
  • Circle of Care concept and development with the support of Family Caregivers of British Columbia
  • Strategies and tools to support
  • Vulnerability, growth, and learning from a man's point of view
  • The need to talk with other men and find his voice in communication and understanding

Resources:

Online Tools and Apps:

  • CaringBridge helps you create a free personal website to quickly share updates about your care recipient’s health journey. Share news and updates with everyone at the same time, activate your community and coordinate help, and receive emotional strength and support. https://www.caringbridge.org/
  • Lotsa Helping Hands features a free Help Calendar where you can post requests for support. Members of your community can quickly find ways to help, and Lotsa will send reminders and help coordinate logistics automatically so nothing falls through the cracks. Share how things are going, update requests, and receive support and feedback. http://lotsahelpinghands.com/
  • MealTrain is a free interactive online meal calendar with customized calendar dates, times and meal preferences. Invitations can be sent via email and Facebook including reminder emails, online journal updates and an optional donation fund add-on. https://www.mealtrain.com/
  • Tyze Connecting Care is an online tool that brings people together around someone receiving care.If you’re helping to care for someone Tyze is a simple way to keep everyone informed and get organized. Send updates to everyone at once from anywhere, keep track of everything in one place, access appointments, store documents and let family and friends know how to help. There may be a cost involved depending on options selected. http://tyze.com/caring-for-someone/
  • Ability411, they "answer questions and provide practical information about technologies, tools and equipment that increase independence and well-being for BC seniors, and support their families and care ...
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Caregivers Out Loud - How to Use Writing for Healing and Self-Care
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11/16/21 • 15 min

Research shows that family caregivers who list self-care as a priority can better provide care, are at lower risk of burnout and becoming ill, and find more joy in their role as a caregiver. Starting with small acts of self-care can create the opportunity to see the benefits. Calling a friend who lifts you up, accepting help, finding five minutes for a cup of tea in silence, or closing your eyes and breathing for 10 breaths are all acts of self-care.

Today we'll hear Rick's story, who shares his caregiving experience with both of his parents. Like many caregivers, Rick didn’t expect to be thrown into a caregiving role when he was. He quickly took on the many roles needed to ensure his parents were safe and well-cared for. Caregiving became a full-time job and it was during this time that he started to see his own health and wellness decline. He turned to writing to help him process his experience and feelings and this became a positive and reliant self-care strategy for him. In sharing his caregiving story, we hope you enjoy and feel supported by Rick's point of voice and maybe even consider your own favourite moments of self-care.

Resources:

Online Tools and Apps:

Connect With Us!

Family Caregivers of BC Website https://www.familycaregiversbc.ca/

Toll-Free Line Within BC: 1-877-520-3267

Fax: (250) 361-2660

Email: [email protected]

Facebook https://www.facebook.com/FamilyCaregiversBC/

Instagram https://www.instagram.com/familycaregiversofbc/

LinkedIn https://www.linkedin.com/company/18122187

Twitter https://twitter.com/caringbc

Thank you!

BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients

Organized Sound Productions https://www.organizedsound.ca/

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Caregivers Out Loud - Moving from Home to a Care Facility - Next Steps
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12/14/21 • 13 min

Once the decision has been made that placement in a care community is necessary, caregivers are often faced with the “what next” question. Because there are different levels of care and each community has a different ‘personality’, it’s very important to be as prepared as possible for the transition.

In this episode, we chat with Kathy Ajas, who for the last 17-years has worked in the retirement industry, including independent living, assisted living, and short and long-term care. Together, we explore questions caregivers have when considering moving to a new level of care with their care recipient.

Resources:

Online Tools and Apps:

Route 65 https://route65.ca/

Route 65 was developed by EngAge BC, a non-profit operating arm of the BC Care Providers Association (BCCPA), in response to a visible gap in quality information about seniors’ living and wellness options in the province. On Route 65, seekers can find more information on independent living, assisted living, long-term care and home health care options. Route 65 also helps users navigate the seniors living and wellness continuum through their Glossary, Frequently Asked Questions and Resource pages, along with Walter, their 24-7 virtual concierge chatbot, who helps triage seekers to the most appropriate options. Contact 1-877-955-6565.

Connect With Us!

Family Caregivers of BC Website https://www.familycaregiversbc.ca/

Toll-Free Line Within BC: 1-877-520-3267

Fax: (250) 361-2660

Email: [email protected]

Facebook https://www.facebook.com/FamilyCaregiversBC/

Instagram https://www.instagram.com/familycaregiversofbc/

LinkedIn https://www.linkedin.com/company/18122187

Twitter https://twitter.com/caringbc

Thank you!

BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients

Organized Sound Productions

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Caregivers Out Loud - Creativity as a Form of Self Care
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02/15/22 • 20 min

Engaging with creativity is a form of self-care that can benefit both a caregiver and a care recipient in many ways. In 2015, psychologist and art therapist Dr. Cathy Malchiodi cited multiple studies confirming that being creative can increase positive emotions, lessen depressive symptoms, reduce stress, decrease anxiety, and even improve immune system functioning. A 2016 study in The Journal of Positive Psychology supported these earlier findings, concluding that spending time on creative goals during a day is associated with higher activated positive affect (PA) on that day. Positive affect is the extent to which people experience positive moods, such as joy, happiness, and optimism. Higher positive effects lower stress and expand our perspective so that we notice more possibilities in our lives.

In today’s episode, Bill chats with Faye Melling, a caregiver for her adult daughter. Faye talks about how being creative has helped her deal with some of the ups and downs in her caregiving journey. She also shares how her daughter is using artistic expression as a way to deal with some of the challenges she’s experiencing due to her condition.

Resources:

Connect With Us!

Family Caregivers of BC Website https://www.familycaregiversbc.ca/

Toll-Free Line Within BC: 1-877-520-3267

Fax: (250) 361-2660

Email: [email protected]

Facebook https://www.facebook.com/FamilyCaregiversBC/

Instagram https://www.instagram.com/familycaregiversofbc/

LinkedIn https://www.linkedin.com/company/18122187

Twitter https://twitter.com/caringbc

Thank you!

BC Ministry of Health - Patients as Partners Initiative https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients

Organized Sound Productions https://www.organizedsound.ca/

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How can you build a healthier relationship with death and dying that will benefit both caregiver and recipient? Aaron Yukich is an end-of-life doula, mindfulness practitioner, and hospice care worker. In his work with the Family Caregivers of BC Caregiver Support Line, Aaron incorporates meaning-making and self-reflection into his sessions with caregivers, helping them uncover new ways to provide support to their care recipients without overlooking their own well-being.

The end-of-life process has many varied aspects. Aaron helps caregivers navigate this intricate spiritual and emotional experience with grace, through activities and mindsets that can offer comfort and even joy. He also guides them in practical considerations, such as establishing often-overlooked financial and personal mental health support structures.

Aaron shares his holistic perspective on providing end-of-life care:

  • Moving through the transition from palliative to hospice care
  • Resources for addressing the impacts of caring for a care recipient
  • Imbuing the time your loved one has left with more meaning
  • Considering death and dying through a lens of celebration and reflection as well as grief

Resources:

Connect With Us!

To read a full transcript of each episode, visit the Family Caregivers of BC website https://www.familycaregiversbc.ca/podcast

Visit us at our office:

#6 – 3318 Oak Street, Victoria, BC V8X 1R1

Hours are Monday through Friday, 8:30 am to 4:00 pm

Telephone: (250) 384-0408 Toll-Free Line Within BC: 1-877-520-3267 Fax: (250) 361-2660 Email: [email protected]

Facebook https://www.facebook.com/FamilyCaregiversBC/

Instagram https://www.instagram.com/familycaregiversofbc/

LinkedIn https://www.linkedin.com/company/18122187

Twitter https://twitter.com/caringbc

Thank you!

BC Ministry of Health - Patients as Partners Initiative - https://www2.gov.bc.ca/gov/content/health/about-bc-s-health-care-system/partners/patients

Organized Sound Productions - https://www.organizedsound.ca/

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FAQ

How many episodes does Caregivers Out Loud have?

Caregivers Out Loud currently has 27 episodes available.

What topics does Caregivers Out Loud cover?

The podcast is about Health & Fitness, Society & Culture, Personal Journals, Medical, Family, Podcasts, Caregiver, Caregiving and Selfcare.

What is the most popular episode on Caregivers Out Loud?

The episode title 'Why Speaking Up For Your Needs Matters' is the most popular.

What is the average episode length on Caregivers Out Loud?

The average episode length on Caregivers Out Loud is 20 minutes.

How often are episodes of Caregivers Out Loud released?

Episodes of Caregivers Out Loud are typically released every 32 days.

When was the first episode of Caregivers Out Loud?

The first episode of Caregivers Out Loud was released on Feb 18, 2020.

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