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Brain & Life - JenVon Cherry on Educating Communities of Color About Epilepsy

JenVon Cherry on Educating Communities of Color About Epilepsy

12/05/24 • 50 min

Brain & Life

In this episode of the Brain & Life podcast, Dr. Daniel Correa is joined by JenVon Cherry, who was diagnosed with epilepsy as a child after a traumatic brain injury (TBI.) JenVon is now an epilepsy advocate who founded Epitome of Epilepsy, a nonprofit organization dedicated to raising awareness and support for individuals affected by epilepsy, particularly within communities of color. Dr. Correa is then joined by Dr. Latanya Agurs, former army neurologist and assistant professor of neurology serving as the Pediatric Neurology Residency Program Director at the Children's Hospital Los Angeles. Dr. Agurs discusses epilepsy and TBI in children, the emotional components of a diagnosis, and resources for caregivers.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

Epitome of Epilepsy

This Woman Overcame Tragedy to Educate Communities of Color About Epilepsy

Young Woman Tackles Bullying and Epilepsy

Other Brain & Life Episodes on Similar Topics

Actor Cameron Boyce’s Legacy and Raising Awareness About SUDEP

Tiffany Kairos on Finding Her Voice in Epilepsy Advocacy

Greg Grunberg on Raising Epilepsy Awareness

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

· Email us at [email protected]

Social Media:

Guests: JenVon Cherry @epitomeofepilepsy; Dr. Latanya Agurs @chlachildneuro

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

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In this episode of the Brain & Life podcast, Dr. Daniel Correa is joined by JenVon Cherry, who was diagnosed with epilepsy as a child after a traumatic brain injury (TBI.) JenVon is now an epilepsy advocate who founded Epitome of Epilepsy, a nonprofit organization dedicated to raising awareness and support for individuals affected by epilepsy, particularly within communities of color. Dr. Correa is then joined by Dr. Latanya Agurs, former army neurologist and assistant professor of neurology serving as the Pediatric Neurology Residency Program Director at the Children's Hospital Los Angeles. Dr. Agurs discusses epilepsy and TBI in children, the emotional components of a diagnosis, and resources for caregivers.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

Epitome of Epilepsy

This Woman Overcame Tragedy to Educate Communities of Color About Epilepsy

Young Woman Tackles Bullying and Epilepsy

Other Brain & Life Episodes on Similar Topics

Actor Cameron Boyce’s Legacy and Raising Awareness About SUDEP

Tiffany Kairos on Finding Her Voice in Epilepsy Advocacy

Greg Grunberg on Raising Epilepsy Awareness

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

· Email us at [email protected]

Social Media:

Guests: JenVon Cherry @epitomeofepilepsy; Dr. Latanya Agurs @chlachildneuro

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

Previous Episode

undefined - Thriving in the Kitchen with Chef Dan Jacobs

Thriving in the Kitchen with Chef Dan Jacobs

In this episode of the Brain & Life podcast, Dr. Daniel Correa is joined by Top Chef contestant and restaurant owner Dan Jacobs. Dan shares his Kennedy disease diagnosis and how despite his symptoms, he found his way to the Top Chef kitchen. He also discusses what led him to pursue a career in cooking and how he is planning for his future. Dr. Correa is then joined by Dr. Chris Grunseich, a neurologist and researcher with a focus on neurodegenerative disorders, working at the NIH in the National Institute of Neurological Disorders and Stroke. Dr. Grunseich explains Kennedy disease and other genetic disorders and how researchers are working to find exactly what patients need to thrive.

Dan Jacobs, Dr. Correa, and Dr. Peters also shared some of their favorite holiday recipes in this episode! See the end of the show notes to learn more.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

National Organization for Rare Diseases

8 Questions to Ask Before Undergoing Genetic Testing

Genetic Testing and Disease Resources

Other Brain & Life Episodes on Similar Topics

Aaron Lazar on His ALS Journey and the Impossible Dream

Author Tanita Allen on Existing with Huntington's Disease

Master Chef Christine Ha on Adapting to Life with NMO

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

· Email us at [email protected]

Social Media:

Guests: Dan Jacobs @chefdanjacobs; Dr. Chris Grunseich @nihgov

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

Recipes

Dr. Peters’ Favorite Turkey Risotto

Dr. Correa’s Favorite Mojo Verde

Dan Jacobs’ Smashed Cucumber Salad

Ingredients

• 6-8 persian cucmbers or 2 large seedless cucumbers

• 1/4C mung bean sprouts

• 1/4C sliced daikon radish

• 1/4C scallions sliced as thin and long as you can

• 1 bunch cilantro roughly picked (you can leave some stem on. The stems are full of

flavor.

• 1/4C dill

• 1/4C roasted and salted peanuts chopped up in a food processor

• 2T chili crunch (by whatever producer. Fly by Jing’s is a nice one.)

• 4T black vinegar

• 1t salt

• 2t sugar

• 1/4C sesame oil

Process

1. Put cucumbers in a gallon ziplock bag. Do not seal them. If using Persian

cucumbers, you will need to chop them in. Thirds and then halve lengthwise.

2. Using a rolling pin or mallet, beat the cucumbers up a bit. The irregular crags and

breaks will hold the vinaigrette perfectly.

3. Mix the chili crunch, black vinegar, sesame oil, salt, and sugar.

4. Mix all ingredients.

Next Episode

undefined - Parenting and Writing While Disabled with Jessica Slice

Parenting and Writing While Disabled with Jessica Slice

In this episode of the Brain & Life podcast, Dr. Katy Peters is joined by author, essayist, and speaker who “writes, thinks, and talks about disability” Jessica Slice. Jessica shares about her experiences as a disabled parent, what inspired her to write her books, and what hopes she has for the future. Dr. Peters is then joined by Dr. Svetlana Blitshteyn, Director and Founder of Dysautonomia Clinic and Clinical Associate Professor of Neurology at the University at Buffalo Jacobs School of Medicine and Biomedical Sciences. Dr. Blitshteyn explains exactly what Ehlers-Danlos, POTS, and Dysautonomia are, how diagnoses are made, and what treatment options look like.

We invite you to participate in our listener survey! By participating in the brief survey, you will have the opportunity to enter your name and email address for a chance to win one of five $100 Amazon gift cards.

Additional Resources

Jessica Slice

Understanding the Mysteries of POTS and Other Autonomic Disorders

A Swimmer Returns to the Pool After Ehlers-Danlos Syndrome Diagnosis

New Research May Help People with Long-Haul COVID-19

Dysautonomia Clinic

Other Brain & Life Episodes on Similar Topics

Understanding Long COVID: What We Know

How Paula Carozzo is Redefining Disability and Advocating for Her Community

How Disability Advocate Wesley Hamilton Became Empowered by Adversity

We want to hear from you!

Have a question or want to hear a topic featured on the Brain & Life Podcast?

· Record a voicemail at 612-928-6206

Email us at [email protected]

Social Media:

Guests: Jessica Slice @jessicaslice; Dr. Svetlana Blitshtyen @dysclinic

Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD

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